I first went to the GP about my very heavy, painful periods when I was 15 years old. I was told it was normal and "one of those things you just have to put up with". It got worse as I got older and started to interfere with my ability to work and study so I saw a couple of different GP's in my early 20's, one laughed and told me I must have a low pain threshold another seemed annoyed and told me to "be grateful you don't have something serious like cancer".
My symptoms continued to get worse, I was prescribed various painkillers, many different types of hormonal contraception and supplements over the years, none of which even took the edge off, but never referred to a specialist or any investigations until my early 30's when I had a colposcopy for post-coital bleeding that lasted for days. The Consultant couldn't see anything to explain the bleeding but rather than do anymore investigations he concluded it was "probably just break-through bleeding from the pill". I asked if it could be endometriosis and was told this wasn't possible because I had managed to have a child. I told him about my periods but he just shrugged and said "some women do suffer more than others" and discharged me.
Finally, at the age of 35 I saw a wonderful female GP who confirmed that no, it is absolutely NOT normal for your periods to last 10-14 days and be so heavy you bleed through two layers of sanitary protection and have to use maternity pads and to be in so much pain that sometimes you can't even stand. It was such a relief to know I wasn't imagining it or being pathetic.
She referred me to Gynaecology and after several months on a waiting list, appointments being promised and cancelled repeatedly and other delays to numerous to list here I have finally, at the age of 37, been diagnosed with stage 4 (severe) endometriosis. I was told yesterday that I need a total hysterectomy.
Apparently because it went untreated for so long the endo has spread and there is a lot of scar tissue. This means that treating me medically, or even with a less drastic surgery is not an option. I cannot tell you how upset, angry and just utterly disoriented I felt hearing this after 20+ years of being told over and over that I was making a fuss about nothing.