YANBU
I've known for a while it's in a state. And it's not the clinical or nursing staff at fault, it's the management teams
When I had DS, at 28 weeks, I was told I may have to go to a hospital in a place 3 hours away, where I knew no one and had nowhere to stay as hospital couldn't accommodate me. I also had DD who was a year and a bit so needed me too. They said nothing they could do, they had the space but 6 of the incubators were awaiting fixing or replacement. Luckily, just as I had DS one became available as baby went into normal cot, but they were so short staffed they forgot to give me medication to trick my milk into coming in.
Recently, GP has sent me for a hysterectomy. Literally would be life changing for me as I have so many internal and hormonal issues. Been told this is the best course of action.
She sent me as urgent referral in March last year. Was told to call in May by an alert on the NHS app as I hadn't had an appointment through yet.
When I called, was told they had triaged it as non-urgent. Finally seen in January this year.
First thing the consultant said was "I know you're here for a hysterectomy, that's the best thing for you, but you won't get it because they won't fund it unless you have a coil fitted first.
I point out this wasn't possible due to my internal issues and injuries. That I was told my insides are so screwed up, it would perforate me. That because of other issues, if it didn't it would be enveloped by scarring which is overactive in my body.
She agreed with all this, but said the management lot would say I had to risk it first and then they "might" consider the funding. She even tried to put a positive spin on it by saying "if it does go wrong you've got more chance then eh?"
I walked out in disgust.
Similar, we've tried 4 times to sort a Cahms referral for DS. They've lost the paperwork every time, variously blaming me, the GP, the postal service and school. Our hospital knows he has Aspergers but you have to get it rubber stamped by Cahms here regardless.
He also has no firm diagnosis for his lung issues. None at all. And we've just been discharged by our 4th hospital as I "cope well" and they "have a waiting list" so need his spot back. Without a consultant I can't get access to his steroid drugs as GP will only give them when he has this. The same GP who didn't put his in the shield group and now won't do his jabs as a vulnerable patient as they refuse to see him as such.
I hate it all. It's terrible and it's deliberate because the government wants us to get to the stage of saying it had a good run but it's no longer working. With money it would be.