Sore bottom ruining my life

[Agonydownbelow]

Hesitated about posting this for fear of being accused of being a troll. But I’m so desperate for help I don’t even care about anything anymore. I’m a regular poster etc but obviously any concerns feel free to report etc

I go through spells where my rectum/anus is excruciating. Like I don’t just mean a bit stingy, I mean absolutely excruciating. It’s bad when sitting and walking about but particularly bad when passing stools. It feels like I’m being torn apart and I sometimes wake up from sleeping because of the pain of it. I get bleeding on wiping too (usually red) The painful flare ups last anything from a few days to a few weeks. I’ve been checked for piles and anus fissures during flare ups and it’s been neither. I’ve also had a sigmoidoscopy which was clear. Even though fissures have been ruled out, I still tried things like anusol and other treatments which didn’t help either.

today it was so bad that I was screaming whilst going to the toilet and gripped the wall so hard that 3 of my acrylics and my own nailbeds were ripped off. I didn’t even notice the pain of it because i was in so much rectal pain. I also woke up during the night last night with the area throbbing in pain and I’ve had more red blood on wiping. There’s no obvious irritation externally and piles and fissures have been ruled out by the GP

I’ve been to my GP 14 times for this.Been referred to gastro 3 times. Clear bloods and calprotectin fine. They said everything serious has been ruled out and won’t accept another referral for me, but equally the GP cant help either and said I need to learn to live with it myself (how???) I also can’t afford to go privately for at least 2 years until I save up :(

I’m not constipated (usually the opposite problem) but I tried stool softeners anyway- again no, help. I don’t eat spicy foods or foods that might cause irritation when passing.

please tell me has someone else experienced this and have any advice or things I could try to help this? Im not being melodramatic when I say it’s ruining my life

I have asked you to refrain from commenting to me.

It’s because codeine makes you constipated. I swear I only have to lick a co-codamol and I’m bunged up for days 😭

I was re reading some of the posts here and tbh OP if you’re in so much agony you literally are in a state of severe extreme pain I would be very tempted to go to A&E. I know it’s not an accident situation as such but maybe they would have some alternative ideas to your GP and be able to make you more comfortable pain wise. They might have more relevant experience there than your GP. I really don’t think it’s right you should be expected to just carry on when youre clearly really really suffering here Xxx

Metanium - best stuff for nappy rash

Another suggestion for bile malabsorbtion- the pain sounds exactly like I suffered with after bowel surgery before I was on medication for BAM, it was horrendous and so miserable. Definitely worth reading up on and seeing if it ticks any boxes for you.

I go through periods of having what seems like dry skin, like eczema or dermatitis, in that whole area. This then cracks and tears really easily, and is painful and bleeds. I seem to have got on top of it lately by doing the following:

• I only wear 100% cotton underwear.
• I only use a non-bio, low scent laundry liquid.
• When I'm on my period, I use natracare pads/tampons or organic cotton reusables (imse vimse).
• I use sensitive wipes after a 2 to gently clean, and then use plain, warm water in a squirt bottle (bought off Amazon, called a portable bidet I think) to rinse off any residue from the wipes.
• I moisturise the area before bed, and after every 2, with an organic balm (Neal's Yard Mother's balm).

Good luck, I hope you're able to find a solution

You poor love. I suffer piles and have had an op in the past, so I do understand a little of your pain/discomfort and just wanted to send you a hug.
There is great support here.

Good luck in sorting it soon. xxx

I feel for you OP. I have some random nappy type rash thing going in for just a few days . I was crying earlier as it was red raw, itchy and awful. Metanium has really helped although I dread to think what it is. Ive googled and wish I hadn’t. No chance of a GP appointment either . I hope you get sorted.

Looks like you have had some really good advice on here. I can't add to the advice, but I can sympathise. I had a 3rd degree tear with my eldest baby (now 15!) and have had regular 'stabby butthole' pain since then. It really is incredible the pain that I get from that so really feel for you. It stops me in my tracks and I get the sweats etc. I have also screamed into a towel when I have had a very painful bowel movement! I have to manage it through fibre and painkillers.

Hope you get the answers you need soon

@Agonydownbelow

F*cking hell - I have to admit I've not read all the replies, so maybe I'm repeating someone else, but you've described to a T the symptoms of the extremely common condition, Irritable Bowel Syndrome.

If you haven't been offered that explanation by any of the total eejits you've been seen by, then maybe the Tories wrecking the English NHS isn't such a bad thing after all, as it's clearly being run by those same monkeys with a typewriter who ended up composing one of Shakespeare's plays.

Sorry to be indelicate, but if you also get a pain that feels like someone's stuck a red hot stiletto up your anus; fart a lot and veer between constipation and diarrhoea then look no further and tell your doctors as politely as you can that they're a shower of incompetent wank stains.

If you believe it may be that, ask to be prescribed a combination of both Mebeverine and Buscopan. They're likely to try to bully you into accepting that you don't need both. This as my (opposite of yours - incredibly helpful ) country GP and I worked around for almost a year, is bull crap. You may well need both.

I used to be crucified with the pain, just like you, but after taking 20mg of Buscopan in the morning, at teatime and at night before bed, alongside 135mg Mebeverine at the same times, I've only had 4 attacks of IBS since the beginning of Covid which coincided with me starting the regime.

Since I was under enormous stress each time - eg my husband died of Covid before the vaccines were available and led to the first of those 4 times - I think there can't be any doubt that the two drugs taken together cope with everything but the most extreme provocation to your system.

If your dickhead docs won't prescribe for you, just buy them over the counter.

40 Buscopan from amazon, £8 Buscopan IBS Relief - Targets the Source of IBS Pain and Cramps- starts to work in 15 minutes - 40 Tablets- - Relief from IBS Pain & discomfort, 40 Count (Pack of 1) : Amazon.co.uk: Health & Personal Care

100 Mebeverine tablets 135mg £10.95 Buy Mebeverine Tablets | Pharmacy Online

I so much hope this is your answer.

It sounds so like anal fissure. I am wondering if the GP has examined properly, I mean the fissure could be inside the canal and not visible without the right equipment. Also, is it intermittently bleeding? Has the examination been done whilst actually bleeding? It could be healing then tearing then healing then tearing etc, and the examinations might have not caught it.

Javelin arse doesn't tend to cause bleeding.
I regularly suffer with JA and it's bloody agony.
Could it be internal piles op? not all piles are external. I also suffered a bad bought of piles many years ago as a result of being on a diuretic tablet. it was bloody awful I actually almost passed out whilst passing a stool it was so painful. I also had bleeding with it. I think keeping a diary of when you have flair ups of it is a good idea.

I'm sure you have probably googled some stuff but I wonder if some of these less common things may be the cause? virtual hugs
www.nidirect.gov.uk/conditions/anal-pain-proctalgia#:~:text=an%20infection%20%E2%80%93%20such%20as%20a,by%20arthritis%20or%20bone%20tumours

I haven't read all replies but I'm pretty sure you have Ls in the anal area. I have it and it's exactly as you describe. I have endo as well, the pain from it is not the same.

Should have said get dermovate from your Gp. Will help almost immediately.

You’re entitled to a second opinion.

You only need £250/£350 for a first appointment - You find a GI consultant who does private and NHS work - you pay for a private appointment and then get referred to their NHS practice for tests.

Try to find a consultant who operates from a different NHS hospital so they try can’t ping you back again.

I have the same issue it’s horrible thrush cream is what clears it for me. I now take vita flora and it’s stopped it recurring constantly

Did your GP prescribe antibiotics in the beginning?

Hope your nails aren't too painful now as well

I had this (but don’t think as severe as yours sounds). I didn’t know I had severe endo until it was picked up in s scan for something else. They said I had the worst stage that all my organs were frozen together with scar tissue. They couldn’t believe I didn’t suffer horrendous cramps, I did have painful period cramps but not enough to stop me working but I did have terrible pain as you describe. My bowel is very impacted with endo. As are my other organs so they won’t do surgery as the risk is too high to my organs. Since they put me into menopause with the zoladex injection the backside pain has all stopped. So I’d get checked for endo if I were you. Consultant told me it’s not always lower stomach pain with it.

Sorry to hear you are suffering so much with this OP. Sounds dreadful for you.
I work in Endoscopy (nurse), and I’d just like to say, that if it says on your report that they took a small bowel biopsy, then you had a full colonoscopy, not sigmoidoscopy.
I don’t have any advice except keep pushing. You can’t be left like this. And if you want to PM re any questions you have on the report you received from endoscopy, please feel free to pm me. I always go over the report thoroughly so the patient understands it all, but not everyone does, unfortunately.

No experience myself but I've heard you can get endometriosis in other parts of your body.

It does sound like an anal fissure. Just because they couldn’t see it doesn't mean that’s not what it is. I use Proctosedyl cream (prescription only) a few times a day and before and after using the loo. It takes 3-4 weeks to resolve the problem. Usually it happens again maybe once a year, but the Proctosedyl always fixes it within a couple of weeks.

@a1poshpaws I like your style!

And you are so right. Really bad IBS can feel exactly like this

I googled Benenden health and it does say no exclusions for pre existing conditions and it's only £12.80 a month. Worth investigating.

I hope you get a diagnosis and treatment soon.

My GP gave me one of those mouth sprays that are used for angina to use in an attack of proctalgia fugax - it relaxes the muscles and bring s rapid relief.