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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if you believe radical remission is possible?

173 replies

Edenspirits73 · 30/08/2024 19:18

I’ve just read this book https://www.amazon.co.uk/Radical-Remission-Surviving-Cancer-Against/dp/0062268740

It’s written by an American researcher, lecturer and oncologist and charts her experiences of gathering cases of radical remission from all over the world. It’s presented in quite a scientific way & she charts the 9 things that all the people who went into radical remission & had in common. It’s fascinating too.

Ironically it was recommended to me when my dad was dying of bowel cancer - end stage for him.

It’s a real book of hope (but not false hope) as it charts a largely unreported area of health - and an idea that people survive and thrive even end stage 4 cancer.

So am I being unreasonable to believe? Obviously these are real case studies too as she felt it was a totally unreported area of medicine but it feels like believing that you can heal from cancer is not a mainstream belief at all - it’s almost contraversial and held up as false hope I think.

Intererested in thoughts!

OP posts:
Edenspirits73 · 30/08/2024 20:48

PaminaMozart · 30/08/2024 20:41

But she is very clear to say that she isn’t trying to create false hope.

You are being incredibly naive. You really think that some desperate people who are staring death in the face won't grasp at straws, any straws?

Yes, I agree. But I still don’t think from reading the book that she’s a grifter.

Read the reviews on Amazon - like me, people just found it an interesting hopeful read. And that includes people with cancer.

Even having watched my Dad fade away and suffer so much indignity and not want to die, I still wasn’t offended by what she was saying.

OP posts:
user1471453601 · 30/08/2024 20:49

Why is it a bad thing? Ask those who are in the throes of dying and whose relatives/ friends may think they are dying because of something they have done, or not done(delete as appropriate).

When you have a disease that may be fatal, it's not always down to what you've done or not done. It just IS.

I know that truth is sometimes hard to bear, that we cannot control everything. But it is the truth.

Education79 · 30/08/2024 20:54

There are certainly well documented cases of "radical remission" in that someones cancer clears when they are given a terminal diagnosis - but those cases are vanishingly rare.

If there was really anything that could externally be done to cause that to happen serious researchers would have been all over it years ago.

Sadly stuff like this is just making money out of selling false hope to people who a desperate for it, and that in my book is the lowest thing you can do.

Bunnycat101 · 30/08/2024 20:54

I’m in the ‘this is bollocks’ camp. The only one that might realistically help re reducing risk is diet but it is ridiculous to say that changing diet and taking some herbs will reverse stage 4 cancer.

The people might believe those 9 things helped but it doesn’t mean they actually did especially if some of them were also on conventional medical treatment.

KnitFastDieWarm · 30/08/2024 20:54

Edenspirits73 · 30/08/2024 20:09

I’m trying to comment on cases of radical remission.

It seems to be that in some cases the body creates cancer and then spontaneously gets rid of it too.

There are definitely cases of radical remission because that’s just how the body works - sometimes these things happen.

It has absolutely fuck all to do with anything someone with cancer does or doesn’t do, and to suggest otherwise is a) insulting and b) so obviously a moneymaking exercise on the part of this ‘author’ that it’s concerning you can’t see it for what it is.

Floralsofa · 30/08/2024 20:58

My DM died a terrible death from cancer a couple of years ago, I do believe that if she didn't have so many supressed emotions, she would have gone into remission and survived.

iolaus · 30/08/2024 21:01

She is not an oncologist - she is a 'counselor in the field of integrated oncology' - she is a doctor because she has a phd - that is not the same thing by any stretch of the imagination - but worded in a way that will make people think she is

She's also a screenwriter and actress

nextdoorconundrum · 30/08/2024 21:01

QVC · 30/08/2024 19:20

Anything is possible with Jesus Christ.

?

TheYearOfSmallThings · 30/08/2024 21:06

It’s written by an American researcher, lecturer and oncologist

Just to clarify, OP - she is not a medical doctor, and she is not an oncologist. She describes herself as a researcher (anyone can describe themselves as such), lecturer (you can hire her or see her on her lecture tour), and "consultant in the field of integrative oncology" (meaning you can pay her to advise you on positive thinking or yoga in relation to cancer). She is not a consultant physician in the UK sense.

SewingBees · 30/08/2024 21:07

Arraminta · 30/08/2024 20:26

My MIL was diagnosed with stage 2 breast cancer that I think was also found in her lymph nodes? She had a lumpectomy and radiotherapy. She went on to live a further 36 years and actually died of something totally unconnected. I don't know how common that is though?

It's becoming more and more common, especially with modern drugs. Not all of us are so lucky though - the drugs don't prevent cancer metastasizing for everyone.

Edenspirits73 · 30/08/2024 21:09

iolaus · 30/08/2024 21:01

She is not an oncologist - she is a 'counselor in the field of integrated oncology' - she is a doctor because she has a phd - that is not the same thing by any stretch of the imagination - but worded in a way that will make people think she is

She's also a screenwriter and actress

I work at a University and most of the academics have a PhD in their field. And they have Dr in their title. They are usually experts in their field and that includes scientists in cancer research.

Whether in this case she is or not seems up for debate but don’t be sneery about her Phd. Most experts in cancer research are not medical doctors, they are academics with PhDs.

OP posts:
Thelittleweasel · 30/08/2024 21:15

@KrisAkabusi @Edenspirits73

The sad thing is that there must surely be many many researchers looking for such happenings which can be verified scientifically as having an effect more than chance. We do - of course - hear of "spontaneous remission" but at what frequency "really".

TheYearOfSmallThings · 30/08/2024 21:16

Edenspirits73 · 30/08/2024 20:48

Yes, I agree. But I still don’t think from reading the book that she’s a grifter.

Read the reviews on Amazon - like me, people just found it an interesting hopeful read. And that includes people with cancer.

Even having watched my Dad fade away and suffer so much indignity and not want to die, I still wasn’t offended by what she was saying.

She may not be a grifter - not having read the book I couldn't judge.

But I suspect if the book serves any real purpose it is in allowing people to believe they are not 100% guaranteed to die, because some people can't live their remaining time well if they believe that. And some people do survive, through luck. What they attribute their survival to is probably culturally determined - in one country is will be prayer or sacrificing chickens, in the US it will be coffee enemas and positive thinking.

Riverhillhouse · 30/08/2024 21:16

Floralsofa · 30/08/2024 20:58

My DM died a terrible death from cancer a couple of years ago, I do believe that if she didn't have so many supressed emotions, she would have gone into remission and survived.

I am so sorry to hear about your mum & obviously you are entitled to believe what you choose to believe about her death. Personally I would hate someone to think this about me as it implies that I had some element of control over it. There’s no evidence that releasing anger or other emotions would make any difference.

TheYearOfSmallThings · 30/08/2024 21:17

Edenspirits73 · 30/08/2024 21:09

I work at a University and most of the academics have a PhD in their field. And they have Dr in their title. They are usually experts in their field and that includes scientists in cancer research.

Whether in this case she is or not seems up for debate but don’t be sneery about her Phd. Most experts in cancer research are not medical doctors, they are academics with PhDs.

But she is not an oncologist, and that is important to clarify.

jannier · 30/08/2024 21:18

Edenspirits73 · 30/08/2024 19:22

It’s stuff like radical dietary changes, supplements, following intuition, dealing with negative emotions etc - every case study had those 9 things in common and she interviewed hundreds of people globally

I think you should research her properly plenty of people have made money saying these things and been proved not to be a cure but people will pay for a book when desperate.

Litlgreyrabbit · 30/08/2024 21:18

NeverDropYourMooncup · 30/08/2024 20:44

https://www.radicalremission.com/coach-training

https://www.radicalremission.com/

All you have to do is google Dr + the name and that's how you get to the moneymaking schemes. Doesn't include the money from book sales or podcast advertising/sponsorship, the advertising revenue from the series or any of the other things that make a shitload of dosh from the terrified.

Yeah that’s pretty disappointing. I won’t be buying the book.

jannier · 30/08/2024 21:20

Edenspirits73 · 30/08/2024 20:18

I have no reason to assume the cases aren’t real. She’s a scientist and researcher. I don’t think she’s a money making charlatan - it’s pretty grim if she is and a grim thing to do.

Her intro is all about everything you have mentioned and she’s clear that she isn’t a peddler of false hope.

i’m just interested in it as I have lost a lot of people to cancer. I am interested in peoples stories and I think that’s fine - we get very few stories of survival and hope. Why is that a bad thing?

The man who claimed autism and inoculations were linked was qualified too he's since admitted he made it up. He got a lot of attention and presumably money from it.

Edenspirits73 · 30/08/2024 21:21

TheYearOfSmallThings · 30/08/2024 21:17

But she is not an oncologist, and that is important to clarify.

Maybe not by U.K. standards, no, and I can’t comment on that.

But I think it’s also important to clarify that it’s scientists in labs, often at Universities, that are doing the research into cancer. My uni has a highly regarded life sciences sept doing research into diseases.

As we don’t know her research methods, it’s hard to comment but I also work with social scientists doing research into all kinds of things - none of it with less value.

OP posts:
jannier · 30/08/2024 21:23

Edenspirits73 · 30/08/2024 20:48

Yes, I agree. But I still don’t think from reading the book that she’s a grifter.

Read the reviews on Amazon - like me, people just found it an interesting hopeful read. And that includes people with cancer.

Even having watched my Dad fade away and suffer so much indignity and not want to die, I still wasn’t offended by what she was saying.

They've also proved Amazon reviews are not always accurate. A handful of cases from the millions across the world is more likely to be false hope....and as you say people got hope from it ....and she made money.
My father and sister died from cancer and I've had a grade 4 breast cancer it hadn't spread

OchonAgusOchonOh · 30/08/2024 21:23

Edenspirits73 · 30/08/2024 19:41

Maybe it should form part of cancer research to explore why some of these things work for some people and not others - genetic differences etc. Some of the case studies are fascinating.

You're assuming that these things worked for the people who survived.

Interestingly, shark attacks on people are significantly higher in locations that sell a lot of ice-cream.

Correlation does not equal causation.

Confrontayshunme · 30/08/2024 21:24

My DH works in oncology. Sorry but there is just no such thing as a cure. I believe they use the words radical remission because saying it's a cure would bring lawsuits over it.

Didshejustsaythatoutloud · 30/08/2024 21:26

QVC · 30/08/2024 19:20

Anything is possible with Jesus Christ.

😆 really?

OchonAgusOchonOh · 30/08/2024 21:27

Edenspirits73 · 30/08/2024 21:21

Maybe not by U.K. standards, no, and I can’t comment on that.

But I think it’s also important to clarify that it’s scientists in labs, often at Universities, that are doing the research into cancer. My uni has a highly regarded life sciences sept doing research into diseases.

As we don’t know her research methods, it’s hard to comment but I also work with social scientists doing research into all kinds of things - none of it with less value.

Based on your description of the book, it's a series of case studies where she assessed whether certain lifestyle characteristics were present or not in the presumably self-selecting group of subjects.

That is not scientific and it's not an appropriate approach to assess causation.

AuntieStella · 30/08/2024 21:28

I remember being struck by a comment in Bernie Siegel's "Love, Medicine, Miracles" about how there are cases which defy medical expectation, and the trajectory of a cancer changes for no obvious reason, sometimes to the point of spontaneously resolving. And that no one studies these cases to find out why and how this happens