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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

If I was ever autistic…. I outgrew it

676 replies

Finlandia86 · 16/07/2024 22:10

So to start off, let me say that I am far from ignorant about Autism, I have studied it at length and I know it is a condition present from birth / very early childhood and is not something you can outgrow.

Having learned a lot about Autism, including its presentation in girls, I look back on my childhood and see that I had a whole load of traits, including:

  • Difficulty distinguishing fantasy from reality, especially as a young child
  • Long running obsessions as a tween and teen (characters in books and TV shows mainly, to the point where it would interfere with my life and I would secretly pretend I was them…see above)
  • Fixations on certain people in real life (usually teachers).
  • Social difficulties - being thought of as aloof and stand-offish when actually I was shy and didn’t know how to ‘be’.
  • Avoided showering (couldn’t be bothered and didn’t see the point).
  • Sensory seeking (chewing stuff all the time, humming all the time, tendency to jiggle/rock in my seat)
  • Difficulty with eye contact (shyness and low self esteem)
  • Difficulty organising myself and terrible procrastination, until hyperfocus kicked in (after days of tears)
  • Black and white thinking about right and wrong / good and bad, and giving myself an extremely hard time because of this.
  • Lots of examples of supremely cringy behaviour, because I didn’t understand how I would look to other people.

If I was a teen today, pretty sure I’d get a diagnosis.

But… at nearly 40 years of age … I have grown out of all of it.

Okay, not quite all. I am still a terrible pen chewer and procrastinator (although my hyperfocus superpower seems to have left me). But the rigid fixations and the social awkwardness… gone. Gradually, it has to be said. It took until I was about 26 to truly grow into myself and find my social confidence, and it was around then that I stopped fixating on both real and fictional people, which I think had a lot to do with finally developing some self-esteem. You’ll be pleased to know that I now shower daily.

I’m not sure where I’m going with this, as I imagine a lot of people will think I am trying to invalidate their diagnoses or those of their children… I’m not. But I guess I am wondering whether we can be a bit quick to diagnose ‘low support needs’ / Aspergers type autism, when actually it’s just a case of ‘quirky child’ / ‘immature teen’.

Or, I guess a different takeaway could be one of hope: that as a probably autistic person I have learned to navigate and overcome many of life’s difficulties by middle adulthood.

I suppose my question is whether anyone else can identify with my experience, and if anyone has any interesting thoughts about it.

OP posts:
Thread gallery
6
Jessica3075 · 16/07/2024 22:48

Spectrum Women-Walking to THE BEAT of Autism

Happyearlyretirement · 16/07/2024 22:48

I totally agree, my young adult daughter has suspected ADHD but doesn’t want a Diana’s she feels she manages really well in the life style she is happy with. Only when it became clear she was likely ADHD I started thinking about my own life and I really struggled emotionally when I was young. I went on to be a very sociably at school, all my teachers loved my outgoing personality but I just couldn’t get the grades expected.
left school with rubbish grades dossed in very low skilled jobs then finally got a lucky break.

Now retired early because of a very well paid career and sound investments, looking back I truly think that some neurodivergent conditions are classed far earlier than needs and some of us just take longer to get that mature brain.

Willyoujustbequiet · 16/07/2024 22:48

I get it OP. Although I can't speak of experience with autism one of my DC has essentially grown out of his ADHD.

Before people come at me even the most conservative of research studies acknowledge that its possible with ADHD and a significant number of kids do.

Redhil · 16/07/2024 22:49

No33 · 16/07/2024 22:25

You've grown coping mechanisms and masking.

You haven't grown out of anything.

Funny how you say you know it can't be grown out of... Then say you have 😆

I dont think you understand the term masking. If someone is telling you they feel they have outgrown traits that use to consume them, then that gives an indication of readiness to do those things that once would bother them. If someone is masking they do not have a genuine readiness to act, they go thru the motions. Hence the term mask. Listen to what someone is telling you they know themselves better then you do. I'm not endorsing the post, I don't know for sure if op had autism or not to be able to make such claims but you can't accuse everyone who is happy of masking. It just simply doesn't mean what you and many others say about it.

confusedthirtysomething2 · 16/07/2024 22:50

This reply has been withdrawn

This has been withdrawn by MNHQ at the request of the OP.

Willyoujustbequiet · 16/07/2024 22:50

Happyearlyretirement · 16/07/2024 22:48

I totally agree, my young adult daughter has suspected ADHD but doesn’t want a Diana’s she feels she manages really well in the life style she is happy with. Only when it became clear she was likely ADHD I started thinking about my own life and I really struggled emotionally when I was young. I went on to be a very sociably at school, all my teachers loved my outgoing personality but I just couldn’t get the grades expected.
left school with rubbish grades dossed in very low skilled jobs then finally got a lucky break.

Now retired early because of a very well paid career and sound investments, looking back I truly think that some neurodivergent conditions are classed far earlier than needs and some of us just take longer to get that mature brain.

That's actually what out consultant said regarding ADHD.

oakleaffy · 16/07/2024 22:50

BurnerName1 · 16/07/2024 22:13

I tend to agree with you OP but put your flameproof suit on.

Fire Ball GIF by GIPHY Studios 2023

What you describe sounds like so many children - definitely me at school.

I'd have called those behaviours absolutely normal in children.

But any mention of ''outgrowing Autism'' - oh my word...definitely put yer flak jacket on.

Rainbowsponge · 16/07/2024 22:50

planAplanB · 16/07/2024 22:46

Are you implying that autistic people don't grow up to be happy and healthy? How rude and ignorant.

The evidence suggests they’re much less likely to than NT people

Desertislandparadise · 16/07/2024 22:51

planAplanB · 16/07/2024 22:46

Are you implying that autistic people don't grow up to be happy and healthy? How rude and ignorant.

In fact I'm saying that artistic people do grow up to be happy and healthy.

Finlandia86 · 16/07/2024 22:52

This reply has been deleted

This has been withdrawn by MNHQ at the request of the OP.

This is so interesting- thanks for replying, we do sound a lot alike, and yes - my mum was very anxious too. She was very caught up in her own emotions and needing to do certain things perfectly according to her own criteria - which mystified me at times.

OP posts:
somepeopleareunbelievable · 16/07/2024 22:52

Blackcats7 · 16/07/2024 22:42

Obviously there are varying severities of autism but contrary to the myth everybody is not somewhere on the spectrum. You either have it or you don’t.
Nobody “grows out of it”.
For me my autism is more noticeable in times of stress so it can appear to have “got better” but it is just that I am managing it better. Add in more stress and I don’t have enough capacity left to manage it as well.
Like many people my age I wasn’t diagnosed until middle age. I wish I had been diagnosed as a child (if the times were different and supported difference which they very much did not in the 60/70s) because perhaps then I wouldn’t have blamed myself for being weird and not fitting in. This did huge damage to my self esteem.

Btw I may vomit if I read terms like “neuro spicy” or “neuro sparkly” or that it is a “super power” ever again.

Edited

We have a lot of autism in my family, and I've never really understood the 'you have it or you don't' argument. It's not like covid. I have kids. One is diagnosed and the other is not. They both have traits (as do both their parents and much of their extended family) - it's just one meets the threshold for diagnosis and the other does not - but someone who is just under the threshold and someone who is just over the threshold aren't going to be that different really...it's based on a series of tests and an agreed level of what stops being quirky and becomes diagnosis.

Robstersgirl · 16/07/2024 22:52

You just grew up. As a parent of an autistic 9yo who hates his diagnosis, I can truthfully say that people with autism would love nothing more than to grow out of it. Unfortunately that doesn’t happen, so I do doubt whether you actually were autistic at all.

Rainbowsponge · 16/07/2024 22:53

This reply has been deleted

This has been withdrawn by MNHQ at the request of the OP.

Everyone masks to some extent. Are you the same person at work as you are around your friends/family? It’s a normal part of human behaviour, adapting to the situation around you. I don’t know a single person who doesn’t find socialising quite draining at time because of this - even my very extroverted friends need a break from it every now and then.

coastalhawk · 16/07/2024 22:53

Finlandia86 · 16/07/2024 22:10

So to start off, let me say that I am far from ignorant about Autism, I have studied it at length and I know it is a condition present from birth / very early childhood and is not something you can outgrow.

Having learned a lot about Autism, including its presentation in girls, I look back on my childhood and see that I had a whole load of traits, including:

  • Difficulty distinguishing fantasy from reality, especially as a young child
  • Long running obsessions as a tween and teen (characters in books and TV shows mainly, to the point where it would interfere with my life and I would secretly pretend I was them…see above)
  • Fixations on certain people in real life (usually teachers).
  • Social difficulties - being thought of as aloof and stand-offish when actually I was shy and didn’t know how to ‘be’.
  • Avoided showering (couldn’t be bothered and didn’t see the point).
  • Sensory seeking (chewing stuff all the time, humming all the time, tendency to jiggle/rock in my seat)
  • Difficulty with eye contact (shyness and low self esteem)
  • Difficulty organising myself and terrible procrastination, until hyperfocus kicked in (after days of tears)
  • Black and white thinking about right and wrong / good and bad, and giving myself an extremely hard time because of this.
  • Lots of examples of supremely cringy behaviour, because I didn’t understand how I would look to other people.

If I was a teen today, pretty sure I’d get a diagnosis.

But… at nearly 40 years of age … I have grown out of all of it.

Okay, not quite all. I am still a terrible pen chewer and procrastinator (although my hyperfocus superpower seems to have left me). But the rigid fixations and the social awkwardness… gone. Gradually, it has to be said. It took until I was about 26 to truly grow into myself and find my social confidence, and it was around then that I stopped fixating on both real and fictional people, which I think had a lot to do with finally developing some self-esteem. You’ll be pleased to know that I now shower daily.

I’m not sure where I’m going with this, as I imagine a lot of people will think I am trying to invalidate their diagnoses or those of their children… I’m not. But I guess I am wondering whether we can be a bit quick to diagnose ‘low support needs’ / Aspergers type autism, when actually it’s just a case of ‘quirky child’ / ‘immature teen’.

Or, I guess a different takeaway could be one of hope: that as a probably autistic person I have learned to navigate and overcome many of life’s difficulties by middle adulthood.

I suppose my question is whether anyone else can identify with my experience, and if anyone has any interesting thoughts about it.

What you describe that you're grown out of is fairly normal human behaviour. Not autism.

BurnerName1 · 16/07/2024 22:53

Osory · 16/07/2024 22:47

I think on the 'mild' end things can shift around whether is misdiagnosis to start with or whatever way you look at it. My DS was diagnosed with AS at age 9 and then ADD at age 16
The psychiatrist said occasionally someone will present as AS at one age and for it to shift to ADD or something else at another age. I have a student the same, diagnosed with AS age 8... Now at 12 presenting more Adhd rather than AS.

I think with my son it was that sensory issues and regulation issues meant he couldn't function socially in a regular way at a younger age... But as he grew out of the sensory issues his social issues and sense of humour emerged.

On the other hand the most severe level 3 autism is totally different and obviously definitely doesn't get 'grown out of '.

I think it can be very difficult for the most severly disabled having to share the same label as children who can go on to live relatively regular independent lives.. I'd imagine in years to come this huge umbrella definition will be broken down into different diagnosis

It really is time that the umbrella was broken up into clearer categories. I feel so sorry for parents of severely autistic children whose children are lumped in with the 'neurospicy' crew. It is really unjust.

And don't anyone dare say I don't know any autistic people. I know plenty. My own family is extremely ND.

TheYearOfSmallThings · 16/07/2024 22:53

Blink282 · 16/07/2024 22:18

I absolutely think children mature at different rates and so things like social skills may develop a lot later for some than others.

I also think the term autism is being overused atm to cover an awfully large spectrum of things it wasn’t originally intended to cover (for better or worse).

But it’s very hard to have those conversations on here without invoking massive anger.

I am really glad you’re in a good place :)

I agree with all that of this.

ManchesterLu · 16/07/2024 22:54

OneRingToRuleThemAll · 16/07/2024 22:17

Could it be that you mask so hard you have suppressed everything that is autistic and don't recognise it in yourself?

I was diagnosed autistic at 34 and couldn't see it in myself but could see teenage me in teenage DD who was diagnosed.

Since letting down my guard and unmasking it is clear that I forced autism out of me but never did really because it unleashed with vengeance after a breakdown and when I allowed myself to be my natural self.

I know this won't make sense but I can't explain it.

Yeah I was going to say this. You've probably just learned how you "should" behave, and it feels normal to you now because you've been doing it for such a long time.

coxesorangepippin · 16/07/2024 22:54

How on earth can you say you can't grow out of autism? We don't know enough about it

Tgjjl · 16/07/2024 22:55

I don’t think you grow out of it. You just learn how to manage situations and you have the freedom as an adult not to engage with problematic stuff.

Ponoka7 · 16/07/2024 22:55

YorkshireTeaBiscuits · 16/07/2024 22:43

You haven't grown out of being autistic, you've merely masked and learnt the social code through trial and error. This is something autistic girls/women are very good at. Your post resonated with me and I copied my way through extreme social anxiety as a teen/young adult.

My youngest DD would have vomited as a child had she tried the foods she now eats. She used to get a physical reaction to smells. What she can now enjoy, ignore goes beyond masking. My middle DD notices texture less. Both are approaching 30.
I was reading about how getting the ovaries removed actually changes our brains. The research happening now has only come about because of the transitioning of children. There's some research around hormones. I just wonder whether our brains are constantly changing, especially women's. The use of some drugs takes away some autistic traits, or rather can make someone more sociable etc. Who is to say that a changing/aging brain isn't doing the same?

Ger1atricMillennial · 16/07/2024 22:56

I have been interested in this for a long time. I am the same age as you @Finlandia86 and because I wasn't getting A's at school my mum insisted I was dyslexic and got me tested etc. Big surprise I am not, though I had issues with spatial awareness and short-term memory issiues. I am just not an A grade student, and I had severe anxiety.

My Mum then got "diagnosed", but the report doesn't say she is dyslexic it says she has some difficulties with learning. The fact is that she just doesn't have the high level of intelligence she thinks she does. Looking back now, it was all her projections about her own insecurities that formed her opinion that there was something wrong with me that I couldn't get high marks at school.

The amount of people who tell me that am ND, because some of the things I do reflects what their kids or they do is very frustrating. I know a woman who is a high-functioning autistic and we are very different. She really struggles with society. She gets fired and let go from every job, even though she is a lovely person she is very difficult to have a conversation because she can't read social cues and she is very isolated when there are multiple people talking but is an extrovert.

The phrase that is a read flag to me at the moment is "I am waiting to get diagnosed". That isn't how it works, you are waiting to be assessed, Diagnosis only comes after an assessment.

PickAChew · 16/07/2024 22:56

My boys, now young men, are on the moderate to severe part of the spectrum with numerous comorbidities and their precise presentations have changed constantly as they have grown up.

coxesorangepippin · 16/07/2024 22:56

Yeah I was going to say this. You've probably just learned how you "should" behave, and it feels normal to you now because you've been doing it for such a long time

^

Ok, so in this case what value does the label/diagnosis of autistic add?

It's like saying I could be anorexic, but I manage to keep my weight healthy.

Surely this applies to tons of facet of our lives? I could be a gambler, but I manage not to?? Etc

Bunnyhair · 16/07/2024 22:57

I can sort of relate to this. And certainly most of my friends growing up would qualify for a diagnosis now - but I grew up in another country, and our school environment was very relaxed and friendly and non-authoritarian and not overcrowded / under-resourced. There was no uniform and we were never, ever shouted at by teachers. There wasn’t a problem with bullying. This was also before social media / internet.

I think current educational practices + internet + social media are a total disaster for quirky / nerdy / highly sensitive / highly strung / absent-minded / obsessive / ND with low support needs / whatever kids. It is much harder to get on and find your way and get done what needs doing these days.