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Share your dilemmas and get honest opinions from other Mumsnetters.

I’ve withdrawn from organ donation register

1000 replies

Purpledogcollar · 28/08/2023 22:04

I give blood and have always been very pro organ donation.

Sadly I have just withdrawn as protest against reproductive organ donation. I can’t support it and am very conflicted as would like to donate other organs.

What are your views and is it a hasty decision (although not sure I would change my mind).

OP posts:
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Jamielikescheese · 29/08/2023 00:37

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This has been deleted by MNHQ for breaking our Talk Guidelines - previously banned poster.

Bawdrip · 29/08/2023 00:38

Alargeoneplease89 · 29/08/2023 00:25

So if you needed a transplant, how do you know its not a paedo? Would you decline a life saving procedure... just incase?

It's a great point and obviously no one knows, especially at the point of receiving a donation, whose body they are using. But I can categorically say that I am not nor ever will be a peado/rapist/murderer and so I can use that organ to continue living my perfectly average, sometimes brilliant life. I'm never going to cure cancer or bring about world peace but I'm not bringing any suffering into the world by living slightly longer than I might have done. I can control my own actions even with a murderers heart. I can't control the actions of a murderer with my heart alone.
I'd love to extend someone else's life and so bring joy to the world, but I get such a visceral reaction to the thought that I might end up prolonging the life of somebody evil, that I just can't sign off on it.

Elphame · 29/08/2023 00:38

BillaBongGirl · 29/08/2023 00:24

So you are deciding for another human being whether it’s the right choice for them to receive an organ by opting out? You are saying, meh I think the quality of life many of them have is a bit shit really so theyre better off dead. Or meh, that extra 12months with their loved ones is so not worth it, so I’m hoarding my organs for the crematorium so I can fit in the XL urn.

Shouldnt it be up to the person that is suffering organ failure to decide what quality of life is acceptable to them or what extra time is worthwhile to them and not you?

Youre almost playing at being a Goddess by withholding life.

Where did I say that? I quoted the NHS's own website and a friend who did indeed regret his subsequent poor quality of life.

If they choose to accept an organ that is their free choice.

My choice not to donate is also my free choice as is my wish not to take the risk of a poor outcome for myself.

melj1213 · 29/08/2023 00:39

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Via your link you click the big green tick option that says "Register a decision to donate". You tillin a few personal details so they can add you to the register and then there is the statement "I wish to donate:" and you click either "All" or "Some" ... If you click "some" then you are given the option to choose which specific organs you wish to donate

Ididntknowuntiliknew · 29/08/2023 00:39

Nobody is afraid of trans people, much as they wish us to be.
I'm definitely not donating anything, due to the complex issues of reproductive organ donation.
This is my choice, and I couldn't care less about the bots on this thread.

Alargeoneplease89 · 29/08/2023 00:45

user9630721458 · 29/08/2023 00:29

@Alargeoneplease89 I suppose it's a drastic reaction. OP should explain why they think it's necessary to opt out of everything. I know very little about why people would withdraw completely over the r/o thing, but I think it's a protest against something seen as unethical and dangerous. I think it's unfair on people who desperately need other transplants, but I really don't know why such a protest is considered necessary.

Considering alot of organs can't be used because of condition that they arrive in, transport taking too long/ surgeon not being ready / patients not being well enough at that moment, it's sad to see that people are withdrawing organs before doing any research because of something they have seen on social media.

I have opted to donate organs (of what use they would be I dont know) I have had a lung transplant assessment and after all the tests and information I have decided it's not something I will pursue when the time comes, people don't realise how difficult it is- you are swapping one chronic illness for another were catching a cold can start rejection and be in hospital for months away from your children. (You cant even travel out of the boundary or you are taken off the list) Even though I'm not taking an organ, I am happy to give because what use are they to me when I'm dead? Does it matter who they go to? No because I'm dead.

Anyone taking their organs away because they are reading rubbish on social media need to give their head a wobble. Yes, you have a choice but I really hope you don't find a loved one or yourselves needing an organ, it's a shitty long wait with lots of false calls and will be even longer with the misinformation spread.

melj1213 · 29/08/2023 00:46

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No, you opt in and then as part of that process you get to specify what you're opting in to.

Everyone is opted in to be eligible for donation automatically but you can decide your personal preferences and have it officially recorded on the register so the information is available if and when such a time comes that it becomes relevant

There are three options on the registry site:

A) the green tick option = Opt in and make your wishes explicitly known (where you have the opportunity to say "I want you to take XYZ")

B) red cross option - Opt out by making you wishes known that you do not want to donate anything at all. It is then on your records that you have explicitly opted out

C) exit option - withdraw your registration so there is zero record of your wishes either for or against donation and so any decision will be left entirely to your NoK

PhantomUnicorn · 29/08/2023 00:47

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quite sure, i just logged into the NHS app to check and redid it all myself to make sure it was all there.

When it takes you through the process, part of it is letting you select what you do and don't want to donate.
It also allows you to select if you want drs to discuss your religion/faith with family before donation too :)

PhantomUnicorn · 29/08/2023 00:49

Ididntknowuntiliknew · 29/08/2023 00:39

Nobody is afraid of trans people, much as they wish us to be.
I'm definitely not donating anything, due to the complex issues of reproductive organ donation.
This is my choice, and I couldn't care less about the bots on this thread.

Bots?

oh please.

Tinfoil hat on aisle 3 please bob.

ToWhitToWhoo · 29/08/2023 00:52

Elphame · 28/08/2023 23:48

I believe in informed consent and bodily autonomy. I also do not believe in the preservation of life at all costs.

The benefits of transplant surgery are widely touted but a significant proportion do not go as hoped With a heart transplant 10-20% of recipients die in the first 12 months and that statistic hasn't changed much in the last 20 years. That is a high mortality rate so your hypothetical person on a bypass may well gain no benefit from the procedure.

I've seen first hand two people who suffered from the effects of kidney transplant. One friend had two failed transplants (and subsequently died) and the other said he wished he had never agreed to it. He had a far worse quality of life than he had on home dialysis and he died after yet more complications and infections having spent most of his post transplant time in hospital.

Very sad; and yes, it's true that transplant surgery is a high-risk treatment. But that doesn't mean that it shouldn't be available for those who choose it. Many treatments for life-threatening conditions are harsh and potentially dangerous. Chemo for patients with cancer often has nasty side-effects; doesn't always cure or even prolong life; and can sometimes be fatal in itself. And some patients do choose to refuse or discontinue it. But that doesn't mean that the option should not be there. The same for transplant surgery.

I don't think anyone is obliged to be a donor: your body, your choice. But I think that fears about the possible use of reproductive organs are a rather sad reason.

Highdaysandholidays1 · 29/08/2023 00:54

Many people are discussing organ donation- your chances of needing an organ are very low, you are much more likely to need a tissue donation in the future, called an allograft. These include bone, skin, tendons, nerves and so on. Those saying they would never have an organ, I can understand that, but you might still need donated tissue in the future, say, if you have a leg injury, a burn or damaged nerves, also bone to replace joints. It's not all heart and lung transplants these days, and it's worth thinking about whether morally you would refuse all of those as well. Just something else to think about.

TrustMyArse · 29/08/2023 00:55

I've opted out of all organ donation after seeing how the process works (or doesn't) in person.

Highdaysandholidays1 · 29/08/2023 00:55

Also most tissue donations do not require anti-rejection drugs, they just literally attach the donor tissue and you go about your life. Quite incredible and life-changing in so many medical situations. you can even be a live donor and donate bone when you have your hips done!

Over40Overdating · 29/08/2023 00:56

@PhantomUnicorn at least we can rest easy that the same people opting out of the non existant womb donations, have already ruled themselves out of any future brain donation. I can say that and not be banned as I am a bot.

BillaBongGirl · 29/08/2023 00:57

Highdaysandholidays1 · 29/08/2023 00:54

Many people are discussing organ donation- your chances of needing an organ are very low, you are much more likely to need a tissue donation in the future, called an allograft. These include bone, skin, tendons, nerves and so on. Those saying they would never have an organ, I can understand that, but you might still need donated tissue in the future, say, if you have a leg injury, a burn or damaged nerves, also bone to replace joints. It's not all heart and lung transplants these days, and it's worth thinking about whether morally you would refuse all of those as well. Just something else to think about.

That’s absolutely true. Like this double hand transplant that now allows a Swindon father to hold his kids hands and walk them to school again.

https://www.bbc.co.uk/news/uk-england-wiltshire-64796781

Jamie Mines from Swindon

Swindon scaffolder's hand transplants 'changed his life'

Jamie Mines lost both his hands and legs when he was electrocuted while working on a building site.

https://www.bbc.co.uk/news/uk-england-wiltshire-64796781

Highdaysandholidays1 · 29/08/2023 01:02

@BillaBongGirl that's an amazing story! Most will be more boring though, replacing bone damaged in a fall, or a knee tendon/ligament, or skin to cover a burn temporarily. I knew nothing about allografts til recently but turns out they are used all over the world, there are millions of recipients, far more than for major organ donation. So interesting (and something else to factor in when deciding what to donate and what to refuse).

Jamielikescheese · 29/08/2023 01:02

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Georgeandzippyzoo · 29/08/2023 01:02

Elphame · 28/08/2023 22:09

I withdrew the day it became opt out rather than opt in.

So did dm and she was a nurse who believed in it!

PhantomUnicorn · 29/08/2023 01:05

Over40Overdating · 29/08/2023 00:56

@PhantomUnicorn at least we can rest easy that the same people opting out of the non existant womb donations, have already ruled themselves out of any future brain donation. I can say that and not be banned as I am a bot.

Every cloud and all that... 😂

TaiDee · 29/08/2023 01:07

I heard that, if you withdraw your consent to donate organs, then the next time you have to have an operation the NHS will forcefully transgenderise you, so I’m staying on the donor list just to be safe. Something to think about.

GreyGrid · 29/08/2023 01:08

TaiDee · 29/08/2023 01:07

I heard that, if you withdraw your consent to donate organs, then the next time you have to have an operation the NHS will forcefully transgenderise you, so I’m staying on the donor list just to be safe. Something to think about.

I heard they prop your eyes open with matchsticks and make you watch every episode of The IT Crowd.

Over40Overdating · 29/08/2023 01:10

@Jamielikescheese would you, aye?
How gutting to be considered less intelligent than people causing real life-threatening and life-ending harm through spite, dishonesty and ignorance, just so they can claim some bragging rights as the great defenders of women. But not women who might need a lung or a bone or a cornea. They can die or go blind.

Glad you got to the nub of what’s really important here.

CrappyBarbara · 29/08/2023 01:10

ToastyCrumpets · 29/08/2023 00:15

It’s OP’s decision though - not really for anyone else to comment on the reasons

Why would she post it online if not looking for comment?

SunWorshipping · 29/08/2023 01:15

I don't understand what the issue is with donating your uterus? I wouldn't donate my eggs whether dead or alive, but that's because the resulting children would be biologically mine. No idea what the uterus issue is? I will happily donate any part of my body, it won't be much use to me if I'm dead so may as well make use of what they can. I might draw the line at my entire face, that might be weird, but everything else.

With the uterus is it a trans thing (just seen one of the other comments) are you thinking a man might have your uterus plumbed in and give birth? That'd pinch for him 🤣.

CrappyBarbara · 29/08/2023 01:15

Bawdrip · 29/08/2023 00:20

Exactly! That's my choice, for my body, after thinking about it for a while. What's crackpot about not wanting to extend a paedophiles life? I do want to extend the life of the lovely mother with great kids etc etc, I really don't want to extend the life of a murderer or rapist or abuser. Because I can't specify this on my register, this is where I have landed that I'm most comfortable with.

It’s not crackpot to be against extending the life of a violent criminal. It’s crackpot to think your approach would have anything to do with furthering that goal. I mean, it’s just truly illogical. It’s your choice of course but when you post something ignorant on MN you know you’re going to hear about it!

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