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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

My daughters dad and his epilepsy

80 replies

leavingabusetoday · 12/06/2024 15:40

I understand epilepsy is a very hard condition which fully takes over someone’s life. However and I’m ready to be called all sorts of words but I need to understand if I need to look at myself or if my feeling are valid.

my daughter is 2 soon and I have never had a night off he will come here to spend the night but won’t have her anywhere else. He said his mum says no but when I asked his mum she said I kept cancelling (I had no idea of any arranged and As she doesn’t know the truth doesn’t want to be involved which is fair not her job to have her child. The thing is it’s not just over nights he won’t even take her out so I can have a bath (I bath with her as she never leaves my side) and I don’t get 20 minutes to get a cup of tea.

now normally his reason is he’s having sezures which is where the epilepsy comes in however he also never sends me money again saying he would and on the money days when he is coming to drop it off he has a sezure (he works cash in hand so going to child maintenance would do no help).

I do believe he has sezures but do his sezures over right my need of a break and money. He still goes to the pub and lives a life he isn’t bed ridden otherwise I would know I was being a dick. I also have CLL (a chronic cancer) however it’s so early I have no symptoms except lumps but I do get exhausted and I’m struggling with my dignosed (I’ve missed scans to lack of childcare and he is her dad. My other support is my sister who’s a teacher who can’t take time off my mum who has lung cancer stage 4 and my dad who’s getting tested for dementia however I’m sure it’s just the stress that’s making him forgetful.

sorry to massively over share he called me abusive for not caring about his epilepsy and that he’s struggling and has huge health issues and I don honestly really care we had a child together but why does his over take mine.

OP posts:
Whatevershallidowithmylife · 13/06/2024 17:25

He really is taking you for a fool. Cash in hand roofers- he’s probably bringing in at least £600 a week. No point contacting his ‘employers’ - they don’t care - he’s not on their books. Find where he’s working, take a few pictures of him on the roof and tell him he contributes financially or you give pics to dwp, I can pretty much guarantee he is getting benefits also. You and your kid deserve so much more.

Ksqordssvimy · 14/06/2024 12:22

Octavia64 · 12/06/2024 20:53

So regardless of his health situation you should go through cms because clearly he isn't financially supporting his child.

If he does have seizures (which may or may not be epilepsy) then he probably shouldn't be left with sole care of a child as if he seizes it will be dangerous.

Many people with disabilities do stuff they are not supposed to do. If he is going to the pub/to festivals etc it's just his self he's putting at risk. This is obviously different to having sole care of a child.

Can you try and get support elsewhere? It seems unlikely you are going to get it from him.

You're allowed to go to the pub and festivals with disabilities @Octavia64. There's no blanket ban on this.

Ksqordssvimy · 14/06/2024 12:36

If you have time please read this. Epilepsy is a horrific condition and much misunderstood. Then try to imagine seizing every day forever and nothing working. Being pushed out of jobs, relationships, not being able to have children etc.
I hope you resolve the situation with your partner.

https://www.mumsnet.com/talk/AMA/4924439-i-have-epilepsy-and-its-shit

I have epilepsy - and it’s shit. | Mumsnet

I had my first seizure when I was 16 and now 24 years later I’m still having them.  When I look back at my youth I remember how I couldn’t follo...

https://www.mumsnet.com/talk/AMA/4924439-i-have-epilepsy-and-its-shit

Mumandcarer80 · 06/08/2024 07:51

leavingabusetoday · 12/06/2024 23:02

He would get lifts of mates or taxis as he can't drive he also walks miles

Because of his epilepsy he can get a free bus pass. Just have to take a doctor's letter and PIP letter bank statements etc into local library and they do it for you. You might also be able to get one

But he's probably claiming UC as well while working. I would be reporting him.

Mumandcarer80 · 06/08/2024 07:54

Ksqordssvimy · 14/06/2024 12:36

If you have time please read this. Epilepsy is a horrific condition and much misunderstood. Then try to imagine seizing every day forever and nothing working. Being pushed out of jobs, relationships, not being able to have children etc.
I hope you resolve the situation with your partner.

https://www.mumsnet.com/talk/AMA/4924439-i-have-epilepsy-and-its-shit

But he's confident enough to go on a roof 5 days a week. The sudden drops my DS has there's no way he could do that..I have to keep hold of him constantly. I have to take him up and down the stairs. Even then he has injuries.

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