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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

PSORIASIS !!

27 replies

soriasis · 10/04/2023 00:23

Does anyone have any experience with either phototherapy or methotrexate for psoriasis?

I have it horrendously all over my scalp. I can’t sleep at night because it hurts so much, it cracks and bleeds and it’s absolutely awful. I get big chunks of scalp falling off at work which is obviously embarrassing and it leaves my scalp red and raw and bloody too. I’ve tried every topical application -both steroidal and non steroidal- and according to the dermatologist we’ve exhausted all options now.

does anyone have any experience with phototherapy for the scalp? Apparently it might not work as effectively because my hair is so thick over the area? Or other drugs like methotrexate? I’m absolutely desperate for this to be better but nothing is working and it’s destroying my life. Apparently it’s a grey area whether I should be trying these more harsh treatments as the psoriasis isn’t severe over my body- it’s only on my scalp and ears and upper neck area whereas other people have it much more widespread. Although the areas I do have it on are really severe and I’ve had 6 hours sleep over the last 2 days because it hurts so much to lie on!

any experience or knowledge would be welcomed and appreciated x

OP posts:
HiScore · 10/04/2023 18:07

Could you ask for anti tnf (biological) treatment?

Have you also tried cutting certain foods out of your diet and focusing on gut health? I have autoimmune arthritis and find it really helps

User154871 · 10/04/2023 18:24

I have severe P and PsA. I had phototherapy 3x weekly with salicylic acid cream applied by the nurses beforehand to my scalp. Worked a treat but flared instantly once the treatment stopped.

Methotrexate just made me nauseous and didn't achieve anything. You MUST take folic acid with it - some hospitals don't prescribe the two together but it's quite important.

I've been on biological the last 8 years. Humira, Stelara, Cosentyx, Tremfya, Cimzia... they all seem to work for a year and then my immune system finds a way around them unfortunately. Only my current one allows for safe pregnancies and breastfeeding so make sure you ask about side effects- MTX in particular causes birth defects and you have to be clear of it for 2.5 years before being safe again. Sorry I have no idea whether you are/will want to have kids but I feel they don't broadcast risks of treatments enough.

Good luck :)

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