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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

As a person living with Autism to be fed up of all the weird and negative autism threads in the last few days?

106 replies

PipinwasAuntieMabelsdog · 13/08/2022 22:28

Apparently, we are: stalkers, rapists (SW article thread), weirdos who pose threats to children (playing in street thread) non adults. I just don't get it and it makes me Sad

OP posts:
ifimay · 14/08/2022 18:34

I think a lot of autistic people straddle a line where they can just about hold down a job and function as an independent adult, but could really do with some support - which they simply aren't going to get. I was a "pleasure to have in class" child and academically high-achieving, and that meant that from the get-go I was categorised as not needing support. So now I have to make myself ill with stress and overwork in a professional job, with a nice bit of employment discrimination chucked in there. I sympathise with autistic people who "advertise" the positive aspects of autism, even if I don't agree with them. A lot of the time I think they're pushing themselves too hard and being discriminated against regardless.

RelationshipOrNot · 14/08/2022 20:44

@ifimay That's horribly familiar. I posted on another thread (now deleted) about how those of us considered high-functioning have the same expectations placed on us as neurotypical people, because we can typically mask well enough, and don't really get any support. It's a tricky situation to be in.

HinchcliffeandMurgatroyd · 14/08/2022 21:32

ifimay · 14/08/2022 18:34

I think a lot of autistic people straddle a line where they can just about hold down a job and function as an independent adult, but could really do with some support - which they simply aren't going to get. I was a "pleasure to have in class" child and academically high-achieving, and that meant that from the get-go I was categorised as not needing support. So now I have to make myself ill with stress and overwork in a professional job, with a nice bit of employment discrimination chucked in there. I sympathise with autistic people who "advertise" the positive aspects of autism, even if I don't agree with them. A lot of the time I think they're pushing themselves too hard and being discriminated against regardless.

If it’s any consolation, things are changing now for the next generation. Slowly.

I was like you, but all three of children now have/had EHCPs and two of them also met that description. I had to fight for them, but the tribunal is very good at ensuring compliant children don’t get left to suffer.

Whats wring now is that only the children of the informed and sharp elbowed benefit.

Q2C4 · 14/08/2022 23:22

doilookremotelyinterested · 14/08/2022 06:49

'I didn't talk much at school either, maybe I'm autistic too?!'
Me, thinking 'No doctor, you're just a patronising bitch' though to be fair, on Mumsnet these days she'd be self-diagnosing for attention and I'd still be struggling.
Mumsnet is crap place to be autistic. Person is an asshole = must be autistic. Child is a mini asshole = better get them diagnosed. Person is obviously struggling with certain things and may well be autistic = controlling, can't diagnose them with autism just off the internet, had we mentioned the red flags. Person wants attention = claims to be neurodiverse. Person can't be bothered to make an effort with the boring stuff in life = you must have ADHD.
And meanwhile those of us who genuinely have issues still get to feel shit about ourselves and struggle on in a world that preaches #bekind while not giving a flying fuck about anyone else.
Thank goodness for the Lego thread!

And yet if you suggest on some threads that a child's behaviour could be better in some ways (eg child could be more organized), you are accused of being ableist as the child may be neurodiverse...

CoffeeWithCheese · 15/08/2022 11:25

Q2C4 · 14/08/2022 23:22

And yet if you suggest on some threads that a child's behaviour could be better in some ways (eg child could be more organized), you are accused of being ableist as the child may be neurodiverse...

But there are some children who CAN'T be more organised... DD2 is one of these - and so absolutely desperate to please everyone, that her failures in organisation really really upset her no end - she knows that the job she was being asked to do hasn't stayed in her brain, and gets really upset about it - but at the same time, she's got absolutely no idea that she went into her room to find some socks and will reappear wearing a novelty hat and reading a book!

Yes, it IS incredibly wearing at times - but the poor girl really really can't help it and desperately wants to please and we try desperately to put things in place to improve her non existent executive functioning at home.

NDMum · 17/09/2022 08:01

@PipinwasAuntieMabelsdog does my head in, they make it out like we are controlling narcissists who are verbally abusive

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