This just isn’t true. Random assessments that don’t fit NICE guidelines are broadly not accepted. In fact, the issue is more that we - as parents - can’t go private easily when the NHS waiting lists are 6 years long. Even the GPs aren’t clear about this. Ours had to phone the ND teams (one for ASD and one for ADHD) and not only got different answers from each but also can’t actually recommend any providers that do stick to NICE guidelines, so it’s all on the parents and if they get it wrong they risk removal from the excruciatingly long waiting list.
We parent differently due to the needs of our children. We still have strong boundaries and clear rules. The behaviour being caused by type of parenting, attachment issues or trauma has to be ruled out at diagnosis.
A lot of us are stuck doing our best every day, spending hours de-escalating, carefully framing every demand, sticking to rigid routines, prepping a sensory bag for whenever we leave the house, going into school when needed, filling out long paperwork, listing and recording everything we’ve tried and it’s failure or limited success, visiting the GP so these issues are recorded by someone other than just us, making referrals to multiple different services (assessment, sensory needs, sleep clinic, food clinics etc are all different referrals) and trying to make our children feel loved and appreciated.
Our children are stuck without diagnoses that give them access to medication and a way to explain their needs to adults who don’t get it. They’re put through the stress of having to try and explain these needs and often getting little to no help.
I’ll never forget how grateful I was when my ds started to near meltdown in a museum and a member of staff (who clearly had training/experience) came over and gave him a sunflower to wear, allowing us to queue to the side away from others and go into the exhibit early for him to calm down. This tiny act made the world of difference and if more people could be like that member of staff, I think we’d find our children with ND etc would have the space to develop their own techniques much more effectively. Equally, for ADHD medication is first line treatment now and cannot be received without diagnosis (or at least lots of assessment and ruling out other issues) which is obviously the way it should be, but also means when the pathway to assessment/diagnosis is years long and tough, that (sometimes vital) treatment is delayed and the child is the one who suffers.
We need early intervention and support - and less of the myths around falsifying these diagnoses.