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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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To think the terms "neuro diverse" and "neuro typical" will be short lived.

462 replies

theplatformedge · 16/01/2024 08:30

Diversity means "a range of many people or things that are very different from each other" (Oxford learner's dictionary), so the idea that a minority of people are "neuro diverse" and everyone else is "neuro typical" is not only semantically illogical, but also potentially offensive.

We're all different. Some people have traits that make life more difficult for them than others, whether it be ASD, ADHD or a range of other conditions, with spectrums of severity. Telling people that you're neuro-diverse is so vague as to be meaningless, and telling other people they are nero-typical when you have no idea what they're feeling inside is insensitive. Some people get a formal diagnosis for their symptoms, some people self-diagnose and others don't recognise it in themselves. Nobody knows how many people are living with these traits across the population, but the massive increase in diagnostics suggests they're a lot more common than anyone ever thought in the past, and therefore gradually becoming very "typical".

Discuss! 🙂

OP posts:
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MyopicBunny · 16/01/2024 10:30

BlueGrey1 · 16/01/2024 10:29

@SpeedyDrama

There are absolutely some genuine cases out there there is no denying that

But every second person seems to be claiming to be ND, very bored of hearing about it, the amount of celebrities claiming to ND is embarrassing

Who is this long list of celebrities claiming to be ND? I can think of about three.

Bumpitybumper · 16/01/2024 10:34

HellsToilet · 16/01/2024 10:11

I think what the op and the whole thread shows is there is a need to use simplified language because people don't understand the medical terms or their complexities. Even the simplified terms are causing confusion!

It is not insulting to tell someone their brain is typical and it is not telling them it is exactly the same as everyone else's. My right leg is typical. It has a hip joint, knee and ankle. It is covered in skin and hair and has 2 long bones. It is roughly the same length as my other leg. It does not mean everyone's leg is identical to mine. It is a different length and width to other people's, the hair is darker or lighter in different places, it is still typical though. Other people will not have a 'typical' leg. It may have missing bones or a part of a bone, it may be significantly longer or shorter than their other leg. There will be many non-typical things and people with these non-typical legs may wish to explain that differences without going into detail each time by using a single term, leg-divergent for example.

Until we get a better term, neurodivergent fits our purposes.

Edited

The leg analogy isn't a good one because physical examinations and scans can show the anatomical differences between legs. Although there is some variation in 'normal', a 'different' leg can be objectively identified using clinical data and measures. We simply don't have this kind of diagnosis model for brains and therefore it all becomes subjective and based on behavioural differences.

The leg analogy is also poor because most people with a 'typical' leg will not experience problems with their legs in day to day life. There are literally millions of people considered neurotypical that struggle with their brains and the way it functions everyday. You only need to look at the record levels of stress, anxiety and depression being reported to understand that these aren't trivial little issues. So much of this may be triggered by ND traits that don't meet the threshold for formal diagnosis but massively impact people's mental health and wellbeing. We simply don't know enough to understand this and yet people continue to push the binary NT and ND model and call anyone who dares question it ableist or ignorant. I have to question why people are so desperate to shut down discussion? It isn't invalidating the struggles of those with a diagnosis to suggest that the concept of neurodiversity might be relevant to more people than we initially thought.

SpeedyDrama · 16/01/2024 10:34

BlueGrey1 · 16/01/2024 10:29

@SpeedyDrama

There are absolutely some genuine cases out there there is no denying that

But every second person seems to be claiming to be ND, very bored of hearing about it, the amount of celebrities claiming to ND is embarrassing

Having a disability is embarrassing? How do you know who is ND and who isn’t? If you met my eldest you’d probably think the same of him and me. Very intelligent, articulate little boy who I’m incredibly proud of. I’m hoping with a huge amount of support he’ll be able to lead some sort of typical, independent life (but I’ll always be there if he can’t). He is very definitely autistic and has adhd. Took 7 years to get that diagnosis, and many years ago may not have been recognised until later (or not at all since he’s his dad’s personality twin). All because he can ‘seem’ typical. People like you aren’t there when he’s struggling so badly with day to day life though, you see what you want to see.

CurlewKate · 16/01/2024 10:34

I absolutely disagree. Apart from anything else, it's a free pass for governments to cut funding for anything to support ND people. And there is absolutely not h wrong with acknowledging difference- and accepting that some differences mean more support/help is necessary.

New2024 · 16/01/2024 10:35

So some Mumsnetters find ‘Discuss’ less polite than the premise AIBU. OK, I don’t think I do. Just question framing, discussion topic starter.

Re: ND/NT - I think there’s a degree to which we all seem to be overly concerned about diversity of any kind at the moment. If anyone needs help with something then there should be avenues to achieve it. Do we need the framing NT/ND to help us do that? Do people working in appropriate fields have a better overview than I do? Yeah

theplatformedge · 16/01/2024 10:35

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Are you assuming I'm "neuro-typical"? Try not to do that, and you may read it differently.

OP posts:
SpeedyDrama · 16/01/2024 10:36

MyopicBunny · 16/01/2024 10:30

Who is this long list of celebrities claiming to be ND? I can think of about three.

Yes I was also wondering this. There are a few celebrities I’ve seen who I highly suspect are ND but that’s their business to share or not.

BlueGrey1 · 16/01/2024 10:37

@SpeedyDrama

By definition, I could also claim to be ND as I have terrible anxiety but I refuse to label myself

MyopicBunny · 16/01/2024 10:37

@theplatformedge people who are not NT are quite capable of also being ableist, having internalised ableism from society.

MyopicBunny · 16/01/2024 10:38

BlueGrey1 · 16/01/2024 10:37

@SpeedyDrama

By definition, I could also claim to be ND as I have terrible anxiety but I refuse to label myself

Autism isn't a 'label'. It's a diagnosis HTH

TempestTost · 16/01/2024 10:38

I don't think it will last.

They are almost meaningless words, even just referring to real medical conditions, it covers such a wide variety of conditions that it's not very useful.

It's also now used largely as a trendy kind of word, with people self-diagnosing, so even less meaningful.

I also am increasingly frequently seeing other people be frustrated by those who throw it around a lot and use it for themselves, often for attention it seems or occasionally an excuse. So I suspect it's on a downward trend of being useful.

Plus, once it really enters the general lexicon, someone will have to come up with new gate-keeping language.

GertrudePerkinsPaperyThing · 16/01/2024 10:38

BlueGrey1 · 16/01/2024 10:00

Every second person seems to be claiming that they are ND or their children are these days, especially in MN, everyone who posts seems to have a ND child or are ND themselves, I would love to know how many of them have formal diagnosis or are they self diagnosing

Someone the other day told me their child was ND, when I asked when they were diagnosed they admitted that they weren't

I agree with your second paragraph. I think it’s important terms aren’t used without a diagnosis, or else say “We’re awaiting a diabetic but suspect that they have x”.

I don’t agree with the first paragraph. It’s not “every second person”. This type of post is what smacks to me of NT people wanting to lose their advantage. Unfair advantages. However, if you are a diagnosed ND person posting I apologise as I do have sympathy with the fact that some do say they have it with no basis for that.

SpeedyDrama · 16/01/2024 10:41

BlueGrey1 · 16/01/2024 10:37

@SpeedyDrama

By definition, I could also claim to be ND as I have terrible anxiety but I refuse to label myself

I usually hate the phrase ‘educate yourself’ but I think it’s appropriate here. I’m sorry you suffer from anxiety, but that doesn’t mean you’re ND. Anxiety can affect anyone in life, though it’s often a comorbidity to ASD/ADHD. If you believe that your anxiety has stemmed from another undiagnosed condition, it is not ‘labelling’ oneself. Autism isn’t a label, it’s a disability - I suggest you inform yourself of the difference before making anymore sweeping and uneducated posts stemming from your personal opinions.

Scautish · 16/01/2024 10:44

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TempestTost · 16/01/2024 10:44

MyopicBunny · 16/01/2024 10:18

There was once a time the word “colour” was considered the “nice” word in a race context and now it very much is not (unless you’re in the US or SA where the contexts are different).

Really? That's news to me. That was never the right term - people just said it and got away with it,

'Person of colour' is not the same as the one you're referring to.

Ah, yes it was, it was very much considered the polite term for a period of time, including among many black civil rights activists and general members of the black community. "People of colour" is a much, much more recent thing.

MyopicBunny · 16/01/2024 10:45

I agree with your second paragraph. I think it’s important terms aren’t used without a diagnosis, or else say “We’re awaiting a diabetic but suspect that they have x”.

A lot of children receive disability benefits or even an EHCP before they get a diagnosis because the waiting time for dx is literally years, which I've already stated. These issues are picked up in nursery, nowadays and if you're on the pathway in the first place, there has to be evidence for it to be appropriate.

My adult daughter mentioned to me the other day that the most ableist people in her own experience are those who appear to have conditions that cause them to struggle. I agree with her. My youngest dd is 4 and imo she has autism with a PDA profile. Her dad has been sending me fucking books on how to 'heal' autism. But I strongly suspect that he also has PDA. Unfortunately he'd rather be in denial.

ronoi · 16/01/2024 10:46

Discuss:

Your thread is goady, ableist nonsense.

Bumpitybumper · 16/01/2024 10:46

MyopicBunny · 16/01/2024 10:38

Autism isn't a 'label'. It's a diagnosis HTH

Anxiety is a 'diagnosis' too.

ND is different as it's used as a umbrella term that is used for a variety of conditions and disorders. As there isn't a definitive list of what is and isn't included then @BlueGrey1 is at liberty to identify or not identify as ND. I don't see how you can argue that she isn't?

OutsideLookingOut · 16/01/2024 10:48

YuleDragon · 16/01/2024 09:52

because people who are NOT autistic or otherwise neurodiverse do NOT get a say in what language we use to describe ourselves.

If you saw me walking with my cane and i told you i was mobility impaired, would you tell me that i wasn't allowed to use that to refer to myself?

Edited

My opinion on whether the terms make sense should have no impact on anyone using them. I don’t get the defensiveness. I am allowed to think they don’t capture the whole situation. I think they are flawed, so many people struggle and are under the radar without a diagnosis that would help them but there is yet so much we don’t even understand about the brain. It is relatively recently that autism in girls was even spotted not to mention that those of us from different ethnic backgrounds can also present differently and not be spotted.

BlueGrey1 · 16/01/2024 10:48

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MyopicBunny · 16/01/2024 10:49

My point was that I don't feel it's helpful for any diagnosable condition to be known as a 'label'. The term label is loaded with ableist nonsense.

Grrrrrrrrrrrrrrr · 16/01/2024 10:50

Lots of people with autism opt not to get diagnosed due to lack of knowledge, cost, waiting lists, not wanting a label, loved ones holding a negative opinion of autism, avoiding treatment, coping really well, having great support around them, masking well, disorganisation, overwhelm or whatever. At the same time people are either autistic or not autistic, regardless wether they are diagnosed or not

Bumpitybumper · 16/01/2024 10:50

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Why is this ignorant or ableist? The professionals can't agree on whether anxiety is part of the ND umbrella or not. In the absence of clarity from experts, surely it's for the individual to make their own call on how they want to be describe or legal their condition.

SpeedyDrama · 16/01/2024 10:53

Bumpitybumper · 16/01/2024 10:50

Why is this ignorant or ableist? The professionals can't agree on whether anxiety is part of the ND umbrella or not. In the absence of clarity from experts, surely it's for the individual to make their own call on how they want to be describe or legal their condition.

It’s referring to ND conditions as a ‘label’ that’s ignorant and ableist.

ArseInTheCoOpWindow · 16/01/2024 10:54

For all those people saying ‘everyone says they are ASD these days’ These are American figures. But 1 in 36 So a lot of people. Just under a third of children.

To think the terms "neuro diverse" and "neuro typical" will be short lived.