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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To not be able to work my DS out

113 replies

ChristmasIsComingRealSoon · 05/11/2023 00:34

Can anyone diagnose my DS?

11 years old
Extremely loving.
Affectionate.
Adores cuddles.
Very generous with his love, very easily expresses love and affection.
Smiles often.
Laughs easily.
Brilliant sense of humour.
Makes others laugh.
Emotionally intelligent.
Brilliant conversationalist with me and DH.
Excellent eye contact with me, DH, sibling.
Clever at English, history, geography, science.
Horrendous at maths.
Loves swimming and cycling.
Loathes team/competitive sports.
Appalling conversationalist with peers.
Poor eye contact with peers.
Poor eye contact with my adult friends.
Poor conversationalist with my adult friends.
Incredible interest in weather, weather forecasts, weather patterns, weather in all different areas of the world, historical weather, floods, heatwaves, hurricanes, storms, temperatures. Spends hours searching online about weather.
Wants friends and enjoys company but really struggles socially.
Struggles to maintain friends.
Suffers quite badly from sensory overload.
Repeats words and phrases, to the point of driving the family mad.
Low self esteem.
Cannot listen to the word 'stop'. Won't stop when told to stop repeating words and phrases. Won't stop when told to stop winding sibling up on purpose. Won't stop when told to shut screen down.
Really, really hard to motivate to get ready for school/bed/clubs.
Gets highly, highly irritable when using screens, to the point where screen time changes his mood and he becomes really rude and snappy, despite being usually polite and well mannered, even after only half an hour of use.
Gets sucked in to screen time, cannot log off, cannot stop searching Internet about focused interests, Gets really cross at me limiting his time online.
Highly sensitive.
Seeks endless reassurance that we love him.
Has tics, vocal and motor.
Touches and taps windowsills, sinks, taps, walls, fences, bins, doors, furniture.
Walks forward, back, sidesteps, then repeats the pattern before continuing to walk normally again.
Petrified of shower water going in to face.
Petrified of shampoo going in to eyes.
Won't shower himself, insists on me showering him but then shouts at me in the shower through the sheer stress of being showered. Unbelievably remorseful afterwards about shouting at me, says it's really stressful in the shower, can't help it, and says "I feel bad about myself now" afterwards.
Smiles at himself in mirrors.
Kisses 10 cuddly toys and a clock in a ritual before bed every night.
Gets sudden onset anxiety attacks, to the pointvof chest pain, hard to pinpoint cause.
Gets anxious about all sorts of things.
Sometimes sleeps soundly through the night, other times lays awake for hours in the night.
Gentle.
Kind, so unbelievably kind.
Doesn't know how to start conversation with peers.
Doesn't know how to initiate friendships.
No interest in music.
No interest in pets.
Retains random facts.
Incredible, quite unbelievable long term memory.
Appalling short term memory.
Calm when not shouting about the shower.
Really amazingly good at explaining and articulating his thoughts, feelings and emotions.
Incredibly in touch with how he feels.
Has a soft, kind face.
Unbelievably loveable.
I have such a strong feeling he's different to his peers.

OP posts:
FreeezePeach · 05/11/2023 00:41

It's bad enough when people give armchair diagnoses, but I've never quite seen someone actively encouraging it in this way?

Why would you do this? It's not a sport.

ChristmasIsComingRealSoon · 05/11/2023 00:42

And spits water all over bathroom sink, taps, bath, walls, windowsill and glass window every day after brushing teeth. Been told off for this but still does it, says he 'has' to, otherwise he gets a build up of pressure in his chest.

OP posts:
ChristmasIsComingRealSoon · 05/11/2023 00:43

FreeezePeach · 05/11/2023 00:41

It's bad enough when people give armchair diagnoses, but I've never quite seen someone actively encouraging it in this way?

Why would you do this? It's not a sport.

Because there's something wrong and I can't work out what.

OP posts:
FreeezePeach · 05/11/2023 00:43

ChristmasIsComingRealSoon · 05/11/2023 00:43

Because there's something wrong and I can't work out what.

Then start with your GP?

ForfarFourEastFifeFive · 05/11/2023 00:45

Take your child to see a medical professional. I can’t quite believe you haven’t thought of this yourself, and sooner.

Pinkpinkplonk · 05/11/2023 00:45

Have school raised any concerns?

ChristmasIsComingRealSoon · 05/11/2023 00:45

FreeezePeach · 05/11/2023 00:43

Then start with your GP?

Done that.
GP said no idea and referred DS to CAMHS.
Received letter from CAMHS to tell me 2 year waiting list till he can be seen, as not a threat to life.

OP posts:
ChristmasIsComingRealSoon · 05/11/2023 00:46

Pinkpinkplonk · 05/11/2023 00:45

Have school raised any concerns?

None.

OP posts:
ChristmasIsComingRealSoon · 05/11/2023 00:48

Pinkpinkplonk · 05/11/2023 00:45

Have school raised any concerns?

Teachers tell me he's a delight.
Exemplary behaviour.
Brilliant attitude to learning.
Always well behaved.
Polite.
On target with school work except maths.
Why is he spitting water all over the bathroom after cleaning teeth?!?

OP posts:
FreeezePeach · 05/11/2023 00:48

ChristmasIsComingRealSoon · 05/11/2023 00:45

Done that.
GP said no idea and referred DS to CAMHS.
Received letter from CAMHS to tell me 2 year waiting list till he can be seen, as not a threat to life.

Well Mumsnet will be no more help than your GP to be honest.

ChristmasIsComingRealSoon · 05/11/2023 00:48

ForfarFourEastFifeFive · 05/11/2023 00:45

Take your child to see a medical professional. I can’t quite believe you haven’t thought of this yourself, and sooner.

I have done, obviously.
See above.

OP posts:
DuplicateUserName · 05/11/2023 00:49

Why is he spitting water all over the bathroom after cleaning teeth?!?

No idea but since he's 11, he'll be cleaning it up after himself anyway, yes?

ChristmasIsComingRealSoon · 05/11/2023 00:50

DuplicateUserName · 05/11/2023 00:49

Why is he spitting water all over the bathroom after cleaning teeth?!?

No idea but since he's 11, he'll be cleaning it up after himself anyway, yes?

Not the point.
Yes he cleans up afterwards.
Point is why is he doing it?
Why does he get a pressure in his chest if he can't do it?

OP posts:
ChristmasIsComingRealSoon · 05/11/2023 00:51

FreeezePeach · 05/11/2023 00:48

Well Mumsnet will be no more help than your GP to be honest.

Looking for someone with experience.

OP posts:
DuplicateUserName · 05/11/2023 00:52

ChristmasIsComingRealSoon · 05/11/2023 00:50

Not the point.
Yes he cleans up afterwards.
Point is why is he doing it?
Why does he get a pressure in his chest if he can't do it?

Dunno?

Pinkpinkplonk · 05/11/2023 00:52

You’ll probably not get any real answers from here then @ChristmasIsComingRealSoon
But maybe try changing the flavour of his toothpaste and coming down on him like a tonne of bricks if he spits the new stuff all over the bathroom!

crumblingschools · 05/11/2023 00:52

Have you spoken to SENDCo at school? Is he Primary or Secondary?

ForfarFourEastFifeFive · 05/11/2023 00:53

ChristmasIsComingRealSoon · 05/11/2023 00:48

I have done, obviously.
See above.

It might have been an idea to add this very pertinent information to your OP.

Can you afford a private appointment with an appropriate mental health specialist? It sounds as though you could all do with some answers to start finding ways to make life easier.

I am not a professional but I’m sure you have thought of the wide range of possibilities which your description suggests - OCD, Tourette’s, ADHD, autism, or nothing other than a quirky personality. You need help to work out what, if anything, is ‘wrong’, and how you can help him live his happiest life.

DaftyLass · 05/11/2023 00:55

We can't help, you need to seek further help through your GP/school
As to the spitting, of make him brush in the shower so it all rinses away

ChristmasIsComingRealSoon · 05/11/2023 00:56

ForfarFourEastFifeFive · 05/11/2023 00:53

It might have been an idea to add this very pertinent information to your OP.

Can you afford a private appointment with an appropriate mental health specialist? It sounds as though you could all do with some answers to start finding ways to make life easier.

I am not a professional but I’m sure you have thought of the wide range of possibilities which your description suggests - OCD, Tourette’s, ADHD, autism, or nothing other than a quirky personality. You need help to work out what, if anything, is ‘wrong’, and how you can help him live his happiest life.

No, I can't afford private mental health services.
If I could, I wouldn't be waiting 2 years for CAMHS would I.

OP posts:
ChristmasIsComingRealSoon · 05/11/2023 00:56

DaftyLass · 05/11/2023 00:55

We can't help, you need to seek further help through your GP/school
As to the spitting, of make him brush in the shower so it all rinses away

Again, missing the point.

OP posts:
ChristmasIsComingRealSoon · 05/11/2023 00:59

crumblingschools · 05/11/2023 00:52

Have you spoken to SENDCo at school? Is he Primary or Secondary?

Edited

Yes I have.
They said CAMHS referral.
2 year wait.

OP posts:
5goldenrings · 05/11/2023 00:59

The spitting, along with the tapping/kissing teddies/walking sideways and backwards sound like OCD, the rest sounds like Asperger’s/Autism- which often come hand in hand along with sensory issues. Have a Google of private clinics who offer screenings local to you, all the best

ForfarFourEastFifeFive · 05/11/2023 01:01

ChristmasIsComingRealSoon · 05/11/2023 00:56

No, I can't afford private mental health services.
If I could, I wouldn't be waiting 2 years for CAMHS would I.

Again, just listing your son’s behaviour and saying you thought something was wrong sounded as though you hadn’t tried anything at all. So people are making what must seem to you obvious suggestions, because your earlier posts lacked information.

Some charities run local services for young people with mental health problems, so you might find help there. You could explore the Mind pages for children and young people as a start. Hopefully something might be available.

5goldenrings · 05/11/2023 01:02

Sorry just read your update- take back to GP and ask for a referral to the community paediatrician stating that you think he has xyz and a 2 year wait for camhs isn't good enough

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