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Share your dilemmas and get honest opinions from other Mumsnetters.

To apply for DLA for DD when we have a household income of over 300k?

535 replies

Milesandmilesandmiles · 24/07/2024 16:14

Just that really - we have an autistic daughter who needs support with most things (although is in mainstream school). Between us DH and I earn over 300k, so we don’t need the money. However, conscious that we won’t be around for ever and we could save it for DD’s needs as she grows. But is this what state benefits are for?

OP posts:
Rosscameasdoody · 26/07/2024 20:21

The OP wants to apply for the benefit which is now called PIP. Did someone tell her she should not claim taxpayer's money when they have a high income? I suspect someone did, someone with a similar attitude to some posters on this thread.*

Nope, sorry. Child DLA and PiP are two completely different benefits. PIP is for adults of working age, child DLA is for children under 16. Maybe research the different disabilty benefits and make sure you know what you’re talking about before you come on here and try to lecture people. All disability benefits are universal and should remain that way. The only qualification should be disability.

llizzie · 26/07/2024 20:22

The benefit for children is still called DLA. I don't think I made that clear in my response. After 16 it is PIP now.

I receive DLA because I received it before the change to PIP. That will never change. Adults on DLA will receive it until they die, but have to give it up if they go into hospital. The 1948 NATIONAL ASSISTANCE ACT was passed at the same time as the NHS ACT. Anyone at that time who received any benefit, including the state pension, had to hand their benefit/pension books in when they were admitted to hospital. I believe that might still be the case. It means that THE NHS IS FREE AT THE POINT OF NEED TO EVERYONE EXCEPT THOSE ON DLA ,PIP & AA. They all pay for NHS treatment, and if they go into an LA residential home, the benefits get taken away then as well.

Family and Pension Credit benefits are means tested and designed to raise income to those on a knife edge, which it rarely does.

BrumToTheRescue · 26/07/2024 20:26

Most working age claimants who received DLA before PIP was introduced have now transferred to PIP.

have to give it up if they go into hospital.

That depends on the length of the admission.

Rosscameasdoody · 26/07/2024 20:32

llizzie · 26/07/2024 20:22

The benefit for children is still called DLA. I don't think I made that clear in my response. After 16 it is PIP now.

I receive DLA because I received it before the change to PIP. That will never change. Adults on DLA will receive it until they die, but have to give it up if they go into hospital. The 1948 NATIONAL ASSISTANCE ACT was passed at the same time as the NHS ACT. Anyone at that time who received any benefit, including the state pension, had to hand their benefit/pension books in when they were admitted to hospital. I believe that might still be the case. It means that THE NHS IS FREE AT THE POINT OF NEED TO EVERYONE EXCEPT THOSE ON DLA ,PIP & AA. They all pay for NHS treatment, and if they go into an LA residential home, the benefits get taken away then as well.

Family and Pension Credit benefits are means tested and designed to raise income to those on a knife edge, which it rarely does.

Nope. 1948 national assistance act has been superseded dozens of times to make way for welfare reform introducing different benefits. You still receive DLA because you were over the cut off age to be migrated to PIP in 2013 but that doesn’t mean you can stay on it for ever - if there is a change in your condition or circumstances you will be migrated on to Attendance Allowance because that is the only disability benefit available to those over pensionable age. And the NHS is free at the point of need to everyone, regardless of what benefit they claim. DLA, PIP and AA claimants DO NOT, I repeat, DO NOT have to pay for treatment on the NHS. If they are in hospital for four weeks or more the benefit is stopped until they are discharged and then resumed. If they go into a residential home and are self funding the benefits continue - it’s only when the state starts to contribute towards residential care that those benefits are stopped. You have no idea what you’re talking about so I’d stop now if I were you.

pam290358 · 26/07/2024 20:36

BrumToTheRescue · 26/07/2024 20:26

Most working age claimants who received DLA before PIP was introduced have now transferred to PIP.

have to give it up if they go into hospital.

That depends on the length of the admission.

28 days. And if they have a motability car they can apply for an extension for up to three months. Many people who were over the cut off age in 2013 are still claiming DLA as a legacy benefit and will stay on it until the award runs out or circumstances/condition changes. This poster is either a troll or clearly doesn’t know what they’re talking about.

DotAndCarryOne2 · 26/07/2024 20:41

llizzie · 26/07/2024 20:22

The benefit for children is still called DLA. I don't think I made that clear in my response. After 16 it is PIP now.

I receive DLA because I received it before the change to PIP. That will never change. Adults on DLA will receive it until they die, but have to give it up if they go into hospital. The 1948 NATIONAL ASSISTANCE ACT was passed at the same time as the NHS ACT. Anyone at that time who received any benefit, including the state pension, had to hand their benefit/pension books in when they were admitted to hospital. I believe that might still be the case. It means that THE NHS IS FREE AT THE POINT OF NEED TO EVERYONE EXCEPT THOSE ON DLA ,PIP & AA. They all pay for NHS treatment, and if they go into an LA residential home, the benefits get taken away then as well.

Family and Pension Credit benefits are means tested and designed to raise income to those on a knife edge, which it rarely does.

Family and Pension Credit benefits are means tested and designed to raise income to those on a knife edge, which it rarely does.

Why are you posting nonsense ? My mother claimed pension credit at the rate of £23 a week until she was eligible for the higher rate attendance allowance after a stroke. This one change raised her pension credit to over £100 a week. Not exactly rare.

BrumToTheRescue · 26/07/2024 20:42

pam290358 · 26/07/2024 20:36

28 days. And if they have a motability car they can apply for an extension for up to three months. Many people who were over the cut off age in 2013 are still claiming DLA as a legacy benefit and will stay on it until the award runs out or circumstances/condition changes. This poster is either a troll or clearly doesn’t know what they’re talking about.

Exactly, as I said then, claimants’ payments don’t automatically stop when they go into hospital. It depends on the length of the admission. It also depends on their age because different rules apply to children.

Most working age adults previously on DLA have transitioned to PIP. Adults born before 9 April 1948 can’t swap to PIP, but then they aren’t working age, so my post clearly wasn’t aimed at them.

@pam290358 sincere apologies, I thought you were the other poster who is posting the rubbish.

pam290358 · 26/07/2024 20:48

BrumToTheRescue · 26/07/2024 20:42

Exactly, as I said then, claimants’ payments don’t automatically stop when they go into hospital. It depends on the length of the admission. It also depends on their age because different rules apply to children.

Most working age adults previously on DLA have transitioned to PIP. Adults born before 9 April 1948 can’t swap to PIP, but then they aren’t working age, so my post clearly wasn’t aimed at them.

@pam290358 sincere apologies, I thought you were the other poster who is posting the rubbish.

Edited

I forgive you !! 🤣. I and a few posters here who have clearly worked in the field of disability support may seem a bit over the top, but for myself I’m aware that a lot of people come on to these threads for information so it really boils my piss when I see people posting absolute nonsense because some will believe it as fact and not claim the benefits they’re entitled to.

BrumToTheRescue · 26/07/2024 20:50

pam290358 · 26/07/2024 20:48

I forgive you !! 🤣. I and a few posters here who have clearly worked in the field of disability support may seem a bit over the top, but for myself I’m aware that a lot of people come on to these threads for information so it really boils my piss when I see people posting absolute nonsense because some will believe it as fact and not claim the benefits they’re entitled to.

I work (part time TTO because of my own disabled DC) for an organisation who support parents of disabled DC. It isn’t all DLA/PIP applications but that is part of it.

Rosscameasdoody · 26/07/2024 20:52

BrumToTheRescue · 26/07/2024 20:50

I work (part time TTO because of my own disabled DC) for an organisation who support parents of disabled DC. It isn’t all DLA/PIP applications but that is part of it.

So you know first hand that a lot of this thread is based on misconception of disability, its cost and how the DWP assesses for it. It’s a flawed system - especially for PIP which holds working age claimants to a different standard and assessment criteria.

BrumToTheRescue · 26/07/2024 20:53

I haven’t posted anything to the contrary.

pam290358 · 26/07/2024 20:55

Rosscameasdoody · 26/07/2024 20:52

So you know first hand that a lot of this thread is based on misconception of disability, its cost and how the DWP assesses for it. It’s a flawed system - especially for PIP which holds working age claimants to a different standard and assessment criteria.

I was about to say much the same thing. It’s really depressing to see how much ignorance there is around disability, the true cost of living with it, and the prejudices that still prevail. It’s a universal benefit and the only qualification for claiming it should be disability.

Rosscameasdoody · 26/07/2024 20:55

BrumToTheRescue · 26/07/2024 20:53

I haven’t posted anything to the contrary.

No, absolutely agreeing with you.

BrumToTheRescue · 26/07/2024 21:00

Rosscameasdoody · 26/07/2024 20:55

No, absolutely agreeing with you.

Ah right. On threads like these I often link to Scope’s disability price tag research here to show just how expensive having someone with a disability in the family is.

Rosscameasdoody · 26/07/2024 21:12

BrumToTheRescue · 26/07/2024 21:00

Ah right. On threads like these I often link to Scope’s disability price tag research here to show just how expensive having someone with a disability in the family is.

Have just had a look. That’s a real eye opener - so even the higher rates of both components of PIP don’t cover the actual cost.

BrumToTheRescue · 26/07/2024 21:17

@Rosscameasdoody enhanced of both PIP components or HRC/HRM DLA nowhere near cover the average costs. Those figures are after taking into account disability benefits.

llizzie · 26/07/2024 23:48

BrumToTheRescue · 26/07/2024 20:07

The OP wants to apply for the benefit which is now called PIP.

No, she doesn’t. PIP is not for children. It is DLA for under 16s.

If a child under 16 already has the non means tested benefit, it is rolled over

It doesn’t roll over. When a child turns 16 they or their appointee has to apply for PIP. If they apply on time, DLA will continue until a decision is made, but it absolutely does not ‘roll over’.

whatever they call it when you get it, you travel through life with,

No. Most working age adults who used to be on DLA have been transferred over to PIP.

It is no different to the cases where parents refuse to send their child to special education schools, because of publicity. That is child abuse too.

Legally, there is a parental right to a mainstream education unless the LA can prove a mainstream placement would be incompatible with the efficient education of others, and* *there are no reasonable steps the LA could take to prevent this. This is set out in law and is a much higher threshold than many LAs, schools and the general public think. The complexity of the child’s SEN or perception mainstream education is unsuitable are not lawful reasons to refuse a mainstream education in England.

The school leaving age is 16. Students leave then regardless of how slow they are, even in cases of mental incapacity.

Any 16 year old who lacked mental capacity should have an EHCP which can fund education until 25, or 26 in some cases. Parents don’t need to pay for another year of education.

This thread is showing up the complexities of the benefit system far more clearly than a debate in Parliament. I am sorry if my use of words is incorrect. At one point I did correct it in another immediate post, though not immediate enough to edit it. I remember thinking at the time, that someone is sure to correct me. I was right.

I bow to your superior knowledge. Perhaps I do not use the correct term: 'roll over'. I suppose I should have said that if they are entitled to DLA when they are under 16, then they should be able to get the PIP after age 16.

If you are saying that some children are deemed not to need non-means tested benefit once they pass 16 and that benefit is withdrawn, it is a shocking state of affairs.

Under what circumstances would a child over 16 be refused benefit after 16? I know it is called PIP instead of DLA, but I would think that to refuse a child PIP there would have to be a good reason, surely?

x2boys · 27/07/2024 00:05

llizzie · 26/07/2024 23:48

This thread is showing up the complexities of the benefit system far more clearly than a debate in Parliament. I am sorry if my use of words is incorrect. At one point I did correct it in another immediate post, though not immediate enough to edit it. I remember thinking at the time, that someone is sure to correct me. I was right.

I bow to your superior knowledge. Perhaps I do not use the correct term: 'roll over'. I suppose I should have said that if they are entitled to DLA when they are under 16, then they should be able to get the PIP after age 16.

If you are saying that some children are deemed not to need non-means tested benefit once they pass 16 and that benefit is withdrawn, it is a shocking state of affairs.

Under what circumstances would a child over 16 be refused benefit after 16? I know it is called PIP instead of DLA, but I would think that to refuse a child PIP there would have to be a good reason, surely?

It depends on the disability for example most children with type 1 diabetes would qualify for DLA because theirs a lot of extra care ,but when reaching 16 most children would be fairly independent in dealing with it themselves and PIp is,all about canba persons do things independently, I have looked into as my 17 year old was diagnosed last year but I dint think he would meet the criteria
On the other hand I know a few kids who have complex needs but never got the highest rates alof DLA ,move to PIp and get enhanced on both.

llizzie · 27/07/2024 00:09

Rosscameasdoody · 26/07/2024 21:12

Have just had a look. That’s a real eye opener - so even the higher rates of both components of PIP don’t cover the actual cost.

You are absolutely right, they don't. When I punctured the small front wheel of my wheelchair, I was charged EXACTLY what the mobility component of DLA is.

The new batteries for my power chair were £450 7 years ago. A power chair cost more than a car.

Last month, because my bed was high I didn't realise I had done myself an injury to a part I don't feel (gave myself an episiotomy, I had to find a low profile nursing bed. A new one is over £2,000 without the VAT, which I don't pay, so it was either asking for one to be supplied, or buying a used one, and since the forms to apply for anything need a college degree, I searched for a used one and found just the one at an affordable price. Then I asked a disability company if they could collect it from one county to another. They said they would - at a price. That turned out to be £600 ex VAT. I don't pay VAT on items for disabled and their delivery and maintenance cost.

IT IS A CLASSIC EXAMPLE OF HOW some companies who sell disability aids plump up the price because they know we don't pay vat. IT IS WHAT DISABLED PEOPLE HAVE TO PUT UP WITH and pay for on the DLA - now renamed PIP unless you got it before they changed the name.

They sent an invoice. I said I want to know what that invoice actually covered, and they said it covered the cost of bringing it to me and the services of two trained engineers to put the bed together. The distance between the two points was 1hour and 48 minutes - 98 miles. In the event, it was brought by a retired age man and a boy, and they spent the first hour ringing round to find someone to show them how, even though the instructions were there. I had employed one of the men who had cleared the room of furniture before I found a new bed, and thank goodness I did, because he asked me if he could take the invoice out to the man and boy because they were not expecting to put it together!!!

I managed to find an almost new mattress made by the same bed people and that cost £64 to bring from London by a very nice company I found on Shiply.

The intension in posting this is more as a warning to those with disabled children and adults, than bore you or seem to be vociferous, because I would never again pay a disability company all that money to transport.

I could tell you so much about the cost of being disabled.

llizzie · 27/07/2024 00:18

x2boys · 27/07/2024 00:05

It depends on the disability for example most children with type 1 diabetes would qualify for DLA because theirs a lot of extra care ,but when reaching 16 most children would be fairly independent in dealing with it themselves and PIp is,all about canba persons do things independently, I have looked into as my 17 year old was diagnosed last year but I dint think he would meet the criteria
On the other hand I know a few kids who have complex needs but never got the highest rates alof DLA ,move to PIp and get enhanced on both.

If they think he does not qualify, at least you would have tried. You have not ignored your child's RIGHT to benefit that he needs.

If you claim it and he is worthy of it, then you have done the right thing, not only because of the money, but because it is his RIGHT to the benefit.

What is also important is the RECOGNITION that the child is disabled and justly entitled to it. There are some very nasty people who resent anyone who receives benefit. Not all claimants are entitled to receive it, BUT they are all ENTITLED to apply for it, and if they are turned down, apply again and again, and NEVER let the taunts of the critics get you down. (if I used bad language, I would put the common term for it.)

llizzie · 27/07/2024 00:20

x2boys · 26/07/2024 20:18

Students can leave school at 16 and indeed many schools don't have sixth forms and If they do not all pupils take Alevels

And can go onto to college to do other courses
However in many special schools go up to 19 year,,of age ,and even after 19 there are special colleges for some pupils with EHCP,s

It took a very long time from a lot of dedicated people to enable disabled children with impaired mental ability to be able to stay on at school after 16. It was not always so.

x2boys · 27/07/2024 00:35

llizzie · 27/07/2024 00:20

It took a very long time from a lot of dedicated people to enable disabled children with impaired mental ability to be able to stay on at school after 16. It was not always so.

I know my youngest son has severe autism and learning disabilities he's 14 and has always been educated in a special school his school caters for children with severe and profound learning disabilities they focus on working on their pupils independence and getting them to reach their potential whatever that might be
When I was 16 I had work experience in a day centre for children and parents and ironically most of the children had similar needs to my son ,many were not in school and the day centre as helpful as it was seemed to be the most parents could access for their children this was in the late 80,s not sure ,when this changed and all children had a right to an education. 0

llizzie · 27/07/2024 00:52

Rosscameasdoody · 26/07/2024 20:32

Nope. 1948 national assistance act has been superseded dozens of times to make way for welfare reform introducing different benefits. You still receive DLA because you were over the cut off age to be migrated to PIP in 2013 but that doesn’t mean you can stay on it for ever - if there is a change in your condition or circumstances you will be migrated on to Attendance Allowance because that is the only disability benefit available to those over pensionable age. And the NHS is free at the point of need to everyone, regardless of what benefit they claim. DLA, PIP and AA claimants DO NOT, I repeat, DO NOT have to pay for treatment on the NHS. If they are in hospital for four weeks or more the benefit is stopped until they are discharged and then resumed. If they go into a residential home and are self funding the benefits continue - it’s only when the state starts to contribute towards residential care that those benefits are stopped. You have no idea what you’re talking about so I’d stop now if I were you.

I wish I didn't have to argue. The Acts may have been repealed at times, but not to the extent you say. All the information is available on google.

Under what circumstances would a disabled person over 60 have their DLA taken away and reduced to AA?

Copied and pasted from the web:

If you are aged 18 or over, payments you get of Disability Living Allowance (DLA), Personal Independence Payment (PIP), Adult Disability Payment Scotland (ADP) and Attendance Allowance (AA) will stop after you have been in hospital for 28 days. If you are under 18 on the day you enter hospital, your DLA, Adult Disability Payment Scotland or PIP payments will not stop.

If your DLA, PIP, ADP or AA payments stop, they will be paid again as soon as you come out of hospital. You will need to tell the Department for Work and Pensions (DWP) or Social Security Scotland that you have left hospital. If you come out of hospital but have to go back in within 28 days, your benefit will stop again as soon as you are staying in hospital again. You will need to tell the DWP or Social Security Scotland you have gone back into hospital.

If you were living in a care home before going into hospital and payment of DLA care component, PIP daily living component or AA had stopped, you will not be paid when you go into hospital. Also, after 28 days in hospital, payment of the mobility component of DLA or PIP will stop.

If you have a car through the Motability scheme, you should tell Motability if you are likely to be in hospital for more than 28 days

Your State Pension doesn't change, no matter how long you're in hospital. But some payments are suspended if you're in hospital for more than 28 days: Attendance Allowance. Disability Living Allowance.24 Jun 2024

Pension Credit is paid for an indefinite period, as long as the other conditions of entitlement are still met. Some additions and allowances may be affected, such as Severe Disability Addition, Carer's Addition and Pension Credit housing costs, depending how long you're in hospital for.

NOW TELL ME THAT DISABLED PEOPLE DO NOT PAY FOR NHS TREATMENT.

TELL ME THAT the hospital staff who constantly complain to the media that horrid nasty elderly people are hogging NHS beds and preventing other people from getting NHS treatment by being there, are JUSTIFIED.

When have you ever heard anyone on BBC TV talk about the elderly and disabled who have to give up benefits to pay for the bed? They are blamed for being in hospital without just cause. No one tells the public it is costing them money that is given back to the Treasury while they are selfishly ''hogging the beds''.

Patients hogging beds because there is no one at home to give them domiciliary care. There would be plenty of carers if they were paid properly.

If someone working full time is not paid enough to keep a roof over the family's heads and food in their bellies, then no matter how much the house is better than a wooden shack, nor how much better the food is, THEY ARE STILL SLAVES of the people who pay them.

If carers are paid enough money to live on, there would never be a shortage of care workers.

What is Disability Living Allowance?

Disability Living Allowance is money for people who have extra care needs or mobility needs (difficulty getting around) as a result of a disability.

https://www.turn2us.org.uk/Benefit-guides/Disability-Living-Allowance/What-is-Disability-Living-Allowance

llizzie · 27/07/2024 01:03

DotAndCarryOne2 · 26/07/2024 20:41

Family and Pension Credit benefits are means tested and designed to raise income to those on a knife edge, which it rarely does.

Why are you posting nonsense ? My mother claimed pension credit at the rate of £23 a week until she was eligible for the higher rate attendance allowance after a stroke. This one change raised her pension credit to over £100 a week. Not exactly rare.

What part of what I posted do you consider nonsense? I have to assume you are right, but I would like to know how your mother's pension credit was raised and her AA was raised. I can understand the raising of the AA, but surely if your mother's income entitled her to receive pension credit of £23 a week, then after her stroke it was increased to £100 a week, is puzzling.

I have to admit that I know nothing about family/pension credit benefits. You surprise me. Only if her income was lowered would she have received such an increase in pension credit.

If she was entitled to Pension Credit of £23 before her stroke, what happened to increase that by three times to £100 a week? If there was no change, then she should ask for a backdate,

AvrielFinch · 27/07/2024 01:10

The stroke may be coincidental to the raising of pension credit. I remember a few years ago when it was revealed that some women pensioners were being paid less pension than they should have been.