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Examples of Wrongly Being Told There Was Nothing Wrong By The NHS

307 replies

Westover · 08/06/2022 18:10

Interested in examples of this, as it appears to be a growing trend to be fobbed off, sometimes repeatedly by a GP, and told there is nothing seriously wrong when there is an issue requiring treatment. I'm also wondering if it is bad in other countries. In my case:

  • Developed what turned out to be pneumonia. 2 initial visits to the GP, first visit told there was nothing wrong and it was just a virus and couldn't be treated, second visit a few days later and was diagnosed with a kidney infection and given antibiotics appropriate to that. Ended up collapsing at home that weekend, ambulance called, taken to hospital, chest x ray and diagnosed with pneumonia. Was given penicillin. Unfortunately, it turned out to be a penicillin-resistant strain and so felt increasingly terrible over the next week. Managed to persuade my GP to give me an emergency appointment (this was pre-Covid), during which he barely looked at me and took a lengthy phone call before dismissing me, telling me that the antibiotics took time to work. Phoned 111 the next day and was given an appointment at a local health clinic who sent me back to hospital, where I was admitted for 4 days and put on intravenous antibiotics.
  • Fell while out running and slightly dislocated my kneecap (as diagnosed by my GP). A week later, felt a sharp pain and was unable to bear weight after that. After being phone triaged, eventually got an appointment with NHS physio some weeks later where I was x- rayed, told there was nothing wrong with it and told I was being lazy and there was no reason I couldn't exercise and I should be walking properly and not using crutches (I have never been lazy in my life!). Went back 2 months later as it was worse and was told the same again by a clearly even less interested physio. Refused an MRI scan. Paid for a private MRI scan, which showed a stress fracture. My knee is now severely damaged as a result of not resting it for 5 months after it occurred.
  • Fell off my bike and got a bad cut which caused scarring to develop on my face. At A&E where it was initially treated, I was told by the consultant that I should refer for possibly laser treatment or to have the scar revised once a year had passed. GP happily did this and in the consultation, I was told that "the best option" was to have psychiatric counselling to help me "get used to the change in my appearance". I wrote a stinker of a letter back saying that I would not be taking up that option as I wasn't that bothered by it but I had been advised to get further revision surgery by a consultant. I then moved house, got another consultation elsewhere and was given laser treatment to revise it which was successful.
OP posts:
TigerRag · 10/06/2022 07:26

medianewbie · 09/06/2022 21:03

My Mother. 'Health anxiety'. During Covid. It was Ovarian cancer. N9 scans for 5m. by which time there were metastases in lungs and bones. Dead 12 weeks later.

That's awful. I've been told a few times I have health anxiety. It's so far then been diagnosed as vertigo, hearing poroblems and now waiting to see what the consultant says.

Wrongkindofovercoat · 10/06/2022 08:13

@Ozgirl75 thank you for your reply, thats really interesting. When you describe it as free, its free at point of care like in the UK, but you have already made a contribution via taxes.

A lot of people here pay for dental check ups and treatment and opticians. Contraception is free though, I was quite suprised at you having to pay for it. Do you see a dermatologist for your skin check up or is it an add on at the GP's ?

Do private hospitals accept all pregnancies or just low risk ones ?

Are the Australian public happy with the system overall ? Does it work equally well for those who are on a low income, have a chronic illness or the elderly ? Do you know what mental health provision is like ?

booboo24 · 10/06/2022 08:26
  1. Relative who kept going to the Dr with blood in his urine, kept being told it was a kidney infection. He finally demanded further investigation only to find out he had cancer. He died within 6 months of diagnosis
  1. 16 year old daughter, lost 2 stone in a month, terrible night sweats, constant tonsillitis, tired all the time. Took her countless times to be told its her age, she's round down, she's just losing puppy fat (bmi was 16.5 by then) finally a Dr took notice and sent her for urgent investigation in to lymphoma, they scanned her liver and spleen too as it was nnow visibly ticking out under her rib cage. Finally diagnosed with Glandular fever.
  1. Daughter diagnosed with glue ear, kept mentioning all her behaviours and they just kept saying its frustration because her hearing is low-turned out to be Autism but took 10 years to get there so she's missed out on so much support and help at school.
  1. Constant cough that wouldn't go away, they just kept saying it's just a virus, turned out to be acute Bronchitis.
  1. Mum suddenly started getting fractures in her back, because she could sit in a car due to this, the Dr wouldn't come out, it took 18 months for any investigations to even start and that was only excuse she fell and we had to call an ambulance (who were amazing)

I've been trying g to get an appointment for my daughter now for 5 weeks and there simply aren't any....its all gone a bit tits up at the moment

booboo24 · 10/06/2022 08:29

Should have read mum couldn't sit in a car...we didn't know she had fractures, it was only after the call out that things started moving, turns out it was fractured in 7 places

Ozgirl75 · 10/06/2022 08:40

@Wrongkindofovercoat
Contraception - I don’t know if you can get some types free but the Implanon is still pretty good value. Cost me about $150 for 3 years of cover. You can possibly get free contraception if you’re on a low wage.

I go to a specialist skin cancer place for my check up but GPs will check too. It’s so common over here so they know what to look for. We have a good income so again, I don’t mind paying.

Private hospitals accept all pregnancies. I had two c sections, diabetes etc - it’s not like the USA. Healthcare insurance also isn’t tied to employment, and also if you move providers they have to cover you for what you had before.

As far as I know people are happy with the system here. I imagine those in more remote areas don’t have such good provision but I don’t know about that. If you’re chronically sick there is a “safety net” so you don’t pay for anything. Again, GP services and hospitals are free anyway and they’re good. The local public hospital to us is really smart and well run. I don’t know about mental health provisions I’m afraid.

Ozgirl75 · 10/06/2022 08:45

In general we’re a healthy family so I haven’t used the system LOADS but when I have what I’ve been impressed with is every Dr wants to figure out what’s wrong - there’s never been any fobbing off or “it’s just a virus”. I recall taking my son to the GP when he was about 7 and he just had had a cold that was lingering. I said how silly I felt taking him to the Dr for a cold and he looked at me and said “a cold shouldn’t last longer than 7 days in a child, always bring them if it lasts longer as there’s normally something else wrong - never feel that you can’t use the Dr if something hangs around”

when I was a child in the U.K. i used to suffer through sinus infections that would last for weeks on end and when I had one here about 10 years ago the Dr just gave me antibiotics and a steroid spray and said “use this at the first sign of a cold” and I have NEVER had another episode. 30 years I put up with sinusitis every time I got a cold!

Wrongkindofovercoat · 10/06/2022 09:22

I suppose the last big question about Australia is what is the social care system like @Ozgirl75 ? Is it easy to get people out of hospital if they need care or help at home ? Is there plenty of provision available ?

satelliteheart · 10/06/2022 09:31

@Ozgirl75 sorry, you keep mentioning gestational diabetes, as far as I'm aware the nhs test every pregnant woman for gd, if you're high risk you get two tests at different points. This might be something that differs by trust but every pregnant woman I've ever known has received at least one gd test, and they come under various different trusts so I think it's probably done everywhere

Ozgirl75 · 10/06/2022 09:48

@satelliteheart maybe it’s changed - the friends I know affected by it had their children around 12 years ago and they definitely weren’t tested as we were pregnant at the same time.

@Wrongkindofovercoat sorry I don’t know about social care as I don’t have older relatives over here.

Ozgirl75 · 10/06/2022 09:50

I know they do the basic fasting blood test in the U.K. but that doesn’t pick up everything - my fasting tests were always fine, it was my reactions to any sugars that were the problem.

Pregnantcity · 10/06/2022 10:27

In contrast - I had unnecessary treatment suggested three times in the private sector - one consultant said following a mild case of PND - you're better now but you might as well have therapy, there's a gym and a nice lounge and the insurance company will pay for It - he happened to be a director in the hospital he was referring me to. Another suggested unnecessary surgery and another suggested I have regular checkups at the private hospital for breast cancer despite him saying I was at normal risk levels and I was only 30 at the time. I really struggle with trusting doctors in the NHS and the private sector. One is desperate to save money the other is desperate to waste it - neither gives me much comfort.

Aintnosupermum · 10/06/2022 12:08

Healthcare in the US isn’t as bad as everyone makes out in the UK. If someone in the family needs an appointment we can get one either online or in person at a time that works with our schedule.

2DC have ASD&ADD and yes it’s expensive. However, we pay less in taxes. The provision for mental health in the UK is offensive. The children attend private school in the US and as it’s a documented necessity from a mental health doctor, the fees are considered medical expenses. If over a certain percentage of your income these costs are a deduction on the tax return.

The problem with the US system is the billing process. We have both children signed up for speech, occupational and talk therapy. We have special sports programs run by physical therapists. Then there are the behavior therapists and BCBA that work with school, aftercare and home. Finally we have medial doctors at the top who monitor progress. I outsourced the billing process because I couldn’t handle it for two children. It took about 30 hours a week years ago. When we left the US it was 40
hours a week.

Living in Denmark the children didn’t have access to any of this therapy. They went to a special needs school. The regression in our son has been difficult to witness. Our daughter isn’t having violent meltdowns and we have successfully overcome school refusal. For that, it was worth making the move. However, their provision, and the UK’s is severely lacking. My son had his evaluation with his new OT and she acknowledged his sensory issues immediately and gave us a list of resources. 3 sessions later his tics are significantly reduced, which means his stress levels are lower and he is finally pooping. Poor kid was entirely backed up from the stress he was under from coping with sensory overload.

Can the NHS do better? Absolutely. Should it be privatized? Not for basic care. What is basic care? Preventative and reactive healthcare.

The biggest issue with the NHS is the lack of preventative care. It just doesn’t exist.

alloalloallo · 10/06/2022 12:13

My DD a couple of years ago started having these blank/absence episodes - she’d just go completely blank and unresponsive but didn’t collapse or anything like that.

Spoke to the GP, told me it was just” anxiety. These blank episodes got more and more frequent and lasted a lot longer - again told it was “just anxiety”. I also seemed to be very anxious and my anxiety was making it worse.

Then she had a full on seizure - and ended up in A&E - they told me to go back to the GP and ask for a referral for an EEG.

GP again told me we were anxious but would refer DD to a paediatrician to “put my mind at rest” if I wouldn’t take his word for it.

Paediatrician referred us for an EEG, cut a long story short, diagnosed with epilepsy.

GP still refers to it as “just” anxiety

NumberCurtains · 10/06/2022 12:24

@Thinkingblonde

What you have described above are the classic symptoms.of Kawasaki disease. It is often mistaken for Scarlet fever (because it causes strawberry tongue and can cause rash) but the hands/feet hurting and the skin peeling are huge red flags!

Unfortunately there is no test to determine if you have had it but you should really look this up as it can cause ongoing issues with arteries/heart health.

honeycomb129 · 10/06/2022 12:38

Rang my hospital when my waters broke early at 36 weeks midwife on phone said I just wet myself and couldn’t possibly be my waters, I argued it was eventually she agreed for me to come in. Once arrived I was made to sit in the waiting room soaking wet from my waters breaking for 5 hours, once seen I was told I wasn’t in labour but was definitely my waters I was contracting every 2 minutes was told it wasn’t contractions was just Brixton hicks I was then kicked off the bed in labour and contracting to the waiting room I was told them constantly the baby was coming to be ignored. My partner eventually told them I had to be seen the contractions were coming constantly I didn’t even have a seat in the waiting area I was stood there for 3 hours to then finally be told I could go to delivery room midwife again told me nothing was happening and would be well over 24 hours before I gave birth and should go home but as I was there they’d keep me in anyway. I was then left alone and I could feel that I needed to push partner called them they said no go get in the shower I did they disappeared again leaving me and my partner alone I was in the shower and again needing to push screamed at my partner that I couldn’t hold baby in much longer he has to carry me back to the bed and he then basically delivered our baby it was only after our baby arrived that they came back and said oh we’re sorry we didn’t realise you were in labour despite me constantly telling them my partner called them back several times they ignored him. I lost a lot of blood and kept passing out after too and they said I was just over tired from the labour I needed a blood transfusion I almost died if it wasn’t for a different midwife coming to check on us cos she knew me from my previous baby I wouldn’t be here

CherryRipe1 · 10/06/2022 14:31

Thanks @BunsyGirl @Thinkingblonde
and @nolongersurprised
Very interesting and I'm just glad myself and DD didn't get rheumatic fever. It's frightening what all these viruses can trigger, Scarlett fever (Rheumatic fever), Guillane Barre (MS etc) Covid (multiple issues including transverse myelitis) etc.
Back to the original subject matter, I was at a hospital outpatients yesterday & got chatting to a lady who had been complaining for some time of post surgery pain & disability. She has a plate in her foot & a screw hadn't been tightened and was sticking out.

AclowncalledAlice · 10/06/2022 14:54

My sister was told by a dr that the pain in her side and slightly raised temperature was "probably due to age and to not worry about it", he never even checked her temp or listened to her chest. If he had done then maybe my sister would not have ended up on a ventilator in the ICU 6 days later with severe pnuemonia.

TequilaSunriseforme · 10/06/2022 15:47

honeycomb129 · 10/06/2022 12:38

Rang my hospital when my waters broke early at 36 weeks midwife on phone said I just wet myself and couldn’t possibly be my waters, I argued it was eventually she agreed for me to come in. Once arrived I was made to sit in the waiting room soaking wet from my waters breaking for 5 hours, once seen I was told I wasn’t in labour but was definitely my waters I was contracting every 2 minutes was told it wasn’t contractions was just Brixton hicks I was then kicked off the bed in labour and contracting to the waiting room I was told them constantly the baby was coming to be ignored. My partner eventually told them I had to be seen the contractions were coming constantly I didn’t even have a seat in the waiting area I was stood there for 3 hours to then finally be told I could go to delivery room midwife again told me nothing was happening and would be well over 24 hours before I gave birth and should go home but as I was there they’d keep me in anyway. I was then left alone and I could feel that I needed to push partner called them they said no go get in the shower I did they disappeared again leaving me and my partner alone I was in the shower and again needing to push screamed at my partner that I couldn’t hold baby in much longer he has to carry me back to the bed and he then basically delivered our baby it was only after our baby arrived that they came back and said oh we’re sorry we didn’t realise you were in labour despite me constantly telling them my partner called them back several times they ignored him. I lost a lot of blood and kept passing out after too and they said I was just over tired from the labour I needed a blood transfusion I almost died if it wasn’t for a different midwife coming to check on us cos she knew me from my previous baby I wouldn’t be here

God, that’s truly awful.

Greenandcabbagelooking · 10/06/2022 21:57

I had anxiety a few years ago due to a very specific set of circumstances. I changed the circumstances, had a year on meds, and have been fine since.

A few months ago I was in A and E with chest pain and breathlessness. Told it was anxiety. It wasn’t. It was a pericardial effusion as a result of covid. Now, I know PE isn’t dangerous, and that viral PE usually resolves on its own, but I wasn’t anxious, I had a medical issue. Just because I had anxiety once, doesn’t mean everything that is wrong with me is anxiety.

Sortilege · 10/06/2022 22:22

LicoricePizza · 09/06/2022 01:22

This is absolutely disgusting. The way the medical profession gaslight & blame patients for their own errors is so so wrong. Makes me so angry & sorry for your & others experiences on here. It is truly shocking.

That truly is shocking.

Do we think it’s worse in the NHS than internationally? I wonder whether bureaucracies do this more than other organisational types?

nolongersurprised · 10/06/2022 22:57

Do you know what mental health provision is like ?

it could be better, there are always wait times.

In the city I live in, for a child with severe mental health issues the only public option (CYHHS) is fairly picky about who they take, only wanting to see actual DSM-5 diagnoses and not behaviour. Once on board they are awesome though. The public hospital has a developmental assessment service for pre schoolers where psychologists work, although it’s primarily for assessment/therapy.

For children with a “diagnosis” - ie a diagnosis the national disability service scheme accepts as permanent, private psychology can be accessed through the NDIS funding, usually fortnightly or so, depending on need. Pragmatically, for children over 6 it’s hard to get without an ASD diagnosis. Under 6 it’s a lot more accessible as a funding package is given to children with “areas of concern”. This also gives access to speech/OT/physio. NDIS funded patients probably make up the bulk of the work for all private child therapists, including OT, speech pathologists and physios.

If money is tight and CYMHS haven’t accepted and they are NDIS ineligible and the family has a lower income there’s a program for under 12s where children have up to 10 sessions with a child psychologist. You can choose the psychology group but not the individual psychologist. The local universities who have psychology students also do assessments and run group therapy sessions that aren’t expensive at all.

There are probably about 60 qualified child psychologists in my area, and maybe 10 child psychiatrists. Some psychologists only do assessments, most do clinical work. Private assessments are considered valid for schools and funding purposes.

Most people access psychology through these private providers if they aren’t eligible for a “free” service or NDIS funding They get a care plan through their GP or private paed which brings the cost down to 100 dollars out of pocket per session. Most children only need 6 sessions or so.

So
For a 4 year old with challenging behaviour and developmental differences NDIS finding will pay for assessment/therapy.

For a 7 year your old with anxiety as a comorbidity from say, their ASD NDIS will fund psychology with any registered psychologist the parents choose (as well as other parents)

for a 13 year old who is otherwise developmentally normal and neurotypical, with significant mental health issues such as (for example) severe, intractable anxiety and disordered eating CYMHS will see, although there are also a few excellent private psychologists who manage disordered eating.

For an anxious 10 year old whose family is of lower income there is free access but you can’t choose who you get and your GP or paed need to know about the program to apply.

For my 14 year old who does not have an underlying disorder but who is struggling a bit with emotions, low grade anxiety and teen issues I have chosen and booked a local private psychologist. I will (eventually) get a care plan so my out of pocket costs are 100 dollars per session. The person I wanted has moved premises and so has some gaps and I was able to see immediately and book fortnightly appts for a few months. This should be enough.

I have no idea how this compares to the UK.

MooBugz · 10/06/2022 23:08

My newborn son was not feeding properly I was told he was straining due to wind and to buy a medicine called infacol.

Turned out he had been suffering seizures and resulted in brain damage.

eastegg · 10/06/2022 23:42

Not as bad as some on here, but when I lost my baby at 16 weeks I had medical management. On a gynae ward, most of the nurses were great, but when I was a good few hours into labour a nurse came on for the evening/night shift who kept telling me bleeding tonnes can be normal and didn’t think anything of the fact that I didn’t feel like I was having contractions anymore, just ongoing discomfort.

Turns out my baby had effectively been born but was stuck at the top of my vagina and the excessive bleeding was not normal at all. I was fine, because I asked for a doctor, who came eventually (explaining she had been delayed by a fatality ☹️) and helped the baby out. The look on her face told me what she thought of the nurse.

I then needed surgery the next day to remove the placenta. The delay and blood loss was not only scary but also kept me apart from my two other young children for much longer as I had to then be kept in another night (2 nights in total, I was in longer than for my C sections) as they thought I might need a blood transfusion (I didn’t).

IVFPrayingForBioChild · 10/06/2022 23:55

@honeycomb129

Which disgusting hospital was this?
Did you report the lazy arrogant lowlifes?

Fridgemagnetto · 11/06/2022 00:56

Ozgirl75 · 10/06/2022 08:45

In general we’re a healthy family so I haven’t used the system LOADS but when I have what I’ve been impressed with is every Dr wants to figure out what’s wrong - there’s never been any fobbing off or “it’s just a virus”. I recall taking my son to the GP when he was about 7 and he just had had a cold that was lingering. I said how silly I felt taking him to the Dr for a cold and he looked at me and said “a cold shouldn’t last longer than 7 days in a child, always bring them if it lasts longer as there’s normally something else wrong - never feel that you can’t use the Dr if something hangs around”

when I was a child in the U.K. i used to suffer through sinus infections that would last for weeks on end and when I had one here about 10 years ago the Dr just gave me antibiotics and a steroid spray and said “use this at the first sign of a cold” and I have NEVER had another episode. 30 years I put up with sinusitis every time I got a cold!

That is what I noticed, compared to the doctors in the third world country I lived in, who would keep investigating until they found the cause of a problem. What a difference to the ones here who don’t seem to be interested at all, except in getting rid of the patient as quickly as possible. They may test for one thing (that often has to be suggested to them) and if that comes back clear then it’s “no further action”. Well, excuse me, there’s still a problem…