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Examples of Wrongly Being Told There Was Nothing Wrong By The NHS

307 replies

Westover · 08/06/2022 18:10

Interested in examples of this, as it appears to be a growing trend to be fobbed off, sometimes repeatedly by a GP, and told there is nothing seriously wrong when there is an issue requiring treatment. I'm also wondering if it is bad in other countries. In my case:

  • Developed what turned out to be pneumonia. 2 initial visits to the GP, first visit told there was nothing wrong and it was just a virus and couldn't be treated, second visit a few days later and was diagnosed with a kidney infection and given antibiotics appropriate to that. Ended up collapsing at home that weekend, ambulance called, taken to hospital, chest x ray and diagnosed with pneumonia. Was given penicillin. Unfortunately, it turned out to be a penicillin-resistant strain and so felt increasingly terrible over the next week. Managed to persuade my GP to give me an emergency appointment (this was pre-Covid), during which he barely looked at me and took a lengthy phone call before dismissing me, telling me that the antibiotics took time to work. Phoned 111 the next day and was given an appointment at a local health clinic who sent me back to hospital, where I was admitted for 4 days and put on intravenous antibiotics.
  • Fell while out running and slightly dislocated my kneecap (as diagnosed by my GP). A week later, felt a sharp pain and was unable to bear weight after that. After being phone triaged, eventually got an appointment with NHS physio some weeks later where I was x- rayed, told there was nothing wrong with it and told I was being lazy and there was no reason I couldn't exercise and I should be walking properly and not using crutches (I have never been lazy in my life!). Went back 2 months later as it was worse and was told the same again by a clearly even less interested physio. Refused an MRI scan. Paid for a private MRI scan, which showed a stress fracture. My knee is now severely damaged as a result of not resting it for 5 months after it occurred.
  • Fell off my bike and got a bad cut which caused scarring to develop on my face. At A&E where it was initially treated, I was told by the consultant that I should refer for possibly laser treatment or to have the scar revised once a year had passed. GP happily did this and in the consultation, I was told that "the best option" was to have psychiatric counselling to help me "get used to the change in my appearance". I wrote a stinker of a letter back saying that I would not be taking up that option as I wasn't that bothered by it but I had been advised to get further revision surgery by a consultant. I then moved house, got another consultation elsewhere and was given laser treatment to revise it which was successful.
OP posts:
ThomasinaGallico · 12/06/2022 17:58

TequilaSunriseforme · 12/06/2022 17:32

Just so so shocking. You should have sued the hospital. If more people sued perhaps they wouldn’t be so bloody negligent. Thank God you survived .

The problem with this is that the NHS has a budget to cover legal action and it appears to be bottomless. There is no incentive within the system to minimise malpractice, and the threat of legal action doesn’t appear to improve outcomes across the board.

We need a process for medical disasters similar to what happens in aviation, with independent, expert adjudication, and patient safety top of the agenda.

SpaghettiNotCourgetti · 12/06/2022 18:01

God, @ChoclitPlease - I'm so sorry that happened to you.

Ironically, maternity 'specialists' seem to be particularly bad at listening to women, and it makes me furious that so many women have to go through so much because they're dismissed and ignored and patronised. It's ingrained in maternity care and it's got to change - I profoundly hope that the Ockenden report helps with this, although there's such a prevailing arrogance among a lot of the maternity care professionals that I've met that I'm not sure that it will Sad

Gibbertyflibberts · 12/06/2022 18:57

the obsession with women as walking baby machines leading to that....oh my god. I would want to hunt down whoever said that to you. It's shocking isn't it?
I was passed from pillar to post for the best part of two years after a smear that showed 'abnormal changes'. After the first couple of colposcopies I was asked to come back and have LLETZ treatment as it wasn't cleared up. Had an appointment which was booked with a nurse as a check up in error, fair enough these things happen. I might add that at the previous appointment (on New years Eve) the male consultant had told me to 'try not to put a penis in there tonight to give it time to heal' as though I was some kind of sex crazed person!

Finally went to what I hoped would be the LLETZ appointment, to be told under no circumstances would he want to perform such a procedure to a 'girl in her mid 20s with no children as it can increase the chances of not being able to carry a baby to full term in the future'. I told him I had no plans to have children in the future and I'd prefer to have the procedure today as planned. He replied maybe we should 'ask your husband (who he saw drop me off at the appointment) what he thinks about that first?'!

I somehow stood my ground and he did the procedure (begrudgingly and before the anaesthesia had a chance to kick in). The assisting nurse who did my anaesthesia prep was great but did say it was likely 'cultural differences' that meant he said what he did. More likely, he's just an asshole!

Growing up, my village had (I believe does still have) a shockingly bad GP. After a number of misdiagnoses including telling my Mum she 'just had conjunctivitis' when really she was suffering from glaucoma and on the verge of going blind: she once pronounced someone dead when they were in a coma. I think they'd actually signed the death certificate and the undertakers had started work on them before they realised they were still alive. The grieving family just got a 'sorry not sorry' response.

VeryEmptyArms · 12/06/2022 19:29

They told me my contractions were normal and it was just latent labour. Treated me as though I was weak and hysterical. Left me alone for hours. Said 'oh' when I showed them the meconium in my waters, and didn't even bother to write it in my notes. Decided to 'continue monitoring... continue monitoring' when my baby's heart rate decelerated, then dropped to bradycardia, then was difficult to find - until it was gone.

Didn't even bother to tell me she was dead, just let me work it out for myself from everyone crying. Walked out when I begged for a c-section. Left me alone straight after the worst moment of my existence. Didn't help me figure out how the hell I was going to push, just let me lie there until my body took over. Strangers barged in at the last moment when I was finally delivering her and took their time leaving while I shouted for them to go.

Three weeks and two days ago, the NHS killed my baby. Three midwives and two doctors watched it happen and did nothing. All their training and hospital policy and national guidelines say we should have had a c-section hours earlier, but they didn't do it. I can't understand why. It doesn't feel real. How can this possibly have happened? They weren't understaffed that day and they weren't busy - they just didn't listen, didn't pay attention, didn't respond to the many many signs, and now my beautiful, perfect, incredible daughter doesn't get any of the life she was supposed to have.

Daisychainsandglitter · 12/06/2022 19:39

@VeryEmptyArms there are no words. I'm so sorry for your loss. Flowers

LicoricePizza · 12/06/2022 19:39

@VeryEmptyArms
So very very sorry for your loss. Disgusted & beyond angry that they did this to you. This is criminal. They need to be held accountable. No words but sadness & sympathy 💐

Alphabet1spaghetti2 · 12/06/2022 19:44

@VeryEmptyArms a massive hug. That absolutely should never have happened in this day. You sound like an incredible mum who fought tooth and nail for her beloved daughter.

MistressoftheDarkSide · 12/06/2022 19:57

Christ on a bike, those last few posts……

I am so very, very sorry……

And so angry on your behalf ……

This should not be happening.

So very, very sorry xxx

Blimeyherewegoagain · 12/06/2022 20:05

It goes to show from reading a lot of these stories that a thorough clinical exam every time a patient presents, is essential.
I said this on the GP thread about not being seen face to face, and was told diagnoses can be made from history alone. Trouble is , if the patient isn’t being listened to there is no chance.
It just takes care and attention to detail.
So sad to hear these stories.

ChoclitPlease · 12/06/2022 20:06

VeryEmptyArms · 12/06/2022 19:29

They told me my contractions were normal and it was just latent labour. Treated me as though I was weak and hysterical. Left me alone for hours. Said 'oh' when I showed them the meconium in my waters, and didn't even bother to write it in my notes. Decided to 'continue monitoring... continue monitoring' when my baby's heart rate decelerated, then dropped to bradycardia, then was difficult to find - until it was gone.

Didn't even bother to tell me she was dead, just let me work it out for myself from everyone crying. Walked out when I begged for a c-section. Left me alone straight after the worst moment of my existence. Didn't help me figure out how the hell I was going to push, just let me lie there until my body took over. Strangers barged in at the last moment when I was finally delivering her and took their time leaving while I shouted for them to go.

Three weeks and two days ago, the NHS killed my baby. Three midwives and two doctors watched it happen and did nothing. All their training and hospital policy and national guidelines say we should have had a c-section hours earlier, but they didn't do it. I can't understand why. It doesn't feel real. How can this possibly have happened? They weren't understaffed that day and they weren't busy - they just didn't listen, didn't pay attention, didn't respond to the many many signs, and now my beautiful, perfect, incredible daughter doesn't get any of the life she was supposed to have.

Jesus Christ I thought my story was bad but that’s just horrific. Something needs to be done and needs to be done now to maternity services, the disregard of a woman knowing her own body is utterly deplorable.

I am so, so sorry for your loss and I know my sympathies from a stranger on the internet don’t really mean anything but they’re genuine. I hope you eventually find peace with what’s happened but I also hope all of us natal born women can start to affect change, real change to stop unnecessary stories like this from happening. Women know their bodies!

IdiotCreatures · 12/06/2022 23:35

@VeryEmptyArms I am so sorry that happened to you.
Things like this should not be possible in a first world country.
I don't blame lack of funds. I work for an NHS trust, they are in the finishing stages of building one of the largest and most modern buildings in the city.
I don't have a clue how we go about fixing things though.

uggmum · 13/06/2022 00:17

I was misdiagnosed with flu. I had been ill for weeks. Completely bedbound. It came on very suddenly and floored me. I was acutely ill.

I had multiple phone appointments and a face to face. All dismissed me. Eventually I had to force them to take bloods.

Once the results were back. (Although they were lost for a further 9 days). I was diagnosed with sepsis and a severe rheumatoid reaction.

My doctor came straight up to my house and called ambulance.

I was in hospital for almost 4 weeks. My liver had started failing.

Once I had recovered I had a de-brief with my doctor and the Practice Manger.

They reviewed all the contact I had had with them. I had literally begged them to help me.

The Practice Manger actually cried when she read my notes.

They admitted liability.

Catclown · 13/06/2022 00:24

BrylcreamBeret · 08/06/2022 18:41

Misdiagnosis: Told I was a fat lazy addict with drug seeking behaviour who needed a job to focus my hyperchondriac tendencies.

Actual problem: I have a tethered spinal cord and can't stand up, I wet myself multiple times a day.

I hear you op.

OMG I have the exact same experience. 10 years I was telling them about my pain. At appointment the consultant said so tour here about your spina bifida, when I looked sat him blankly he asked if I knew I had spina bifida. I was 39

mokololo · 13/06/2022 06:18

Catclown · 13/06/2022 00:24

OMG I have the exact same experience. 10 years I was telling them about my pain. At appointment the consultant said so tour here about your spina bifida, when I looked sat him blankly he asked if I knew I had spina bifida. I was 39

Yes that's exactly what they did to my family member. Spina bifida, told he was a drug seeker and benefits scrounger for 10 years. Couldn't get help. Couldn't get a wheelchair. Nobody listened or cared. They threw our lives away.

LakieLady · 13/06/2022 06:40

When my knee started to give way as well as hurting, and an x-ray revealed arthritis, my GP referred me to the physio service (you can't get referred to an orthopaedic surgeon here without being seen by physio first).

There was a long wait, 9 months iirc, so I saw one privately. She diagnosed a meniscal tear as well as arthritis. The NHS phsyio agreed, but only senior physios were allowed to refer to consultants. After more months waiting, the senior physio was emphatic that I did not have a meniscal tear, and was quite scathing about the suggestion that I did. She gave me more exercises and wanted another x-ray and a scan.

This was all delayed because of Covid, but eventually both were done. Weeks went by, eventually I got sick of waiting, and rang her.

"Oh yes," she said, "You've got a tear in your meniscus".

I couldn't tell you how many falls I had in that couple of years, and it's pure luck that none of them led to anything worse than embarrassment.

The knee's been partially replaced now, the fucker still hurts and my mobility is quite impaired, but at least I haven't fallen over since it was done.

LakieLady · 13/06/2022 07:10

NightmareSlashDelightful · 08/06/2022 18:47

You could also ask on US forums if anyone’s been misdiagnosed by a private doctor. It’s pretty common. Misdiagnosis and over-medication (or wrongly prescribed medication) is a leading cause of death in the US.

Humans sometimes make mistakes, even doctors. It’s not an NHS vs private thing. It’s a human error thing.

Very true.

After years of poor health, fatigue etc, my friend's mum paid for him to see a private cardiologist. He was told he needed to get more fresh air and exercise. Two or 3 years and much deterioration later, he took himself to A&E one morning when he felt really ill and was struggling to get his breath.

They ruled out pulmonary embolism, and did an echo, which showed significant narrowing of the coronary artery. Fitted a stent and he was like a different person.

Peanutlicious · 13/06/2022 07:21

Being told my baby was not having seizures, he was left fitting for 6 hours untreated and was later diagnosed as having seizures by my sister who was a first year medical student. She had to shout at the consultant for him to take her seriously and get him treated in NICU. That night he developed sepsis and organ failure too.

Being told my baby's MRI was normal and then being told by another hospital he had significant brain damage. He has a brain injury and has cerebral palsy and his mri is far from normal.

But it goes both ways - being told my baby will never walk or talk and he now goes to mainstream school and loves sport (he is mildly disabled).

LakieLady · 13/06/2022 07:29

TullyApplebottom · 08/06/2022 18:57

Some of these are awful. I just have the standard experience of being fobbed off by numerous HVs and community paeds before DS being diagnosed with ASD, once I realised I’d have to pay to see someone who knew what the fuck they were talking aboyt

That's awful.

I once had a client who was treated for MH issues for years. He had various diagnoses, before ending up with a dx of "personality disorder".

After I'd been working with him for a few weeks, I asked him if anyone had ever suggested he might have an ASD, because some of the things he did were reminiscent of ASD behaviours.

He looked gobsmacked, and told me that he'd raised this possibility with his psychiatrist, who'd not only flatly ruled it out but put it in writing in a report to his GP.

I became more and more convinced he had an ASD, and I went to the GP with him when he asked for a 2nd opinion. The GP was fab, arranged the necessary referrral and, after a 2 year wait, he was finally diagnosed with Aspergers.

Getting the diagnosis didn't make much difference to his life, but it did make it easier for him to accept that he was "different".

Blimeyherewegoagain · 13/06/2022 07:31

Do you think that because there is such a shortage of people to fill the vacancies in the NHS , that as long as you are qualified you’ll get the job regardless of how good you actually are? This would affect standards . Maybe high standards are not the priority now. Maybe it’s just getting people seen.

Catclown · 13/06/2022 07:37

mokololo · 13/06/2022 06:18

Yes that's exactly what they did to my family member. Spina bifida, told he was a drug seeker and benefits scrounger for 10 years. Couldn't get help. Couldn't get a wheelchair. Nobody listened or cared. They threw our lives away.

Its awful isnt it, its good to finally get a diagnosis and realise that there actually is something wrong, its not all in your head.

Equally its difficult to get your head round that if you had been listened to from the beginning, then you would not be in the situation of permanent nerve damage that isn't going to get better with surgery.

Its hard to accept that the life you had imagined for your whole life is not the future you will have.

TequilaSunriseforme · 13/06/2022 07:43

Blimeyherewegoagain · 12/06/2022 20:05

It goes to show from reading a lot of these stories that a thorough clinical exam every time a patient presents, is essential.
I said this on the GP thread about not being seen face to face, and was told diagnoses can be made from history alone. Trouble is , if the patient isn’t being listened to there is no chance.
It just takes care and attention to detail.
So sad to hear these stories.

Also the GP needs to read the notes. In my experience, they never do. In the 'olden days' the GP would know you and probably your family too. So they knowledge of what was going on in the family, what sort of conditions pertained to the family, pre existing ailments, etc. They watched a patients body language, tone of voice and the way they presented. These days, they don't know the patient most of the time. They hardly look up from their computers and they they don't read any background on the patient. The first port of call is always drugs or referral to someone else. Quite often when a patient is referred, they lose the notes or never receive them. (Had this experience myself).

Doctors used to take time over patients, really listen, and use their experience. Now because of time restraints and computerised records they are hurrying patients through as quickly as they can whilst typing on their computers. It's really not acceptable.

LakieLady · 13/06/2022 07:57

IdiotCreatures · 11/06/2022 23:25

@LadyDanburysCane have tried Sturgeron doesn't help.
Was thinking about prochlorperazine, you can actually get it over the counter, for treatment of migraines but used to be prescribed another medication that was a dopamine antagonist and it seriously messed up my voice, so a bit reticent to try it.
Considering booking in with an ENT Dr privately though.

I have Meniere's, and I have betahistine prescribed for when I get an attack.

It works a treat and seems to reduce the tinnitus as well as stop the feeling of being on a boat.

OctaviaC74 · 13/06/2022 08:14

@TequilaSunriseforme There aren't enough GPs to do what you suggest, if they did, they'd have even less appointments.

We've consistently voted to under fund primary care and to demonise GPs (see this thread for that) so why all the pseudo shock horror of where we are now?

We've known for years the UK has less Doctors, AHPs and Nurses per capita than any other comparable European country - yet we still vote for more of the same.

TravellingSpoon · 13/06/2022 08:17

There are some truly horrific stories on this thread. For those of you who have lost someone, my heart goes out to you.

My own story is nothing compared to some of these, but I appeared in A&E with severe stomach pain on my left side, told that there were no organs there and that I must have pulled a muscle. When I argued that I had pulled muscles before but the pain was never like this, and it felt like I was being stabbed, and when they were examining me the pain was so bad I couldn't breathe, the Dr said that they couldn't scan me because of my age as they don't like giving MRI's to women under 35. He wouldn't give me painkillers, only paracetamol. It was only because he has to sign off to his consultant that he didn't send me home with some codeine. When he was telling the consultant about my case, he said that I had pulled a muscle at work moving a bedbound patient, which wasn't true, he asked me what I didn't for work (care assistant) and I told him, he has put 2 and 2 together, come up with 15 and just ran with that.

I told him that I didn't want more children and only when my then husband agreed with that did he send me for an MRI where they found the problem.Once they had found the reason for my pain I was allowed morphine and the nurse who put the cannula in said I must be in agony, which I was and had been for about 8 hours by that point. I was in hospital for just under a week.

So mine wasn't so much a misdiagnosis, but refusing to move from preconceived ideas.

Badbadbunny · 13/06/2022 11:33

OctaviaC74 · 13/06/2022 08:14

@TequilaSunriseforme There aren't enough GPs to do what you suggest, if they did, they'd have even less appointments.

We've consistently voted to under fund primary care and to demonise GPs (see this thread for that) so why all the pseudo shock horror of where we are now?

We've known for years the UK has less Doctors, AHPs and Nurses per capita than any other comparable European country - yet we still vote for more of the same.

If GPs property read the notes and properly listened to patients, they'd been able to diagnose and refer within 1 or 2 appointments. How much of their time is wasted when it can take multiple appointments to get a diagnosis/referral which could have been done in fewer appointments??

It took 2 years for our GP surgery to diagnose my OH's cancer - easily 10-15 appointments with him telling different GPs the exact same symptoms, which he'd already told other GPs who'd just spent most of the appointment typing word for word what OH told them onto their computer. If they'd just read what previous GPs had written, they'd have saved so much time.

They just don't listen - too busy typing rather than listening. Many times I've had the same. Just told the GP what symptoms I was having, how often, etc etc., and then when they finally stop typing, it's "do you have any numbness?" - well yes I've just told you that and you've typed it!

Likewise, how about getting back to being able to see the same GP for continuity of care? It's what we used to have 20 years ago. Now, they seem to put up barriers to stop you seeing a particular GP again. Again, just wastes GP time when they have to ask the same questions time and time again, when if you just saw one GP continually, they'd get to know you. (Except for emergency appointments of course, I'm talking about long term chronic conditions spanning years!).