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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Girls with ADHD

102 replies

SecondUsername · 25/10/2021 08:32

I’ve read the symptoms of ADHD and do wonder if my DD has it.

But I also wonder if it’s immaturity (she’s 6 ish), or just her personality, or maybe even something else.

AIBU to ask for your day to day experiences of having a girl with ADHD?

I’m asking for experiences with girls as it can present quite differently in boys.

Also, how Long did diagnosis take?

Many thanks for any insights. I’m hoping they help me to see if I’m way off thinking she might have it.

OP posts:
MiloAndEddie · 25/10/2021 19:41

Ah ok, seems a strange coincidence doesn’t it. Good luck, hope you can get some answers

PumpkinPatching · 25/10/2021 19:43

We've had toileting issues, interesting others have too. She won't go, even when she's jumping and jiggling about all over the place, and we're saying to her "go to the toilet!"

She's had some anxiety about going at afterschool club so has come home wet a few times 😢 It seems to have improved over the past couple of weeks.

finopitta · 25/10/2021 19:50

Mines just been diagnosed at 16. I'm currently in a period of feeling awful about the fact the signs were always there amd I didn't notice. Well, I did notice obviously but in my mind I couldn't match her behaviour with what I believed ADHD looked like. Little boys who'd been diagnosed were climbing walls and hitting each other and breaking things but DD was a quiet little thing off in her own world a lot of the times but plenty of friendships.

In our case; she was "fine" at school, grandparents, her dad's house. But at mine would have regular meltdowns. Awful tantrums right through to around 10/11 years old.

She wanted so badly to perform and fit-in but when she was in her safe space with me it all came tumbling down.

She could never finish a task, starting a task was always tricky too. She'd wander off mid conversation. She could stare out of windows all day if you let her.

She has ASD traits too, PDA specifically but she hasn't had a diagnosis for that as yet. In that sense it was all sensory stuff like labels in clothes, painful skin etc. But also extreme avoidance to any kind of demand. I could go on but I'm aware this is long!

BlankTimes · 25/10/2021 19:56

I've gone around in circles wondering whether it's ASD/PDA/ODD/ADHD,

They are not mutually exclusive and there's a lot more co-morbidities that could be there too whose symptoms all overlap. Dyslexia, Sensory Processing Disorder, Dyscalculia, Semantic Pragmatic Disorder, Dyspraxia, etc. Add to that neurodiverse children can have an emotional age around two thirds of their chronological age and serious deficits with executive function, processing speed etc. and you begin to see why the condition the parents think their child has could be something else entirely.
The best thing is not to fixate on one condition yourself and just ask for a paediatric multi-disciplinary team assessment. Often Paed, Ed Psych, SLT and OT.
They carry out extensive tests and can unpick all of the traits and decide which should be the diagnosis, or primary diagnosis.

finopitta · 25/10/2021 19:56

Ah and the sleep. She didn't sleep through the night until she was 6/7 years old and even now she doesn't really sleep properly.

Also as PP said, chronic lack of self belief despite all evidence pointing to the fact she is incredibly capable

80Dodgeballs · 25/10/2021 20:09

@NewLevelsOfTiredness

You have just described my 12yo daughter to a tee!

No concept of time. If I left her to dress herself, it would take her 3 hours, the worry, the fears etc

Diagnosed ASD but I'm also beginning to suspect ADHD

Siameasy · 25/10/2021 20:16

I strongly suspect myself and am alert to my DD. But at the same time, isn’t it normal that a six year old does cartwheels in the street and talks constantly? Sometimes I think my child is fine; society’s expectations are really unrealistic. She’s very emotional and I recognise her in all the anecdotes above.

Zezet · 25/10/2021 20:16

One tip: make sure to compare her to other girls. Girls are often much better at masking (especially in things like school) so they look like just a kid... but when you look more closely some of their skills are average for boys but below par for girls.

She sounds a lot like my daughter!

Flareyairy · 25/10/2021 20:19

Not diagnosed but firmly believe one of my daughters (13) and I have ADHD -inattentive (big difference). So many girls that are now women (me included) were missed and therefore struggled through school and beyond, fighting to fit in and survive in a world built for NTs - neurotypicals.

I think because I strongly believe we both have it, it makes it easier for me to relate to moments she's struggling. Like when seemingly easy choice needs making, she.just.cant. And beats herself up for 'being useless' in her eyes or when she criticises herself for not being super outgoing like her sister. I tell her we can't have a world full or extroverts!

The executive dysfunction.... Knowing all the things she needs to do but just.cant! I get it!! The rejection sensitive dysphoria, the becoming distracted so easily, the lack of focus. The hideous memory! The becoming bored quickly. The terrible forgetfulness, the constant losing things, the day dreaming.. The trypophobia, the misophonia.

But she's so bright, so talented, so kind, so quirky, wonderful and so empathetic. She cares about other people so much. She can't be pushed to do anything..she can be amazing at something but as soon as we encourage her too much, she gets put off.

She has sensory issues (the trypophobia and misophonia are sensory) also fabrics, labels on clothes, seams etc.

We aren't going to seek a diagnosis just yet, rightly or wrongly as her lifestyle means it doesn't cause her many problems (we live in the sticks, she has one close friend plus her sisters, she's home educated and she spends her spare time minecrafting, walking her dog, riding her pony or baking!).

SkiRun0077 · 25/10/2021 20:27

Interesting reading these as my 10yr we think is ASD, I have been reading a lot on the PDA society as she fits this to a tee. But equally a lot of what has been listed here as ADHD is her…arrh I’ve reached a point I don’t know which way to turn just know we have a child that’s imploding with very high anxiety, regular meltdowns and extremely hard to parent Sad she’s finally getting some small adjustments at school in Year6, after having an awful year5, due to teacher clash. I’m assuming I need to talk to the GP to start an assessment for years, but I literally don’t know what to ask for, as know I’ll get fobbed off or spending years being questioned as she’s “fine” in school but a nightmare at home.

Siameasy · 25/10/2021 20:28

I get distracted so easily it’s awful. I don’t know how I haven’t crashed “oooh that looks interesting!….look at that bird!…etc” and in the supermarket I simply cannot follow my list I find myself standing there staring into space. My brain will not follow the list efficiently so the shop takes forever.

PumpkinPatching · 25/10/2021 20:33

@BlankTimes

I've gone around in circles wondering whether it's ASD/PDA/ODD/ADHD,

They are not mutually exclusive and there's a lot more co-morbidities that could be there too whose symptoms all overlap. Dyslexia, Sensory Processing Disorder, Dyscalculia, Semantic Pragmatic Disorder, Dyspraxia, etc. Add to that neurodiverse children can have an emotional age around two thirds of their chronological age and serious deficits with executive function, processing speed etc. and you begin to see why the condition the parents think their child has could be something else entirely.
The best thing is not to fixate on one condition yourself and just ask for a paediatric multi-disciplinary team assessment. Often Paed, Ed Psych, SLT and OT.
They carry out extensive tests and can unpick all of the traits and decide which should be the diagnosis, or primary diagnosis.

Yes, and that's exactly what we're waiting for. I still think she has clear traits of ADHD but I'm more than happy to see what they say. In the meantime, supporting her with ADHD in mind has made a huge difference to her behaviour and our family, so even if other things are going on (or nothing at all!) we've made a really good start for her nonetheless.
MiloAndEddie · 25/10/2021 20:36

Sorry, another question from me: mine has never had trouble sleeping, she’s always (even as a baby) been a good sleeper. Could probably count on one hand the number of times she’s woken in the night since she was 2.
Whilst I appreciate it’s a sliding scale, I’ve always had in the back of my mind that there’d be sleep issues if it was ADHD. Anyone with a diagnosis have no sleep troubles?

SecondUsername · 25/10/2021 20:39

@AlistairCamel

👋 adult here who is pretty sure she has ADHD and is on a three year waiting list for assessment.

As a child I was very well behaved but often described in school reports as being a daydreamer/away in another world. I would struggle to remember anything I needed for school. I always thought a locker would help when I got to secondary. It didn’t.

My bedroom was a mess, always, no matter how hard I tried fo keep it tidy. I couldn’t find things when I needed them. I couldn’t remember to bring the things I needed with me. I lacked self confidence and really felt completely in adequate so it was easier to behave and fade away into the background. As I grew older, the emotional dysregulation came into play and made life more difficult. I actually think it was there as a child but I remember that less.

I have suspicions one of my children has ADHD but she is far too young for it to be an actual consideration as she’s only 3. We have it in our minds though that it is a possibility and try to use techniques that are known to help with those with ADHD.

You sound very like my husband (not yet diagnosed with ADHD). He is always losing stuff! And he will go in and out the house multiple times to get things when going out. I basically pack the bags and get things ready or he would tend to do this at the last minute and then doesn’t always know what to pack (especially when it comes to the kids). He also tends to just put stuff down, says he will move it later and then forgets.
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Hankunamatata · 25/10/2021 20:43

Omg if never seen before that adhder can develop OCD. My dh has diagnosis of OCD and we have three diagnosed kids with ADHD so he often wonders about himself and adhd

SecondUsername · 25/10/2021 20:46

@PumpkinPatching

We don't have a diagnosis yet but my daughter is on the waiting list for neurodevelopmental assessment, after a telephone consultation with CAMHS, who suggested ADHD may be a possibility.

DD is bright, funny, highly creative, engaging, doing well academically, and can be very kind. However she had a horrendous year at school last year. She could not focus on the carpet during learning activities and easily became overwhelmed, lashing out at and hitting/hitting peers and teachers and being defiant. I dreaded every single day last year, worried about what the day would bring with her behaviour. No amount of consequences / rewards at home or school made a difference to her behaviour. I've gone around in circles wondering whether it's ASD/PDA/ODD/ADHD, or whether we were simply awful parents doing a bad job of bringing her up (I spent more time than I should have pondering that little chestnut!)

As I've looked into ADHD more, I can see the attention elements are there for my DD (she can't get dressed / eat her dinner / walk down the street without getting distracted!). I initially discounted ADHD as a possibility though as she is able to concentrate brilliantly during some tasks, particularly those she enjoys and finds intrinsically motivating, e.g. drawing. However I have since found out this is not unusual.

The aspect that impacts on her most is the emotional regulation side of things. I have only really started to understand that this is actually quite a key part of ADHD despite not being part of the diagnostic criteria. She was in reception year last year and the free-flow play was just too much, too overwhelming, and she just couldn't comply with instructions, nor control her behaviour / responses. Her way of managing was lashing out.

School staff have also noticed she has some anxiety. She worries about getting things 'right', struggles with transitions, and feels very unsure of herself at times.

She is in a different class this year and the 'calmer' classroom environment has done wonders for her. The teaching staff this year seem really responsive too and let her have some time out of the classroom when it gets too much. We haven't had a single incident of hitting/hurting or lashing out so far. She still needs support to keep on task in the classroom but she is doing so much better.

I really don't think she has ASC as she has lovely social skills when well-regulated and engages socially well with children and adults. We can have great reciprocal conversations with her. She has theory of mind and can explain what's happening in social situations.

She might not get a diagnosis of ADHD of course, but nevertheless, I feel that viewing her needs through an ADHD mindset has helped me understand her better.

Thanks for this, it was interesting to read.

Did you end up with a CAMHS referral due to the hitting out?

I am also questioning myself - am I parenting her badly? Am I not understanding her? Or is it something more?

My daughter also has anxiety. I forgot to mention that she has always struggled to separate from parents - although we do have better times and harder times. For example, she now finds it easier to separate from us at the beginning of the school day now she feels a bit more confident in class, but it can be a bit of an issue. She is reluctant to try new things (although I am naturally shy, so she may be the same) or things she is unsure of. She also likes to get things right (again the same as me).

I am glad your daughter is doing well with the calmer classroom and understanding staff - that must be a huge relief.

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Hankunamatata · 25/10/2021 20:46

www.google.com/amp/s/www.additudemag.com/adhd-in-girls-women/amp/

Theres some great articles. I have adhd boys but often get articles on fb for girls and adhd. Shared and a friend messaged me saying I think my daughter has adhd. Best bet is lots of reading. Theres some great books about girls and adhd

SecondUsername · 25/10/2021 20:48

@amusedbush

Her father also has pretty bad dyslexia but her reading seems ok.

I was just diagnosed with dyslexia last week and I'm shocked because I've always been a voracious reader, I have a knack for languages and I used to write fiction for fun - it's my maths that lets me down. I originally approached Disability Services at my university because I thought I had dyscalculia but the Educational Psychologist says definitely not because I understand the concept of numbers and can do mental arithmetic.

I scored on the 86th percentile for reading but I'm only the 5th percentile for processing and organising information at speed. I always thought dyslexia was about being bad at reading and writing but apparently not, it's about processing. I can do the task, it just takes me ages to figure out what's being asked of me and I get flustered.

I also found out last month I have combined presentation ADHD and ASD though, so who knows what is affecting each part of my brain Grin

I had a friend who described his dyslexia as “organisational dyslexia” (I don’t know if that’s a real term or not). He also said he found organising information was his major problem. It’s interesting to know that dyslexia isn’t just about reading and writing!
OP posts:
SecondUsername · 25/10/2021 20:56

[quote NewLevelsOfTiredness]@SecondUsername

I definitely need to ask her teacher about school and see what she is like in class.

One thing to be aware of. What we found with my SD, and something that they often do apparently, is that they will subconsciously try and act as normal as they can in school. This is one of the reasons they can seem so drained at home in the evening - they've put huge effort into trying to mask their behaviours at school and it takes its toll.[/quote]
Oh no. I didn’t realise that masking happened in ADHD. I was aware it can in, for example, ASD/ ASC.

Thank you for telling me that!

She is very tired after school, although she does do breakfast and after school clubs some days due to me working. I do try to ensure she rests after school and also Saturdays, after her morning activity, we just kind of write off to allow her to rest at home.

I think it was you that also mentioned your SD worrying about things. My daughter has just brought up school stuff randomly tonight (currently on half term break). Things she is worried about and ruminating on. She does tend to randomly bring up things she is worried about, especially when she has been acting in a disagreeable manner. I initially thought she was just trying to distract from her behaviour by bringing up past events and using them to explain how she was acting, but it is making me consider that she night genuinely be worried about something that happened in the past and it is effecting her current behaviour/mood. Food for thought!

OP posts:
SecondUsername · 25/10/2021 20:59

@MrsTerryPratchett

DD presented as absolutely classic ADHD as a youngers child. Being as she had the 'boy' classic of course she got a diagnosis very early. Now she's 10 and a girl so she's masking so well her teacher was incredulous.

With her it was either no focus or hyperfocus. Never anything in between. As well as more classic bouncing off the walls.

Ah that’s interesting. Someone mentioned masking above, which I didn’t know was an ADHD thing.

Does the masking tire her out?

Does she also mask at home now she is older? Or do all her emotions tumble out when she feels safe at home?

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SecondUsername · 25/10/2021 21:01

@CottonSock

I suspect this with my daughter and reading the posts above ring so many bells. I feel like there are so many hurdles to getting a diagnosis. Her new teacher at least has picked up on it straight away. She does OK school work when she can focus, but often there is just nothing on the page. She's really struggled with reading and is behind. Sensory issues. Emotional regulation. Unable to follow instructions, especially if multiple commands. 8 have to repeat and repeat. Easily distracted. Anxiety. She's 8yars old. Suspect adhd in family at least two generations
That sounds hard. I’m glad her teacher is aware and is hopefully able to support her.

I’m not sure how much work my daughter gets done at school, but I will be asking at parents evening!

Emotional regulation / immaturity is definitely an issue for us.
And following instructions.

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SecondUsername · 25/10/2021 21:03

@MiloAndEddie

This is interesting for me because I have wondered about my 6 year old DD. We have parents evening coming up so I will speak to the school about it and see if anything is coming out there. Can I ask if any of you have issues with the toilet? Our massive sticking point is that she often won’t go to the toilet when she needs it. You can tell she needs to go but when you tell her to go she will literally explode, anger etc. She won’t have an accident, she makes it 99.9% of the time but it seems like a control thing with her. Sorry if that’s off topic!
No diagnosis. But toilet training was a breeze for us. Once she wanted to do it that was that. Barely any accidents until she started school and we had a week of Constant wee accidents. I think when I looked it up this can be common in children. Now we are back to being fine toileting again.

Good luck with the toileting!

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SecondUsername · 25/10/2021 21:07

@finopitta

Mines just been diagnosed at 16. I'm currently in a period of feeling awful about the fact the signs were always there amd I didn't notice. Well, I did notice obviously but in my mind I couldn't match her behaviour with what I believed ADHD looked like. Little boys who'd been diagnosed were climbing walls and hitting each other and breaking things but DD was a quiet little thing off in her own world a lot of the times but plenty of friendships.

In our case; she was "fine" at school, grandparents, her dad's house. But at mine would have regular meltdowns. Awful tantrums right through to around 10/11 years old.

She wanted so badly to perform and fit-in but when she was in her safe space with me it all came tumbling down.

She could never finish a task, starting a task was always tricky too. She'd wander off mid conversation. She could stare out of windows all day if you let her.

She has ASD traits too, PDA specifically but she hasn't had a diagnosis for that as yet. In that sense it was all sensory stuff like labels in clothes, painful skin etc. But also extreme avoidance to any kind of demand. I could go on but I'm aware this is long!

That’s interesting. My daughter is often fine in other places too. It has made me wonder whether it is 1:1 attention though that has kept her steady.

Have the tantrums stopped now she’s older?

Don’t apologise for it being long - its helpful to hear others experiences.

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SecondUsername · 25/10/2021 21:09

@finopitta

Ah and the sleep. She didn't sleep through the night until she was 6/7 years old and even now she doesn't really sleep properly.

Also as PP said, chronic lack of self belief despite all evidence pointing to the fact she is incredibly capable

The sleep is a bloody killer! But I was an awful sleeper as a child, so it could be genetic and karma biting me in the bottom!

Yes also a lack of self belief in our house too :(

OP posts: