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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think that my acne is a chronic illness?

137 replies

seemenowlater · 14/06/2021 06:06

It ruins my fucking life. I have really awful cystic acne. Everybody thinks it's just a cosmetic issue, that aspect is absolutely awful and debilitating in itself. People in public are disgusted by my face. I get bullied. People think I'm disgusting and dirty and assume that I don't wash. I've spent so much money trying different products, I've tried everything. I probably wash my face more thoroughly than most people do. That is agony though, anything with antibacterial properties causes severe stinging. I am trying to get a job in retail and am not getting any offers, and I get why. I look fucking disgusting so why would anybody employ me in customer service? Kids stare at me. I've never had any public comments but constantly imagine them saying "Mummy, what was wrong with that lady's face?" and I hate it.

But the pain, oh my god the pain is horrendous. It's on my back and face. I lay in bed crying sometimes because when I'm on my back I'm constantly putting pressure on the cysts, I wake up and my pyjama top is marked with blood and pus. My face bleeds all day. When I take my face mask off, it's covered in blood and pus. I have considered trying to get the exemption lanyard because masks rub on the acne causing open sores and make it much worse. When I worked in an office it was constant "Your face is bleeding" from colleagues. I'd be sat at my desk dabbing my face with tissue to stop the bleeding. I get it on my lips and round my mouth. The lip ones are so, so painful. My bottom lip will swell up, it looks awful and is agony. Eating hurts, drinking hurts, talking hurts. Right now I've got an awful one on the side of my mouth and if I open my mouth too much when talking then the scab opens and it bleeds into my mouth, it keeps happening and I've had it for 2 weeks because it won't heal. I also get ones on my cheek etc that have the scab break when I talk. I get it on my earlobe and sometimes inside my ear, when it's on my earlobe sleeping on my side is incredibly uncomfortable. I get horrible styes that go inside my eyelid and quite far up the eye, which are horrendous because I can feel it all the time. I get them around my nostrils, they absolutely kill. When I get them on my eyes, nose and mouth I'm always terrified the infection will get to my brain because those particular areas are closely connected to the brain.

Sometimes, my face is simply so overrun with cysts everywhere that it hurts to use any facial muscles at all. Sometimes I just want to kill myself. Whenever I try to vent to family and friends though, nobody gives a shit. "We all have cosmetic insecurities" they all say. They need to try living as I do because it's unbearable. My aunt has a common chronic illness and once used it in a conversation with me to argue that I should be grateful that my acne is all I have to worry about. Other people think it as well, "Oh the poor love has acne, boo fucking hoo.". I'm not claiming I have it worse than those who can't walk etc, obviously I'm lucky I have full mobility. But this still ruins my life, I can't help it and I'd give anything to stop it.

Even articles about it make me feel even shitter. It's all about how some celebrity had it and suddenly had the confidence to post pictures of it without filters. I saw a vile Daily Mail article stating how brave a celeb was for showing off her "horrific" acne. These articles just go on about it as a cosmetic thing, nobody seems to consider how utterly painful it can be.

OP posts:
EezyOozy · 15/06/2021 00:05

Op, I really feel for you. Nobody should have to put up with what you describe. I used to suffer from dreadful acne so am happy to come up with suggestions if you want to hear them/if you are able to share what you have tried so far (and I'm thinking non-topical). Take care xxxx

nanbread · 15/06/2021 00:06

YANBU that sounds really horrible for you. Acne has changed the path of my life, the choices I make and who I am as a person. It has impacted me for 30 years now so I do empathise, and your feelings are truly valid.

I'm sure you've tried loads of stuff, so won't offer advice, but I hope you find a solution soon. How long have you had it for?

nanbread · 15/06/2021 00:09

First reply: have you tried roaccutane?

OP: yes it didn't work

Everyone else: have you tried roaccutane?

Seriously people, read the first three posts... I'm pretty sure if your acne was that bad you'd have tried it if you could.

tropicalwaterdiver · 15/06/2021 01:27

I believe skin problems cone from within and usually indicate some other health problems.

Food intolerance test first and changing your food list might be a good start. I develop rosacea when I eat dairy and it heals on its own when I go dairy free.

There is a video on YouTube about young woman cystic acne treatmenr experience

tropicalwaterdiver · 15/06/2021 01:38

When my sister was about 5, she started to have horrible cystic acne in her ears. They were very painful, puss and blood, and antibiotics locally and orally didn't help.

Our parents were desperate for help and finally found a doctor who gave her propolis based cream and advised to give her fresh beer yeast. It performed a miracle.

Taikoo · 15/06/2021 04:02

Have you tried Roaccutane?
That was the only thing that worked for me.

Wanderlust20 · 15/06/2021 04:24

I am so sorry, this sounds horrendous! Not sure if this is an option but as someone else mentioned, Yasmin is a god send! So much so that I was terrified to come off it when I was TTC for fear of my acne coming back but I'll admit, your case seems nowhere as bad as mine.

Hang in there push to see a derm and maybe also talk to a mental health practitioner - it breaks my heart to hear you want to just end it all Sad My friend did as she couldn't bear her pain so please please get help sweetheart xxx

Wanderlust20 · 15/06/2021 04:25

Sorry that should have said my case seems nowhere as bad as yours *

HoppingPavlova · 15/06/2021 09:00

nanbread the OP has not said what they have and haven’t tried. Believe me, after decades of medical practice, patients saying ‘I’ve tried everything’ does not necessarily mean they have tried everything. Sometimes they don’t understand what ‘everything’ means, sometimes they have their own version of ‘everything’ that may not necessarily match mine for instance. Given we don’t have an understanding of what ‘everything’ means in context of the OP I don’t think you can assume.

saynotofondant · 15/06/2021 09:47

I used to have dreadful cystic acne, which only got worse in my 20s. Turns out a combination of PCOS and hashimotos thyroiditis was the cause. It started clearing up when I started taking thyroid medication. Somehow all my other hormones had been knocked out of whack and taking thyroid medication helped regulate them all. I also follow a low GI diet for PCOS. My face is completely clear now, bar the scarring.

saynotofondant · 15/06/2021 09:48

So maybe have a look at whether you have any other symptoms of PCOS or hashimotos? Hashimotos can be diagnosed with a simple blood test at your GP

olympicsrock · 15/06/2021 10:51

I was like you. Roaccutane is a Miracle
Drug

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