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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

How likely are PIP vouchers now labour are in?

237 replies

CatOnALightSwitch · 10/07/2024 10:22

Just as the title says really.

It doesn't affect me as I don't claim any benefits and work full time however my son and mother are on PIP and I'm not sure how vouchers would work for them and I'm a little bit worried.

I know there is previous threads on this but I can't see any being mentioned now labour is in.

Is it worth worrying about or is it a wait and see what happens situation?

Thanks all.

OP posts:
LadyKenya · 10/07/2024 18:45

Rainbowsponge · 10/07/2024 17:02

Well Labour are in now so you won’t be able to blame the Tories for much longer. They provided a useful (and useless) scapegoat for years so we don’t have to face up to the fact we’re broke.

Err, the Tories are to blame for the shambles that is PIP actually.Hmm

K0OLA1D · 10/07/2024 18:56

Bushmillsbabe · 10/07/2024 17:57

The PIP system is already online. I completed my application form online, and did my interview via Teams online. People have a choice to have a paper form or complete online.

I do agree though, there are high inconsistencies, I work with several young people with disabilities, and the amounts they get seem to in no way reflect their needs.

Very much depends on your postcode. It's not online in my area

WiddlinDiddlin · 10/07/2024 19:06

I actually don't think that not claiming DLA/PIP where there is a reasonable chance someone should be in receipt of it, is all that helpful.

Claiming these benefits is a major way our government actually understands the need for them. If people don't claim, the picture formed is that of less need than actually exists.

XenoBitch · 10/07/2024 19:16

WiddlinDiddlin · 10/07/2024 19:06

I actually don't think that not claiming DLA/PIP where there is a reasonable chance someone should be in receipt of it, is all that helpful.

Claiming these benefits is a major way our government actually understands the need for them. If people don't claim, the picture formed is that of less need than actually exists.

I don't claim, as I lack the strength to go through with the process.... and a lot of people do attempt to claim, and get turned down, and never bother trying again.

Bushmillsbabe · 10/07/2024 19:24

XenoBitch · 10/07/2024 19:16

I don't claim, as I lack the strength to go through with the process.... and a lot of people do attempt to claim, and get turned down, and never bother trying again.

It's not an easy process. I requested the form 3 times online before I actually went ahead and completed it. Partly that's due to a mental struggle in acknowledging that I have a disability from previously being very fit and active, and partly due the horror stories of interviewers who try to catch you out. And mine definitely did, she asked me the same questions in different ways to try to catch me out, I was in tears by the end. But they did grant it, and it's been really helpful to have the award, not just for the money but it helps me gets queue jumps, sears at standing events etc, so my life and that of my children is my easier

namechangefandango · 10/07/2024 21:15

AutumnCrow · 10/07/2024 18:09

Unfortunately not, @Bushmillsbabe. It's mad really.

You can only apply for PIP online in some areas. You’ll need to check your postcode when you start your application.

From Gov.uk ^^

No online pip in my area. Handwritten forms. Handwriting is nigh on impossible for me

EilonwyWithRedGoldHair · 10/07/2024 22:31

elliejjtiny · 10/07/2024 18:32

And only if you can engage with the support offered. Ds2 attempted suicide 3 years ago. Camhs assessed him, he couldn't talk to them and got upset when they tried. So he was discharged with a leaflet.

The thing that annoys me is the people who say they are entitled to PIP/DLA/activities for disabled children etc but they don't claim it because they don't need it. And they say I should do the same because by claiming dla for my dc I am the reason why the government hasn't got any money. The thing is they haven't applied for dla for their dc so they might not get it anyway. And their dc go to mainstream activities that my dc can't go to.

We get DLA for DS. £150/mth goes on swimming and a McDonald's afterwards as it's that or he would never bath/shower or change his clothes. He will not wash. He wears the same clothes day and night. It covers the cost of petrol for taking him to and from school and to appointments.

He puts holes in his clothes as soon as we buy them, whether from falling over or chewing on them.

Can't take him out anywhere unless I can afford a Costa because that's a safe place for him if he gets dysregulated - luckily they are everywhere.

It all adds up, and DH can't work a proper job due to needing to be free to drive DS around. The DLA has made a huge difference to us.

Jaxton · 11/07/2024 00:07

namechangefandango · 10/07/2024 12:19

As a disabled person I have just completed a government issue survey ref pip reform and it mentions vouchers several times.
It also talks about other schemes such as a catalogue for aids and services so it is definitely still being discussed.

I too completed this questionnaire .
However it is a questionnaire that asks for our views on how the system can be changed , it only implies and says what do you think are pros and cons of voucher system . It’s just data collection . The whole thing was proposed by tories . It’s still under consultation.
nothing has been approved , set in stone or revealed . It’s all speculation and fear mongering at the moment

Emmanuelll · 11/07/2024 08:16

LadyKenya · 10/07/2024 18:45

Err, the Tories are to blame for the shambles that is PIP actually.Hmm

Exactly. There was no need to change it from DLA because at the time, in 2010 the DWP themselves were saying that fraud rate was really low for DLA.

They changed it for no other reason than to demonise and take resources away from disabled people because that’s who they target.

TigerRag · 11/07/2024 08:19

I believe the reason for changing DLA was money. They wanted to do away with lifetime awards because apparently it meant too many weren't reporting changes and it meant they were on a higher award than they should be.

Emmanuelll · 11/07/2024 08:45

But it was rare to get a lifetime award anyway.

Miley1967 · 11/07/2024 08:48

Emmanuelll · 11/07/2024 08:45

But it was rare to get a lifetime award anyway.

I've just had a client awarded for ten years. She applied just before turning state retirement age ( about two weeks before). She has a condition which with surgery could hugely improve yet has been awarded for ten years. It baffles me why they would do this.

LadyKenya · 11/07/2024 08:51

Miley1967 · 11/07/2024 08:48

I've just had a client awarded for ten years. She applied just before turning state retirement age ( about two weeks before). She has a condition which with surgery could hugely improve yet has been awarded for ten years. It baffles me why they would do this.

Maybe there is a reason that surgery could not be performed on your client for whatever reason, hence the long award?

LadyKenya · 11/07/2024 08:57

Emmanuelll · 11/07/2024 08:45

But it was rare to get a lifetime award anyway.

This. I would have thought that one would have to be significantly disabled to have been awarded this level.

Miley1967 · 11/07/2024 08:59

LadyKenya · 11/07/2024 08:51

Maybe there is a reason that surgery could not be performed on your client for whatever reason, hence the long award?

There is no reason. On a waiting list, possibly 2-3 years wait ( knee replacement )

LadyKenya · 11/07/2024 09:16

Well I think that they give the reasons for whatever length they award, in the letter they send to the claimant@Miley1967 . I am under no illusion that the system needs to be reformed though.

x2boys · 11/07/2024 09:19

TigerRag · 11/07/2024 08:19

I believe the reason for changing DLA was money. They wanted to do away with lifetime awards because apparently it meant too many weren't reporting changes and it meant they were on a higher award than they should be.

It works the other way too my son was awarded MRC at three for 13 years which meant we didn't have to reapply until PIP! LRM was added on when he was five
However it became increasingly apparent his disabilities were very complex
And children with less needs than him were getting higher awards but because he had such a long award I was reluctant to do
COC
To cut a long story short I did eventually do a COC when he was nine and after going to tribunal he was eventually awarded HRC and HRM under SMI rules.

Carfy · 11/07/2024 19:41

Not worrying im beside my self iff this happens whats the point i dont have much very rearly leave the house when i do uts in a taxi or ambulance to hospital or doctors

XenoBitch · 11/07/2024 19:47

Miley1967 · 10/07/2024 18:02

I completed this too but it is a consultation started by the Tories. I don't think labour will introduce vouchers but I do hope they look at the whole PIP system as it's a mess.
Labour have said they will continue with looking at scrapping the work capability assessment.

Sorry to go off on a tangent, but what do you mean that Labour are looking at scrapping the WCA?

whinginglittlefucker · 11/07/2024 19:49

@TigerRag if 1 in 4 people are disabled to the extent of needing state financial support over and above what is available to non disabled people we are sunk.

Ability is a continuum - on the one side people who are at the peak of physical and mental fitness, on the other people who need help with all bodily functions eg breathing, suctioning saliva, tube feeding, turning and all aspects of daily living. The vast majority of us fall somewhere between. A line has to be drawn as to who warrants state support and who doesn't. People who warrant support are then "entitled" to it. The majority of us have to work, support ourselves and pay tax. This is harder for some people than others and finding ways for as many people as possible to work is a perfectly legitimate policy aim, for any party.
Young people are vulnerable to difficulty making their way independently and experiencing unprecedented mental distress. COVID had a massive impact, plus the fact that average earned income is no where near enough to fund a stable home, and a modest life eg adequate food, heat, etc. and marketing and advertising on social media is pernicious and makes people who are forming their identity feel like failures. The solution isn't to give people PIP that traps them in dependency but to find ways to help young people to work.
People who actually need someone to physically care for them, to feed them, change them, dress them, help them to get about etc (which is what lots of people believe disability is, rather than the "hidden disabilites" we now talk of) are poorest of all, because under care charging policies they contribute huge amounts of their PIP towards their care costs.
I'm not convinced there's enough revenue from these evil tax dodging corrupt big businesses to pay PIP for 1 in 4 people, for life.

Rainbowsponge · 11/07/2024 19:51

whinginglittlefucker · 11/07/2024 19:49

@TigerRag if 1 in 4 people are disabled to the extent of needing state financial support over and above what is available to non disabled people we are sunk.

Ability is a continuum - on the one side people who are at the peak of physical and mental fitness, on the other people who need help with all bodily functions eg breathing, suctioning saliva, tube feeding, turning and all aspects of daily living. The vast majority of us fall somewhere between. A line has to be drawn as to who warrants state support and who doesn't. People who warrant support are then "entitled" to it. The majority of us have to work, support ourselves and pay tax. This is harder for some people than others and finding ways for as many people as possible to work is a perfectly legitimate policy aim, for any party.
Young people are vulnerable to difficulty making their way independently and experiencing unprecedented mental distress. COVID had a massive impact, plus the fact that average earned income is no where near enough to fund a stable home, and a modest life eg adequate food, heat, etc. and marketing and advertising on social media is pernicious and makes people who are forming their identity feel like failures. The solution isn't to give people PIP that traps them in dependency but to find ways to help young people to work.
People who actually need someone to physically care for them, to feed them, change them, dress them, help them to get about etc (which is what lots of people believe disability is, rather than the "hidden disabilites" we now talk of) are poorest of all, because under care charging policies they contribute huge amounts of their PIP towards their care costs.
I'm not convinced there's enough revenue from these evil tax dodging corrupt big businesses to pay PIP for 1 in 4 people, for life.

This is one brilliant and concise post.

The faux naive ‘I think anyone who needs it should get it..’ is so disingenuous as to be cowardly

TigerRag · 11/07/2024 20:21

whinginglittlefucker · 11/07/2024 19:49

@TigerRag if 1 in 4 people are disabled to the extent of needing state financial support over and above what is available to non disabled people we are sunk.

Ability is a continuum - on the one side people who are at the peak of physical and mental fitness, on the other people who need help with all bodily functions eg breathing, suctioning saliva, tube feeding, turning and all aspects of daily living. The vast majority of us fall somewhere between. A line has to be drawn as to who warrants state support and who doesn't. People who warrant support are then "entitled" to it. The majority of us have to work, support ourselves and pay tax. This is harder for some people than others and finding ways for as many people as possible to work is a perfectly legitimate policy aim, for any party.
Young people are vulnerable to difficulty making their way independently and experiencing unprecedented mental distress. COVID had a massive impact, plus the fact that average earned income is no where near enough to fund a stable home, and a modest life eg adequate food, heat, etc. and marketing and advertising on social media is pernicious and makes people who are forming their identity feel like failures. The solution isn't to give people PIP that traps them in dependency but to find ways to help young people to work.
People who actually need someone to physically care for them, to feed them, change them, dress them, help them to get about etc (which is what lots of people believe disability is, rather than the "hidden disabilites" we now talk of) are poorest of all, because under care charging policies they contribute huge amounts of their PIP towards their care costs.
I'm not convinced there's enough revenue from these evil tax dodging corrupt big businesses to pay PIP for 1 in 4 people, for life.

Not every disabled person gets pip. That 1 in 4 will also include children and pensioners.

Emmanuelll · 11/07/2024 20:28

whinginglittlefucker · 11/07/2024 19:49

@TigerRag if 1 in 4 people are disabled to the extent of needing state financial support over and above what is available to non disabled people we are sunk.

Ability is a continuum - on the one side people who are at the peak of physical and mental fitness, on the other people who need help with all bodily functions eg breathing, suctioning saliva, tube feeding, turning and all aspects of daily living. The vast majority of us fall somewhere between. A line has to be drawn as to who warrants state support and who doesn't. People who warrant support are then "entitled" to it. The majority of us have to work, support ourselves and pay tax. This is harder for some people than others and finding ways for as many people as possible to work is a perfectly legitimate policy aim, for any party.
Young people are vulnerable to difficulty making their way independently and experiencing unprecedented mental distress. COVID had a massive impact, plus the fact that average earned income is no where near enough to fund a stable home, and a modest life eg adequate food, heat, etc. and marketing and advertising on social media is pernicious and makes people who are forming their identity feel like failures. The solution isn't to give people PIP that traps them in dependency but to find ways to help young people to work.
People who actually need someone to physically care for them, to feed them, change them, dress them, help them to get about etc (which is what lots of people believe disability is, rather than the "hidden disabilites" we now talk of) are poorest of all, because under care charging policies they contribute huge amounts of their PIP towards their care costs.
I'm not convinced there's enough revenue from these evil tax dodging corrupt big businesses to pay PIP for 1 in 4 people, for life.

Some of what you say makes sense but people with disabilities simply don't fit into neat little boxes. And invisible disabilities are something you'll have no understanding of unless you have one yourself or you look after someone who has. Therefore you can't 'draw lines' as such on such a complex issue.

Emmanuelll · 11/07/2024 20:31

In addition, It's quite ironic that you refer to PIP as something people get 'trapped into' or dependent on. The Tories sold it as a benefit that people get to help them be more independent 'personal independence payment'.

FYI, plenty of people who get PIP also work. It helps them work.

The fact that people don’t know this shows that a lot of people have no understanding of what it’s actually like to live with a disability.

Rescue2024 · 11/07/2024 21:05

Emmanuelll · 11/07/2024 20:31

In addition, It's quite ironic that you refer to PIP as something people get 'trapped into' or dependent on. The Tories sold it as a benefit that people get to help them be more independent 'personal independence payment'.

FYI, plenty of people who get PIP also work. It helps them work.

The fact that people don’t know this shows that a lot of people have no understanding of what it’s actually like to live with a disability.

Edited

PIP helps me work. I can’t work a full week and PIP payments help me financially to work less than 40hrs per week.

if I didn’t have PIP to support me I wouldn’t be able to work as I wouldn’t be able to pay my bills and I can’t work full time due to my disabilities.

I'm also a bingo card as I work from home on a flexi contract to fit around my capabilities.

work is my lifeline and I would lose this without the support of PIP

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