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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I’ve withdrawn from organ donation register

1000 replies

Purpledogcollar · 28/08/2023 22:04

I give blood and have always been very pro organ donation.

Sadly I have just withdrawn as protest against reproductive organ donation. I can’t support it and am very conflicted as would like to donate other organs.

What are your views and is it a hasty decision (although not sure I would change my mind).

OP posts:
Thread gallery
34
ASGIRC · 28/08/2023 22:41

Delphinium20 · 28/08/2023 22:18

I used to be an organ donor, but then I read more into how it works and I changed my mind. Until I can have more say over what organs are used and for what purpose and for who, I don't feel like I'm able to fully consent.

You will be very much dead before any of your organs get assigned. So no, you will never be able to "vet" who you donate to. Nor should you be able to.

jannier · 28/08/2023 22:41

Just list the bits you're happy to donate why should people die as part of your protest should the worse happen?

MichonnesBBF · 28/08/2023 22:42

Thanks for this thread OP, I have just registered to be on the list, honestly can't remember if I was on it or not....
I really cannot understand why you would be so quick to deregister over something that is not even close to being an option yet???
You would rather deny a person a life that you could potentially save??? 🤯

foolishone · 28/08/2023 22:42

PrincessOfTigger · 28/08/2023 22:40

Yes yabu, reproductive organs aren’t donated on the NHS donor registry

I've never looked into this but if this is true then I hope the OP feels ridiculous and signs back up asap.

saraclara · 28/08/2023 22:43

In a nutshell, @Purpledogcollar , your reproductive organs cannot be used under the present organ donation register. So you've withdrawn for no logical reason.

Several people have linked to the site where it's made very clear that an entirely different protocol had to be followed which requires a discrete permission protocol, but here it is again.

Non-routine transplants
The current system for organ donation in England does not cover rare or novel transplants such as limb, face or uterus donation. This kind of transplant is not routine and would require specific agreement from your family."

So please re-register and let your family know your wishes.

Given that only one uterus transplant has been carried out so far, and as a live transplant from a relative, I think you're worrying about nothing. I suspect that the very few such transplants in the future (the present estimate is that there might be 20 a year in the UK) are also likely to be live donations.

Nemesias · 28/08/2023 22:44

PhantomUnicorn · 28/08/2023 22:38

i think anyone who does this when uterus aren't covered by the organ donation laws and require express, explicit permission, is being ridiculous.

If you opt out due to prejudice. mis-information, and believing trolls on the internet shrieking about men getting your womb, you're an idiot.

HTH!

Some people might not want their uterus to be used full stop. Not just because of the giving it to men thing

randomchap · 28/08/2023 22:44

My late wife was a donor.

I'm proud that she decided to help others with her body.

It helped with my grief, and when they are old enough I'll be telling our children about how she saved lives

Please seriously consider how many people are on the waiting lists, and how many lives you can help.

Chopnchange · 28/08/2023 22:44

Wow I actually can't believe someone would do this.

My cousin had a multiple organ transplant a few months ago. It had to be from a child's body. Thank goodness for those fabulous parents/carers who allowed their child's organs to go to a 45 year old woman to save her life.

What you have done is pathetic.

Mindovermatter247 · 28/08/2023 22:44

Personally I don’t care as I’ll be dead so what do I need them for… however it does creep me out that someone might get my eyes…

user1471447924 · 28/08/2023 22:45

I’m a transplant recipient who is tempted to do the same. But then again I also disagree strongly with “opt out” so there’s that issue too. Presumed consent is not consent.

Chopnchange · 28/08/2023 22:45

'I used to be an organ donor, but then I read more into how it works and I changed my mind. Until I can have more say over what organs are used and for what purpose and for who, I don't feel like I'm able to fully consent.'

What was it you read that bothered you so much?

TheEverlovingFork · 28/08/2023 22:46

"Unless you think that women's feelings on the subject shouldn't matter too much?"

Oh, I dunno, I'm a woman on the list who needs an organ they don't have enough of, did you not mean women like me?

OP and other PP and their equally idiotic friends have just put other women's lives on the line. Never mind, glad none of them will accept a kidney when they or their children might need one. Or maybe they'll be desperate and there won't be enough to go around - but tough shite, their feelings on the subject won't matter too much.

Thelnebriati · 28/08/2023 22:47

What's so difficult about allowing us to consent how our organs are used?

Crabbity · 28/08/2023 22:47

Tacocatgoatcheesepizza · 28/08/2023 22:26

Reproductive organs are not yet covered by the organ donation programme - they require specific and separate consent.

If my womb or uterus could go to a woman who was unable to have children I would be more than happy with that. I can understand the concern about transplants to men but we are nowhere near that, I can’t imagine a situation anytime soon where the NHS are going to be performing that kind of operation as if it was a kidney transplant. From what I’ve read it seems highly unlikely this will ever be a thing, let alone a big thing. Seriously, what do you think the chances are of you dying and a man getting your womb? And I genuinely don’t understand why anyone would have an issue with it going to a woman.

I can’t understand why anyone who was previously willing to save lives by donation organs would decide to take that away on this basis. And I do certainly hope that if you decide to leave the organ donation register that equally you would refuse to accept an organ if you needed it.

I have no doubt that should transplants involving reproductive organs ever become common place there will be a way to opt out of donating them just like there is now for other body parts.

This.

SausageMonkey2 · 28/08/2023 22:48

Can I leave mine specifically for medical research and “Frankenstein medicine” because that sounds pretty cool.

tbh just make sure I’m definitely dead before you go for it.

icebearforpresident · 28/08/2023 22:48

foolishone · 28/08/2023 22:42

I've never looked into this but if this is true then I hope the OP feels ridiculous and signs back up asap.

It’s such an experimental procedure at this stage and no where near being part of the transplant list anytime soon. There’s been one or two successful transplants and you’re rushing to remove your name from the whole register? Utter madness!

I’ve never understood the logic in refusing to be on the list anyway, what are you planning on doing with your kidneys/heart/liver when you’re dead? I am on the list and I’ve told my husband, because he gets final say even if I’m NOT on the list, that if he refuses consent I’ll come back and haunt him.

TooOldForThisNonsense · 28/08/2023 22:48

FloweryName · 28/08/2023 22:13

YANBU to not offer your organs for donation for any reason you want. I opted out a while ago after I leaned more about the process and decided it wasn’t for me. I’m glad I don’t have to consider this now because I’m too don’t feel comfortable with reproductive organs being transplanted.

This

I am still opted in and carried an organ donor card for years before too, but people can opt in or out for whatever reason they choose, or for no reason

Halo8 · 28/08/2023 22:48

Elphame · 28/08/2023 22:09

I withdrew the day it became opt out rather than opt in.

Same here

PinkiOcelot · 28/08/2023 22:49

Does the age of the reproductive organs make a difference? Genuine question.

CarterBeatsTheDevil · 28/08/2023 22:49

I opted in many years ago knowing that I had no say over where my organs would go. For all I know in ten years time the only thing between Matt Hancock and the Grim Reaper will be one of my kidneys. Do I like the idea of that? Not at all, and it's considerably more likely than my womb being transplanted into a bloke. And yet somehow I live with it, because once I die my body will be a collection of spare parts and I'd like the NHS to be able to use it if it's useful.

PhantomUnicorn · 28/08/2023 22:49

Nemesias · 28/08/2023 22:44

Some people might not want their uterus to be used full stop. Not just because of the giving it to men thing

The point went right over your head didn't it.

You have to give express, explicit permission for them to take your uterus, so you don't NEED to opt out of organ donation to stop them from taking it.

Gothambutnotahamster · 28/08/2023 22:50

NCforthistooo · 28/08/2023 22:09

YANBU, so did I a few days ago, and explained to DH my reasons why. Lots of others on here, and on Twitter, have done the same.

This is me too.

Bawdrip · 28/08/2023 22:50

NeedToChangeName · 28/08/2023 22:21

far far from being successful in men is less reassuring than I would like to hear ("it'll never be available for males")

Yes, and presumably there will be a lot of unsuccessful attempts before the successful ones are figured out. I don't want to be used in furthering this frankenscience even if it isn't successful.

Thelnebriati · 28/08/2023 22:50

You have to give express, explicit permission for them to take your uterus, so you don't NEED to opt out of organ donation to stop them from taking it.

And when that changes, will we all be asked to give consent or will the change happen automatically?

LaffTaff · 28/08/2023 22:50

Its a wholly personal decision. Our bodies are the only thing we'll ever truly own, thus its our business alone what happens to it in both life and death.

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