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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I’ve withdrawn from organ donation register

1000 replies

Purpledogcollar · 28/08/2023 22:04

I give blood and have always been very pro organ donation.

Sadly I have just withdrawn as protest against reproductive organ donation. I can’t support it and am very conflicted as would like to donate other organs.

What are your views and is it a hasty decision (although not sure I would change my mind).

OP posts:
Thread gallery
34
melj1213 · 29/08/2023 09:35

ChristmasFluff · 29/08/2023 09:18

I withdrew the second it became opt out. It's a gift, not a requirement or an assumption, otherwise it is harvesting, not donation. My family is well aware of what I am willing and not willing to donate, and the whole uterus situation means I feel my decision has been fully validated.

But it becoming opt out literally just meant that it changed from a system of "Ask the family about the possibility of organ donation only if the person has explicitly opted in" to a new system of "Ask the family about the possibility of organ donation unless the person has explicitly opted out"

Your family being aware is a moot point if you have formally opted out as they won't ask them at all, which was the point of the change - now they will ask everyone, whether or not you have a formal wish recorded on the register, unless you have explicitly opted out.

Username1107 · 29/08/2023 09:36

The only other option is to withdraw from the register which basically means you didn't say yes or no so we'll ask your family and they will make the decision purely based on their wishes as you didn't formally record them on the register so can't use them to guide the decision.

That's not true. My wishes are formally recorded by deliberately opting out. Family do not get to override that.

Goslowglowworm · 29/08/2023 09:44

XDownwiththissortofthingX · Today 08:26
I took the opportunity to remove myself from the list in the run up to Opt In becoming the default. I object to the presumption, but I've always been personally uncomfortable with the ethics of transplant in any case, so it was something I'd been mulling over for a while. I also have an Advance Directive stating that under no circumstances do I consent to transplant or transfusion myself, but whether doctors will actually pay any heed to that remains to be seen. If I was conscious I'd point it out to them, but there is always the scenario whereby I'm transfused while being unconscious. Closest friends know about my wishes though, so I'd hope they'd be decent enough to draw attention to it as well.

See this view I can respect totally. If you aren't going to accept anyone else's donation then it's fair enough if you don't want your organs used after death. I suspect you are in the minority of people who wouldnt donate though. I bet most would accept someone else's kidney for example if it would save their life. And that's what I can't get my head around.

Me I'm happy to donate any of my organs as long as my family consent at the time. I'd also accept an organ if I needed one.

melj1213 · 29/08/2023 09:45

Username1107 · 29/08/2023 09:36

The only other option is to withdraw from the register which basically means you didn't say yes or no so we'll ask your family and they will make the decision purely based on their wishes as you didn't formally record them on the register so can't use them to guide the decision.

That's not true. My wishes are formally recorded by deliberately opting out. Family do not get to override that.

I apologise if my wording wasn't clear but you have taken that out of the context of my post where I make it clear you have three options but I will set them out again in the hopes of being clearer

A) opt in which allows the doctors to discuss the option of donation with your family - within this option you have the opportunity to expressly decide whether you want to donate everything or only certain things and those wishes will be made known to your family during that discussion so they know what your explicit wishes were.

B) opt out which means the doctors will not even discuss donation with your family - this means you explicitly say no and register this wish formally.

C) withdraw from the register which means you don't make any formal recorded decision on the register to explicitly say yes or no. This means they default back to "opt in" where they ask your family to consider donation, but this time the decision is purely their own as they have no information as to what you were/weren't happy to donate.

The default is opt in, the difference between a) and c) is that the first option means they have the discussion in the full knowledge of your wishes and the the latter means it is made by your family alone.

Sueveneers · 29/08/2023 09:48

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Sueveneers · 29/08/2023 09:49

Username1107 · 29/08/2023 06:00

Once there is an option to specifically opt out of this, then I will go back on the register. Otherwise it won't be happening.

I am the same way too.

Sueveneers · 29/08/2023 09:52

ElEmEnOhPee · 29/08/2023 06:15

Of all the people who are attempting to shame others for choosing to not donate how many of you donate all your spare money each month to a charity that saves lives? If you do not do this then why? Is it not selfish to hoard your money when it could be going to save people?

Well said. The pick and choosy moral outrage fom some on here is so hypocritcal. I am sure we can go through their lives with a fine tooth comb and find something they are small-minded, mean, cruel and selfish about.

melj1213 · 29/08/2023 09:52

Sueveneers · 29/08/2023 09:49

I am the same way too.

You can't opt out of something they legally can't take though.

You didn't ever have to explicitly opt out of donating your brain but just because you didn't explicitly say no doesn't mean they can say "Well Jane said she was happy to donate her heart, lungs, kidneys, liver, corneas, and bone so while we are in there we'll just help ourselves to her brain too, she won't mind"

NatashaDancing · 29/08/2023 09:53

Previously your family would only be asked about the possibility of organ donation if you had explicitly signed up to the register. So even if you had no objection to organ donation, and would be willing to do so, if you hadn't filled in the form they would not even ask your family.

Is that correct? I'm not sure it is.

Wowjustwow99 · 29/08/2023 09:53

Potentialmadcatlady · 29/08/2023 09:02

One of my (adult) children will need a transplant in the future to save his life.
He has discussed with me how he wants to donate anything that can be used after his death. He isn’t aware it isn’t possible for him to donate.
My other (adult) child and I have had in depth discussions about what we would both be happy to donate and what we wouldn’t.
We have in depth discussions together as a family about what measures we would/wouldn’t want in the event of death/accident etc.
I am so sad to hear the amount of people now removing themselves from the list, as it means so many More people will die, while waiting for organs, that quite frankly will do no good being burnt or put into the ground to rot.
I would not be happy with my womb etc being used and I doubt my daughter would either ( I will discuss this with her) so this will not happen as family wishes are taken into account.
If I was to die then my wishes will be enforced by my family. I have no concerns that they won’t follow my wishes.
The question is this… all those removing their names- Are you ready to sit by the bedside of a loved one and watch them die when a donated organ could save them?
That wouldn’t actually happen- not being willing to donate does not stop you being given the chance of a donation but could you look at yourself in the mirror? Because I know I couldn’t.

Well said!

My partner is a transplant patient!

Hope you child get a transplant when needed ❤️

Sueveneers · 29/08/2023 09:53

moomoosaka · 29/08/2023 06:23

There is! I've just done it. There's a drop down and it says these organs - yes or no. I've just opted out of donating my liver for complicated reasons I won't go into that means no one will want it anyway but I don't want it to be considered a possibility.

Uterus/reproductive system isn't listed yet, @moomoosaka , so no, there is not.

Teder · 29/08/2023 09:54

Ididntknowuntiliknew · 29/08/2023 00:39

Nobody is afraid of trans people, much as they wish us to be.
I'm definitely not donating anything, due to the complex issues of reproductive organ donation.
This is my choice, and I couldn't care less about the bots on this thread.

”Bots” with long posting histories?! 😂😂 I don’t post on trans threads usually.

melj1213 · 29/08/2023 09:54

NatashaDancing · 29/08/2023 09:53

Previously your family would only be asked about the possibility of organ donation if you had explicitly signed up to the register. So even if you had no objection to organ donation, and would be willing to do so, if you hadn't filled in the form they would not even ask your family.

Is that correct? I'm not sure it is.

That was the whole point of the change - previously unless you had explicitly opted in then they wouldn't ask, whereas now they will ask unless you have explicitly opted out

Sueveneers · 29/08/2023 09:55

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melj1213 · 29/08/2023 09:56

Sueveneers · 29/08/2023 09:53

Uterus/reproductive system isn't listed yet, @moomoosaka , so no, there is not.

Edited

If it's not listed then they can't take it ... Just the same as the brain, bladder, arms, legs, ears etc - you don't have to explicitly opt in/out of donating them as they legally cannot take them.

gabsdot · 29/08/2023 09:57

YUBU. You can opt out of a womb tranplant if you want to but your other organs could save many lives. I have a good friend who's whloe family have a kidney condition necessitating transplants for them all. 2 siblings have had them and 1 is waiting. I hope people don't start opting out for the reason you state.

Sueveneers · 29/08/2023 09:59

thedancingbear · 29/08/2023 07:03

No it doesn't. But we are a long way from the point where this ever happens. Trans women certainly can't go to their local GP or hospital and get a uterus at this point. So as an act of protest, it's crass, paranoid, and could cost women lives.

We are not that long away. Trans activists themselves have said that.

Sueveneers · 29/08/2023 10:01

thedancingbear · 29/08/2023 07:12

Eh? I’ve acknowledged the OP has bodily autonomy. She can do whatever she wants.

But if she’s done it as an act of anti-trans protest, it’s completely crass and could do way more harm than good. People can say that too.

What you define is 'anti-trans' is actually pro-woman. But that narrative doesn't read as well with misogynists. Women always have to be the bad guys who are 'anti' something.

thedancingbear · 29/08/2023 10:01

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If you encourage people to opt out of all organ donation because there's the off-chance that a womb will become available to a trans person down the line, and people act upon that, then it is certain that people will die needlessly because of that.

Are you happy with that? Because I'm not.

Sueveneers · 29/08/2023 10:03

Seashellies · 29/08/2023 07:13

Most people are just pointing out that if you're happy to donate other organs it's ridiculous to fully opt out when they cannot currently take these organs, and if the time comes in the future where they can you'll be able to opt out. You can also let a family member you trust your wishes and these will be respected when passed on.

But they WILL be able to soon. And given the govt changed to rule from opt in to opt out, without any consultation, what we're saying is we don't trust the govt. One iota.

captainjacksparrow · 29/08/2023 10:05

Personally I am against womb transplants for men/women/trans.

It is not a life saving procedure, no one has the right to have a family no matter how much people may want one.

I also agree with pp that this is a slippery slope to potential abuse and surrogacy through the back door. I don’t care if people agree with me or not. That’s the beauty of being allowed a different opinion.

for it to become an option in 10 years for a man to have a baby means this decade now will be spent experimenting to make this happen….

for transparency I have opted out as has my partner. Neither of us would accept an organ either.

my children are free to make their own choices

Sueveneers · 29/08/2023 10:07

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ElBandito · 29/08/2023 10:12

I have opted in for organ donation. I think I would probably donate my uterus if that ever becomes an option. However, I would not donate my ovaries if that became an option.

Sueveneers · 29/08/2023 10:13

Desecratedcoconut · 29/08/2023 07:56

I do think this will be the inevitable outcome after a decade of watching the nhs erode their trust capital with women as they diminish their sex to parts - womb havers, chest feeders - and make invisible their specificity - pregnant people, etc. Telling women that they should avoid the evidence of their own eyes and accept men with dysphoria on their single sex ward when they are at their most vulnerable, that they should accept intimate care from a man who claims to be a woman having asked for single sex care, and a raft of other changes of a similar ilk has consequences.

The contempt for women is laid bare in a thousand different twists of language and policy. So of course those who feel betrayed expect that there will come another nudge or expansion of language to coerce or trick them into behaving in a way deemed correct and acceptable - even in death.

But of course, it's easier to lay the blame at the feet of women who insure themselves against this manipulation by withdrawing consent in a wholesale fashion. Much easier to do that than recognise that this mistrust was achieved in inches over years of gaslighting.

All of this, especially

I do think this will be the inevitable outcome after a decade of watching the nhs erode their trust capital with women as they diminish their sex to parts - womb havers, chest feeders - and make invisible their specificity - pregnant people, etc
and
But of course, it's easier to lay the blame at the feet of women who insure themselves against this manipulation by withdrawing consent in a wholesale fashion. Much easier to do that than recognise that this mistrust was achieved in inches over years of gaslighting.

It's easier for people who aren't as on the ball, so to speak, to blame us women, who are FORCED to take this choice. Through no fault of our own. Instead of blaming those that caused this atmosphere of fear and uncertainty. Women are to blame for everything, even when we are simply protecting ourselves.

Sueveneers · 29/08/2023 10:15

Notellinganyone · 29/08/2023 08:04

All this ridiculous hysteria has at least prompted me to opt in fully. OP you are being an idiot.

'hysteria' Charming.

"You are being an idiot" for using such misogynistic language.

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