Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be worried about neurodivergence

67 replies

Tobeornottobe1984 · 11/02/2024 13:54

Apologies for long post and posting here for traffic. Put a similar post in SN but not many answers.

To preface this post, I should state I am and always have been a big worrier, I can obsess and compulsively research things and 100% convince myself of awful things like illnesses, something being wrong with the children etc. This has happened in the past more than once so I am well aware that this could just be another example of this.

DS is 5.5 and in reception. He settled in amazingly well, no issues moving from a small pre school to a much bigger primary although he did have his best friend, and lots of other children he knew, move with him. He is on the whole a very happy little boy. He does however have a few habits/characteristics that concern me.

1)He can sometimes be a little withdrawn socially. He does have a hearing loss and wears hearing aids so I understand this could potentially be the reason. He has one very close friend (if this friend is present, he seems to ignore/push away other children). However if that friend is not there he is happy to play with others, although he’s usually better one on one - again, could be a hearing thing. Teacher has commented on their close friendship (it is reciprocal) but has also said he is starting to make new connections with other kids at school and isn’t concerned.

  1. Has a habit of sometimes talking/whispering to himself, it doesn’t happen all the time and usually will only repeat something if it’s new to him or he’s really interested/engaged in the conversation. Sometimes he does it lying in bed at night, quite often re-enacting something that’s happened in the day or on tv. Despite this, he’s always been an amazing sleeper, will stay in his bed and sleep although very occasionally if he’s particularly stimulated, he can fight sleep for up to an hour when put to bed.

  2. Will run and jump about, particularly when he’s excited or stimulated by something (usually something that’s got him worked up on tv) or if he’s anticipating something fun or exciting happening to him. He doesn’t seem compelled to do it and I can easily talk to him/interact while he’s doing it. He just says he wants to do it/feels excited.

  3. Occasionally he can be mildly aggressive. This is rare for him and he has always been described at pre school and school as a very kind and gentle boy, certainly not as boisterous as lots of boys his age. The school thinks this is happening because he’s overwhelmed by noise and acts out in response to it. I’m not sure if it’s just an impulse thing or whether it is his reaction to the noise. Clearly the classroom can get very noisy and this only usually happens if he can’t remove himself from source of noise. Appears to be better now according to his teachers as they have adjusted the volume on his aids.

5)He always want be first/the best/get the biggest thing. He creates competition to be first or to get attention. This usually only happens at home and particularly with his DB. That said, he is usually very good with turn taking and sharing. He is very good with his little DB with letting him share his toys. School haven’t raised any concerns

  1. Non stop talking and asking questions. He is a genuinely curious child but he does not shut up! He tends to want to dominate conversations but will answer questions put to him when pushed to do so. He will be quiet (eventually) when asked.

  2. Can fidget/get distracted easily. Sometimes struggles maintain his focus, particularly if it’s something he’s not interested in or finds difficult. But he can also be resilient and is willing to give things a go, according to school.

But despite all of the above, he is an amazing little boy. He is bright, he is articulate and has excellent communication skills (although he does seem more comfortable with adults than other children). He understands and can follow conversational norms although as I said he can try and dominate at times. He is doing well academically and is certainly progressing with his school work - teacher has said she has no concerns academically. He has never had a problem with making or maintaining eye contact etc, he understands facial expressions and non verbal cues, although he was late to point (about 18 months/2 years old) and a relatively late talker (2-2:5 but his language came quickly once it started). He has no sensory issues - he’s always been an amazing eater and eats a huge variety of foods, he isn’t bothered by textures or other things associated with touch, he isn’t that bothered by loud noises/noisy environments although he will occasionally complain about something being too loud (again probs more to do with his aids). He doesn’t really tantrum or experience meltdowns, certainly not to the extent of some of the other children of the same age we know. Occasionally he gets a bit worked up/emotionally overwhelmed but this only tends to happen if he’s real tired or overexcited about something. He can easily be distracted/de-escalated from it, usually in a matter of a minute or so. He loves parties and other social situations and he embraces new experiences and places. He doesn’t seem anxious when meeting new people etc. Doesn’t have any fixations on routines, or repetitive behaviors, is fine with change big or small, and seems fine with transition.

I’m so sorry for such a long post but I didn’t want to drip feed. I would really appreciate any advice/opinions on whether I should be concerned about potential neurodiversity or whether I should just embrace him and all his little ways as just being those of a typical happy 5.5 year old. I love him to bits for who he is and that will never change. But I also want to know if this is a genuine concern or just another one of my stupid obsessions. It’s starting to impact my enjoyment of him which I find deeply upsetting. Thanks in advance and please be kind x

OP posts:
Moneybum · 11/02/2024 17:03

I have no expertise in this field but didn’t want to leave your post unresponded to. He sounds like a non-neurodivergent little boy to me, and if he is happy and progressing well, hopefully you can take some assurance from the teachers in his life (who are professionals!) and have confirmed this to you.

everyone has their preferences and quirks
. if there is more to it, I am sure it will more clearly manifest in time, but I would - if you can - try to relax and enjoy him.

Patchworksack · 11/02/2024 17:12

I think the issue is whether any of these quirks significantly affect him day to day - and it doesn’t sound like they do. My son who is 13 has just been diagnosed with ADHD and we’ve known there was an issue since he was 8, but it didn’t cause him a problem in school until demands increased at secondary. All of what you’ve received could be totally normal at five, particularly with the hearing issues. If he ‘diverges’ more from age related expectation as he grows then you can get him assessed.
Enjoy him, he sounds lovely!

freespirit333 · 11/02/2024 17:12

He sounds a bit like my 5 year old, who I suspect is on the spectrum somewhere, although not enough to do much about it at the moment - I have another ND child so know from experience that there’s not much you can do until after the horse has already bolted when it comes to NHS assessments, sadly.

AceofPentacles · 11/02/2024 17:20

He sounds neuro typical to me. My son is autistic and we had lots and lots of difficulties and struggles at that age (and before, and after).

StrongandNorthern · 11/02/2024 17:22

He sounds wonderful!! Try to stop worrying and just enjoy.

matrixxx · 11/02/2024 17:26

Doesn't sound neuro-divergent to me. You do sound very anxious though OP - I hope you don't mind me saying that.

sunflowerdaisyrose · 11/02/2024 17:32

A lot of what you said could be said of my autistic daughter - but think they could be said about my other daughter too and at 5.5 I'd just see what happens over next few years and not worry. My daughter's challenges became more significant as she got older but is still very articulate, clever and sociable.

MajesticWhine · 11/02/2024 17:38

Seems more of an anxiety problem than a DS problem. Sorry to say that no one here can tell you he is or isn't ND. Some things are slightly suggestive that he could be, but also there is evidence that he is NT.
So if there is something, it doesn't sound like it's a huge issue. If there are some problems for him then it will become more clear later.
My DD has ASD - we did not realise while she was in primary, and she never had any social issues. But it wouldn't have made any difference knowing earlier, and she is absolutely great and doing fine anyway.
Try not to let your anxiety spoil your enjoyment of your lovely DS.
I guess what I'm trying to say is, if he is neurodivergent it wouldn't be the end of the world.

ArsMamatoria · 11/02/2024 17:52

Everything you mention is well within norms appropriate for his age. This suggests that even if issues related to neurodivergency were to emerge later on (e.g. beginning of secondary school), that they would likely be on the 'milder' parts of the spectrum.

I have an autistic DC and one with ADHD and both were showing much clearer signs at that age than your son. We had some issues late primary to GCSEs, but both DCs are now teens and are doing really, really well.

Tobeornottobe1984 · 11/02/2024 17:55

Thanks everyone for your kind and thoughtful messages. I am definitely anxious and am aware that this whole issue could be a ‘me’ problem rather than a ‘DS’ problem. I have form for fixating and obsessing about things. I have had therapy and medication at various times in my life for my anxiety but the same old feelings creep back in before long. I don’t want to put my son, and everyone else I care about, through this with me which is why I’m trying to determine if at this point I have anything concrete to worry about. Doesn’t sound like I do, although maybe a watch and wait situation?

OP posts:
Tobeornottobe1984 · 11/02/2024 18:00

Oh and I should point out that even if he is neurodivergent, it certainly won’t change how I feel about him. He will always be the light of my life. I guess I’m just scared that if he is neurodivergent, he is more likely to face additional struggles in life and I just don’t want that for him, especially when he already has a hearing impairment to deal with.

OP posts:
Girliefriendlikespuppies · 11/02/2024 18:05

He doesn't sound neurodivergent but ummm could you be?

Fwiw hearing issues can mimic some autistic type traits in younger kids because of the social delay.

PerpetualChaos · 11/02/2024 18:10

Girliefriendlikespuppies · 11/02/2024 18:05

He doesn't sound neurodivergent but ummm could you be?

Fwiw hearing issues can mimic some autistic type traits in younger kids because of the social delay.

I was going to say the same...
The obsessing etc.
I'm autistic myself btw, and have 2 autistic kids and one NT child.
Your son's behaviours sound within the realms of 'normal' for his age to me.

CucumberBagel · 11/02/2024 18:11

He's NT.

Tobeornottobe1984 · 11/02/2024 18:11

@Girliefriendlikespuppies absolutely this has crossed my mind on more than a few occasions. I definitely have OCD like traits, extreme anxiety and I’ve wondered about the possibility of ADHD as I can be up and down, one minute hyper the next flat and I struggle to complete tasks/motivate myself. But again, trying to avoid going down another rabbit hole 🙈

OP posts:
Talkwhilstyouwalk · 11/02/2024 18:12

I think it sounds like he's doing well. Could he be neurodiverse? Maybe....maybe not, too young to tell. But if he's happy, progressing and getting on with his peers it doesn't seem to be having a big impact on his life even if he is....so therefore I wouldn't worry about it at all!

ProfessorPeppy · 11/02/2024 18:16

@Tobeornottobe1984

You do sound like you might be ND. Anxiety is very common with ASD/ADHD, especially in females.

If you are ND, then your son might also be. DS1 was diagnosed with ASD at 7 and ADHD at 8 and your description of your DS is similar. He is excellent academically but is clearly a bit different to his peers. He’s still awesome!

Marynotsocontrary · 11/02/2024 18:22

Nothing jumps out to me as indicating ND at this stage. I have an autistic DC so some experience.
It will become more obvious as he grows anyway.

Fitandfree · 11/02/2024 18:33

Are you on any medication for your anxiety at the moment? I've spent my adult years on and off it maybe 6-12 months on, then 2 years off, then on again. I have now come to the conclusion that I need it long term - been taking citalopram for 4 years. This realisation has transformed my life for the better. Also, OCD symptoms completely resolved (mine were infection related). Your son sounds fab, and not shouting ND to me.

serin · 11/02/2024 18:47

If he is ND then he's clearly managing very well in mainstream schooling 😊.
What exactly worries you about him potentially having a ND? That he will be seen as "different" or "odd"? Maybe you could look into your own unconscious bias a bit?
I have an adult DD with ASD. She is bloody amazing with 2 degrees and a fab career in tech.
She isn't something to be worried about.

Tobeornottobe1984 · 11/02/2024 18:52

I am not medicated at the moment, I am considering going back to the doctors again as I’m clearly not coping well at the moment. The last time I took medication was after my last pregnancy and it made things worse not better, and I felt terrible for months before I decided to stop. In hindsight, I should have gone back to the doctor at that point and tried something else but life is always so busy and I guess I wasn’t making myself a priority when perhaps I should have done.

OP posts:
Tobeornottobe1984 · 11/02/2024 18:57

@serin I’m so sorry if I came across as insensitive. To be honest, I have very little experience with autism and the only children I know with it, both have extreme difficulties, one being non verbal and the other, not far off. Clearly if my son is ND, he isn’t at that point on the spectrum but I definitely do worry about him fitting in, being happy, making friends, enjoying his life, doing all the things that a boy should get to do - girlfriends (or boyfriends), travelling etc. I’m actually less worried about his academic ability as despite my own struggles, I am sociable and love being around people and can’t imagine my son going through life not experiencing that. Sorry I’m rambling but hope that makes some kind of sense?

OP posts:
Kerfuffleplunk · 11/02/2024 19:19

Literally every single one of your points could be said about many 5 year olds! The only thing I could single out is the hearing issues, from knowing personally a family with children with hearing impairments this can be a challenge within the classroom environment, whether that’s the h.aid settings, being able to fully understand the teacher and follow the lessons and friends conversations and when getting older and being embarrassed by the need to wear them. Having kids will always bring up stresses and worries so it’s good you are acknowledging your anxiety issues, it’s important to manage our own mental health challenges to avoid negatively impacting our kids.

BogRollBOGOF · 11/02/2024 19:22

Keep a copy of your concerns. It doesn't sound like there's anything particularly out of the ordinary with being a 5 year old with known physical impairments with communication which will affect how he interracts with his environment and social skills. If there is something else going on, it will become apparent anyway and it will be useful to refer back to how he was at this point. In the meantime, he should be having some support anyway and having his additional needs met.

It took me a number of years of on and off niggles about DS's traits/ behaviour before there was really enough out of age expectations to get him referred and eventually result in diagnosis.

Livelovebehappy · 11/02/2024 19:50

Sounds absolutely fine to me. Like any other 5 year old. He has his little quirks like chattering to himself, but that doesn’t mean anything other than he has his own personality. I get that there’s so many people atm taking about neuro diversity, and assessments, and waiting for assessments on huge waiting lists (due to people putting their child in a box because they compare differently to others, and rushing for a diagnosis), but try not to start over analysing your child’s perfectly okay behaviour. I suspect there’s a lot of children out there who are going to suffer emotionally from this labelling in the future, as in a lot of cases it’s totally unnecessary.