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MNHQ have commented on this thread

AIBU?

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18 replies

bloodythick · 06/10/2022 20:50

I posted about a talk regarding blood clot survivors (of which I am one) and that I think it's important that medical professionals are more aware of symptoms etc . It did have a link but I explained what it was in my second reply. It has disappeared. I am a legitimate poster and this is a cause Close to my heart I don't understand why it's gone with no message or explanation

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bloodythick · 06/10/2022 20:50

I have reported this thread to hopefully get the attention of mnhq

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bloodythick · 06/10/2022 20:56

All the things I read on here and My posting off a link to a scheduled talk about the psychological effects of surviving a blood clot gets removed??

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HeadacheEarthquake · 06/10/2022 21:00

Love the username

If you get a new thread please tag me I'm a double PE survivor

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bloodythick · 06/10/2022 21:02

HeadacheEarthquake · 06/10/2022 21:00

Love the username

If you get a new thread please tag me I'm a double PE survivor

:) thank you

I've only posted a couple with this name but I'm a very long standing mumsnetter,
Hope you are well, PE is a very scary experience

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BlancmanegeBunny · 06/10/2022 21:17

I saw your original post, you didn't really explain the link or why you were posting. Perhaps that is why?

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bloodythick · 06/10/2022 21:21

No I know but I explained it in my reply on the thread (I'd had a couple of wines so wasn't concentrating properly when I posted)

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SavoirFlair · 06/10/2022 21:22

bloodythick · 06/10/2022 21:21

No I know but I explained it in my reply on the thread (I'd had a couple of wines so wasn't concentrating properly when I posted)

I think it’s taking some time to wear off still….





YABU

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bloodythick · 06/10/2022 21:28

I think it's wore off fine??
I'd like at least an explanation

I posted a link, fair enough without explanation. Someone said they're not clicking on a random link, so I posted a lengthy explanation about why I was posting and what it was about

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FoxyLadyBoutique · 06/10/2022 21:29

I’d be interested to read more about this please.

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Butitsnotfunnyisititsserious · 06/10/2022 21:30

Oh I'd like to see that link please

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bloodythick · 06/10/2022 21:32

It's a link from Facebook page ' factor v Leiden community' I won't post the link again but I'm sure with this photo and the fb page info you will be able to find it if you want to have a look

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bloodythick · 06/10/2022 21:34

Have had a message from Mumsnet now saying my post went automatically to spam as advertising but to repost it I wanted. So this is the link if anyone is interested

us06web.zoom.us/meeting/register/tZIpd-ysqD4sHdbaZAkBkaOaka8zZj-pdPnz?fbclid=IwAR3txn6KE61CPXhDepunczu3UtEkNSrpvqUmVNHIzfx8OykfL6KQB1BwJWk

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Greybeardy · 06/10/2022 21:36

It’s at midnight - there aren’t going to be many UK ‘providers’ showing up for that I suspect!

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Hearthnhome · 06/10/2022 21:44

Hi op. My mum died at 66 last year as a result of PE. I am so glad there’s survivors. Thank you for raising awareness.

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bloodythick · 06/10/2022 21:46

Hearthnhome · 06/10/2022 21:44

Hi op. My mum died at 66 last year as a result of PE. I am so glad there’s survivors. Thank you for raising awareness.

I'm so sorry to hear that :(

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Namechangepleas · 06/10/2022 21:56

PE and cerebral venous sinus thrombosis survivor here!

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Cakeandcoffee93 · 06/10/2022 21:58

It’s probably been removed because of covid sensoring surround the vaccination maybe? I dunno

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ImaniMumsnet · 06/10/2022 22:22

Hi there,

We are going to close this now as we have been in touch with OP now

Best wishes

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