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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

To be so worried

95 replies

urghhhhh33 · 13/02/2022 19:14

I've posted about this a couple of times over the last couple of days but I don't know what to do!!

DD (4) has a viral infection since Wednesday that has affected her stomach. Went to the Gp on Friday who sent her straight to the hospital as she was very dehydrated and her blood sugar was dangerously low. They gave her some glucose gel stuff and put her on a fluid challenge and then discharged her once she had some fluid. We took her back in last night as she was still being sick and had only managed 200ml of dioralyte and hadn't peed in 24 hours. They gave her some more dioralyte and luckily she did a wee while we were there so they sent her home and told us to carry on with the fluid challenge.
Today she has managed 100ml of dioralyte, has slept for over 16 hours throughout the day and has been for a really tiny wee. She hasn't eaten anything other than half an apple since Wednesday. She hasn't got the energy to keep her eyes open let alone stand up or walk around. If we go back to the hospital I think they will just do the same as we are doing at home by giving her syringes of dioralyte but I'm starting to get really really worried. She's literally skin and bones, her lips are cracked and her skin is greyish. I don't know how much longer they can expect her to carry on like this! Has anyone had anything similar that could give some advice?

OP posts:
WingingItSince1973 · 13/02/2022 20:22

Don't worry about making a fuss. When a GP said he would refer my GS to hospital but be prepared for them to say we wasting their time. Within 30mins of being on the children's ward he was blue lighted to a specialist hospital. I dont care if they think I'm a paranoid parent. Lots of love to you and your daughter xxx

GreenFingeredNell15 · 13/02/2022 20:23

I hope she gets well very soon Flowers

Buggeredpelvicfloor2013 · 13/02/2022 20:26

Has she had covid within the last few months at all OP, or anything that COULD have been covid? If so, please ask them to check her for PIMS - my DDs friend had this and the symptoms are similar to what he experienced. Sending love to both of you x

scaredsadandstuck · 13/02/2022 20:30

Hope they call back soon x

Buggeredpelvicfloor2013 · 13/02/2022 20:33

The main symptom of PIMS is a high temperature that lasts for a few days.

You might also have other symptoms such as:

A rash
Tiredness and weakness
Tummy pain or cramps
Red and cracked lips
Swollen hands and feet
Peeling skin on your hands and feet
Headache
Red eyes
Muscle aches and pains
Diarrhoea and vomiting
Swollen neck glands
Unexplained irritability

Because this is still a fairly new condition, a lot of doctors aren't fully aware of it yet. My friend is campaigning for increased awareness currently.

AutomaticMoon · 13/02/2022 20:35

@DorothyZbornakIsAQueen

I would take her back in. You must be so worried. Don't allow them to palm you off.

My brother was ill when he was a baby and the doctors fobbed my mum and dad off.

My dad had to demand the doctors do something because they weren't taking him seriously and he just knew my brother wasn't right.

I'm going back 35 years here by the way.

Dr called an ambulance and it turned out my brother had salmonella, but it was left unchecked and he developed sceptesemia and nearly died.

Obviously this is a different scenario, but if you know your poor dd is not right and feel there is more to it, you need to be firm.

That’s awful, I’m glad your dad was there to advocate. Around 20000 people die yearly from sepsis in this country, it’s appalling.
AutomaticMoon · 13/02/2022 20:39

I’m surprised they didn’t offer a drip, I hope she’s better fast and recovers fully Flowers

Hercisback · 13/02/2022 20:40

I hope she's OK, glad you've phoned.

Original poster
urghhhhh33 · 13/02/2022 21:02

@Buggeredpelvicfloor2013

The main symptom of PIMS is a high temperature that lasts for a few days.

You might also have other symptoms such as:

A rash
Tiredness and weakness
Tummy pain or cramps
Red and cracked lips
Swollen hands and feet
Peeling skin on your hands and feet
Headache
Red eyes
Muscle aches and pains
Diarrhoea and vomiting
Swollen neck glands
Unexplained irritability

Because this is still a fairly new condition, a lot of doctors aren't fully aware of it yet. My friend is campaigning for increased awareness currently.

It's really interesting that you mention that because although DD hasn't had covid (as far as we are aware) the DR we saw on Friday kept asking about it because she said they have seen quite a bit influx of children on the ward who are coming in with severe stomach pain a few weeks after having covid
OP posts:
IrisSibirica · 13/02/2022 21:07

Not intended as medical advice, OP - but writing as we experienced something similar.
The symptoms sound very similar to a medical condition my DS developed when she was little. DS had similar symptoms from 4 to 6 years, she has since outgrown it - she was diagnosed with ketotic hypoglycemia - children eventually grow out of it.

Please call NHS 111 and speak to a professional.

When we did, the first time it happened to our DS, we were told to go to A&E immediately and DS was put on a glucose drip.

She was eventually referred to the Evelina hospital - www.evelinalondon.nhs.uk/resources/patient-information/ketotic-hypoglycaemia.pdf

Hope your DS recovers fast and feels better soon OP. . .

Wimblingwombling · 13/02/2022 21:10

Go with your instinct. They won’t mind.

damelarue · 13/02/2022 21:12

Take her back asap

Inspectorslack · 13/02/2022 21:12

This reply has been deleted

Message withdrawn at poster's request.

Original poster
urghhhhh33 · 13/02/2022 21:15

@Inspectorslack

The op cannot do this if he has parental responsibility and in the absence of a court order.
Not sure what this means??
OP posts:
Inspectorslack · 13/02/2022 21:16

Sorry! I thought I had quoted. That was for @damelarue

Inspectorslack · 13/02/2022 21:16

And I’m on the wrong thread 😳😳sorry!!

damelarue · 13/02/2022 21:25

@Inspectorslack sorry I’m confused?

MalbecandToast · 13/02/2022 21:28

I hope they have you in soon OP and she feels much better soon Flowers

AnAverageMum · 13/02/2022 21:40

@urghhhhh33
I hope your daughter is ok, it’s so very worrying when they’re unwell. My DD 2.5 years, had the most horrendous viral infection this year. I was terrified, we were in the doctors and up the hospital more times than I care to remember. She had it for a good few weeks, I got really scared at some points, I thought something was really wrong as she just wasn’t getting better after a week.

Like your daughter sleeping all day, barely any urine output. Lethargic, throwing up. Swollen lymph’s. Awful.

The GP told me they’re seeing some really nasty viral infections this year and they think children are reacting badly because they haven’t built any immunity due to lockdowns, masks etc.

Thankfully she did get better, but my advice would be always act on the side of caution.

You are her mother and you know her best. If you’re worried take her in, I know she might not like it and it’s horrible to upset them when they’re already unwell but as long as you’re there with her she will be ok. Wishing her a speedy recovery Flowers

Shutupandcry · 13/02/2022 22:05

I’m an ex A&E nurse, take her back. Explain you are worrried, ask her to be admitted for observation. Don’t be hysterical but be forceful. Tell them this is so out of character.

Teaforme123 · 13/02/2022 22:50

They really should admit her and give her a drip to keep her fluids up. Be firm. I hope she gets seen soon x

Lovemydoggie · 13/02/2022 22:58

Hi OP I really hope you are back at the hospital with your little one. I genuinely think that she should be kept in overnight to be properly monitored and to reassure you.
She probably needs IV fluids to get her rehydrated .
Thinking of you and your daughter 💐

Susu49 · 13/02/2022 23:20

@Shutupandcry

I’m an ex A&E nurse, take her back. Explain you are worrried, ask her to be admitted for observation. Don’t be hysterical but be forceful. Tell them this is so out of character.
This all over.
Mischance · 13/02/2022 23:25

I would take her back in. And try her on an ice lolly.

Chichimcgee · 13/02/2022 23:29

Hope you’re in hospital with her now op.
Stay strong and if they want to send her home, ask them why when this has been going on since Wednesday with no improvement.
If they insist then ask for a second opinion.

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