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Original poster

Sore bottom ruining my life

160 replies

Agonydownbelow · 26/04/2023 18:09

Hesitated about posting this for fear of being accused of being a troll. But I’m so desperate for help I don’t even care about anything anymore. I’m a regular poster etc but obviously any concerns feel free to report etc

I go through spells where my rectum/anus is excruciating. Like I don’t just mean a bit stingy, I mean absolutely excruciating. It’s bad when sitting and walking about but particularly bad when passing stools. It feels like I’m being torn apart and I sometimes wake up from sleeping because of the pain of it. I get bleeding on wiping too (usually red) The painful flare ups last anything from a few days to a few weeks. I’ve been checked for piles and anus fissures during flare ups and it’s been neither. I’ve also had a sigmoidoscopy which was clear. Even though fissures have been ruled out, I still tried things like anusol and other treatments which didn’t help either.

today it was so bad that I was screaming whilst going to the toilet and gripped the wall so hard that 3 of my acrylics and my own nailbeds were ripped off. I didn’t even notice the pain of it because i was in so much rectal pain. I also woke up during the night last night with the area throbbing in pain and I’ve had more red blood on wiping. There’s no obvious irritation externally and piles and fissures have been ruled out by the GP

I’ve been to my GP 14 times for this.Been referred to gastro 3 times. Clear bloods and calprotectin fine. They said everything serious has been ruled out and won’t accept another referral for me, but equally the GP cant help either and said I need to learn to live with it myself (how???) I also can’t afford to go privately for at least 2 years until I save up :(

I’m not constipated (usually the opposite problem) but I tried stool softeners anyway- again no, help. I don’t eat spicy foods or foods that might cause irritation when passing.

please tell me has someone else experienced this and have any advice or things I could try to help this? Im not being melodramatic when I say it’s ruining my life

OP posts:
PlainSkyr · 27/04/2023 00:48

A friend recently had this and after a the initial scares and scans she was diagnosed with colitis - an inflamed colon. It was a very tricky thing to diagnose so probably not straightforward. Worth investigating in your case,

Friarclose · 27/04/2023 02:16

I'd say this is proctalgia

Tootsey11 · 27/04/2023 07:45

I have endo on the bowel. You get endo just before and during a bowel movement. This is not endo. This is the rectum/anal skin tearing and being excruciating pain when passing a bowel motion. It's intense pain. And if you poop every day then your in hellish pain. Am I right Op?

It's Ls, it hurts like hell, but on viewing, probably just looks a little irritated and slightly red, but nothing else obvious. That's why they are telling you they can't see anything wrong. A biopsy will give you an answer.

Tootsey11 · 27/04/2023 07:46

Your-you're

Didiplanthis · 27/04/2023 08:04

Agree endo needs looking into, but have people missed that the GP has referred to specialists 3 x and had raging arguments with them ? This is not a GP doing 'nothing'.... this is a GP fighting really hard to get their patient an acceptable level of care from secondary care (the specialists) who should be doing more or referring to a tertiary center if they can't !!!

MagpieSong · 27/04/2023 10:08

Didiplanthis · 27/04/2023 08:04

Agree endo needs looking into, but have people missed that the GP has referred to specialists 3 x and had raging arguments with them ? This is not a GP doing 'nothing'.... this is a GP fighting really hard to get their patient an acceptable level of care from secondary care (the specialists) who should be doing more or referring to a tertiary center if they can't !!!

The GP said OP has to ‘learn to live with it’. It’s not an ok thing to say, if something medical really disrupts your life, of course you can’t ‘learn to live with it’ in the same way. It’s dismissive. They should be referring to specialists and need to discover the root cause. You can’t give up because it wasn’t discovered initially and shrug it off. The GP needs to keep referring and keep trying to help the OP solve the issue.

hellhavenofury · 27/04/2023 10:15

I could have written this myself a few years ago OP!

I had so many doctors tell me I was too young (mid 20s) for anything serious and it was because I was wearing thongs (I wasnt for obvious reasons)

In the end, I kicked up that much of a fuss they referred me to a specialist an hour away from home and she did a quick examination and found the tear that was so bad I had surgery a couple of weeks later. I also had Coeliac disease hence the going for a number 2 at least 6 times a day!

Please persist with the doctors and referrals, that much pain just isnt normal and not something we should have to put up with!

Just a tip, if you have a shower head, squat over the head with warm water squirting up, it does soothe the throbbing!

Mirabai · 28/04/2023 14:33

Friarclose · 27/04/2023 02:16

I'd say this is proctalgia

That’s cramps/spasms - doesn’t involve bleeding.

bunhead1979 · 28/04/2023 14:48

I've not read all the responses and obviously no one can know the answer, but I struggled with fissures for so long, was so awful (and embarrassing). I was prescribed Rectogesic ointment which helped A LOT (though gave me headaches they were worth it). I really hope you get some answers soon.

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