Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think that my acne is a chronic illness?

137 replies

seemenowlater · 14/06/2021 06:06

It ruins my fucking life. I have really awful cystic acne. Everybody thinks it's just a cosmetic issue, that aspect is absolutely awful and debilitating in itself. People in public are disgusted by my face. I get bullied. People think I'm disgusting and dirty and assume that I don't wash. I've spent so much money trying different products, I've tried everything. I probably wash my face more thoroughly than most people do. That is agony though, anything with antibacterial properties causes severe stinging. I am trying to get a job in retail and am not getting any offers, and I get why. I look fucking disgusting so why would anybody employ me in customer service? Kids stare at me. I've never had any public comments but constantly imagine them saying "Mummy, what was wrong with that lady's face?" and I hate it.

But the pain, oh my god the pain is horrendous. It's on my back and face. I lay in bed crying sometimes because when I'm on my back I'm constantly putting pressure on the cysts, I wake up and my pyjama top is marked with blood and pus. My face bleeds all day. When I take my face mask off, it's covered in blood and pus. I have considered trying to get the exemption lanyard because masks rub on the acne causing open sores and make it much worse. When I worked in an office it was constant "Your face is bleeding" from colleagues. I'd be sat at my desk dabbing my face with tissue to stop the bleeding. I get it on my lips and round my mouth. The lip ones are so, so painful. My bottom lip will swell up, it looks awful and is agony. Eating hurts, drinking hurts, talking hurts. Right now I've got an awful one on the side of my mouth and if I open my mouth too much when talking then the scab opens and it bleeds into my mouth, it keeps happening and I've had it for 2 weeks because it won't heal. I also get ones on my cheek etc that have the scab break when I talk. I get it on my earlobe and sometimes inside my ear, when it's on my earlobe sleeping on my side is incredibly uncomfortable. I get horrible styes that go inside my eyelid and quite far up the eye, which are horrendous because I can feel it all the time. I get them around my nostrils, they absolutely kill. When I get them on my eyes, nose and mouth I'm always terrified the infection will get to my brain because those particular areas are closely connected to the brain.

Sometimes, my face is simply so overrun with cysts everywhere that it hurts to use any facial muscles at all. Sometimes I just want to kill myself. Whenever I try to vent to family and friends though, nobody gives a shit. "We all have cosmetic insecurities" they all say. They need to try living as I do because it's unbearable. My aunt has a common chronic illness and once used it in a conversation with me to argue that I should be grateful that my acne is all I have to worry about. Other people think it as well, "Oh the poor love has acne, boo fucking hoo.". I'm not claiming I have it worse than those who can't walk etc, obviously I'm lucky I have full mobility. But this still ruins my life, I can't help it and I'd give anything to stop it.

Even articles about it make me feel even shitter. It's all about how some celebrity had it and suddenly had the confidence to post pictures of it without filters. I saw a vile Daily Mail article stating how brave a celeb was for showing off her "horrific" acne. These articles just go on about it as a cosmetic thing, nobody seems to consider how utterly painful it can be.

OP posts:
MerryDecembermas · 14/06/2021 07:36

Please don't give up OP. You deserve proper medical treatement

Oblomov21 · 14/06/2021 07:36

Demand/insist that your GP refers you to the Dermatology dept. Roaccutane should sort it out.

Bagelsandbrie · 14/06/2021 07:39

Another vote for Roaccutane. It changed my dds life.

Justcashnosweets · 14/06/2021 07:40

You absolutely need to see a dermatologist and get on Roaccutane. I had 2 courses which cleared up my acne for good. Still get occasional spots but nothing like I used to have before.

musthavebeenlove · 14/06/2021 07:44

I feel for you. Yes it definitely is a chronic illness and not just a cosmetic issue.

I don’t have any tips that you haven’t tried yet but to make you feel a bit better - there are some Instagram influencers with severe acne who post a lot about skin positivity.
Perhaps this can help you to feel that you’re not alone and you’re beautiful regardless of your skin condition.

spotcheck · 14/06/2021 07:45

Hi OP
I have nothing constructive to say, but you educated me today.
I had no idea just how horrific it could be.
Flowers

Lucifersladylove · 14/06/2021 07:47

Oh sweetheart, of course you are not being unreasonable. I have a chronic illness and what you describe falls under the same category. I hear you and your pain is valid.
I won’t try and fob you often with platitudes about seeing some. ♥️

RaskolnikovsGarret · 14/06/2021 07:47

Oh OP, that sounds awful, and I agree that it is a chronic illness. So physically and mentally difficult. Even mild acne is unpleasant, so I have a huge amount of sympathy for the level you are suffering from. I can’t begin to think how hard it is. Sad No solutions to suggest sorry, but I hope someone posts something that makes life easier for you.

X Flowers

HollyGoLoudly1 · 14/06/2021 07:49

I also had cystic acne (although not as severe as yours, I'm so sorry you are suffering through this) and the thing that finally sorted is was roaccutane. I had tried absolutely everything else, it was the only thing that worked. You need a referral to a dermatologist asap.

In the meantime, it sounds counterintuitive but try washing/using products on your face less. I can feel your frustration and desperation through your post but you could be aggravating skin that is already delicate. You aren't dirty. It's not because you don't wash enough. It's a medical condition. Try to be kind to yourself Flowers

MrsBungle · 14/06/2021 07:50

You really need to see a dermatologist, I’m shocked if your GP hasn’t referred you. Roaccutane cleared my acne (after 12 years of having cystic acne). My friend needed 3 courses before his cleared but it did work eventually. You shouldn’t have to live like this.

3peassuit · 14/06/2021 07:50

You need a dermatologist. This is a medical problem and needs specialist care.

IamMaz · 14/06/2021 07:53

When our son was 16 he developed awful acne - on his face. Our doctor refeered him to a dermatologist who prescribed Roaccutane which is a tablet. This is usually taken for 6 months and is a very strong treatment. It is not recommended for pregnant women and can have serious side effects including suicidal tendencies.
It caused our son's skin to become very dry during the treatment but it sorted the acne.

I think you should ask your GP to refer you to a dermatologist, OP.

fortygin · 14/06/2021 07:54

Oh op, my heart breaks for you. My daughter was the same. I insisted on a referral to a dermatologist. She saw a nurse specialist at the hospital who tailor made a treatment plan for her. (not roaccutane - that was the next step but we tried alternatives first as she was only 14). Three years later and her skin is almost clear with just the odd breakout.
Please insist on a referral. Good luck Flowers

C8H10N4O2 · 14/06/2021 07:56

I've had doctor's that don't give a shit and give the impression that they think I'm just taking up an appointment that somebody who is actually ill needs

And if you are a woman, you are doubly assumed to be there for frivolous reasons.

What happens when you ask to be referred to a dermatologist specialising in acne?

Dermatology services, like mental health and an increasing range of "non essential" issues are scarce to non existent on the NHS. Try once more with the GP for a referral but even if they take you seriously it could be a long wait.

It shouldn't be necessary but if you can't get access to a dermatologist on the NHS can you possibly afford private consultations, at least to get a sensible assessment of your condition?

EmeraldShamrock · 14/06/2021 07:58

It is undoubtedly debilitating and having a huge impact on your life like a disability.
I'm sorry for your struggle.
Is it an autoimmune disorder causing it.

Signalbox · 14/06/2021 07:58

Yes it’s awful. It can totally crush your self confidence and anyone who diminishes it as just spots is an idiot. I had acne for 10 years between 16 and 26. I didn’t even know it was something you could talk to a Dr about. People would give me all sorts of nonsense advice about my diet or magic face creams. Finally some kind soul (also a sufferer) told me that certain contraceptive pills can help and that I should ask my gp. They put me on Dianette and the acne was gone within 2 months. I stayed on it for about 5 years and when I came off it didn’t come back thank god.

Rupertpenrysmistress · 14/06/2021 08:00

Some really good advice on here. You have painted such an accurate picture of the impact of severe acne. I am so sorry for you, it's a daily battle. My dd 13 is very similar but, we have been really lucky with our GP she has had topical anti biotics and vitamin A cream, these didn't work so now she is on her second different anti biotic there is some improvement but mainly her face. She describes what you are saying about the cystic back acne so unable to sleep, she can't wear the clothes she wants to, it is heartbreaking. GP has referred her to dermatology.

I could tell you what products my dd uses but I don't want to insult you as you have probably tried everything.
Can you see a different GP and really emphasize the impact on your MH and be honest like you have hear. Tell them you feel like you don't want to be here.

AvonCallingBarksdale · 14/06/2021 08:01

You have been let down down terribly Flowers
Print off this thread, go to your GP and so not leave without a dermatologist referral. If you can pay then do to speed things up.

InnaBun · 14/06/2021 08:05

How long have you been trying things at the doctors? They have certain things to try (and for a few months at a time) then they usually suggest a dermatologist for possible Isotretinoin treatment. I spent years trying things then I saw a different GP and she was shocked I hadn't been referred sooner so worth trying to see another GP.

InnaBun · 14/06/2021 08:05

Make sure when you go to the doctors you aren't downplaying the impact it is having on you. I'm not saying you are, I just know it's quite easy to do.

romdowa · 14/06/2021 08:09

It really sounds like you need more specialist treatment than a gp can give you. Mine was nowhere near as bad as yours and I was referred to a derm. They discovered that it was the contraceptive implant in my arm that was causing it and reccomended its removal. My acne disappeared within weeks but if it hadn't they were going to trial me on medications. Please keep fighting for help, your gp has really neglected you here.

Bobishere · 14/06/2021 08:11

You poor thing.
Yes, I echo pp get a referral. I had a skin condition that my gp said was 'bad hygiene ...'
I had to make repeated trips until the day he shrugged his shoulders and said, 'well, what would have me do?'
I burst into tears and insisted he needed to do something.
His reply, 'well..... I guess I could refer you to demo...'
Who BTW is fantastic, she agreed with my thoughts about what it was and prescribed meds.
Now, it's so much better.
I know it can feel like your opinion doesn't matter with the medical profession, however yours is the most important. Insist on a referral. You shouldn't have to live like this.
Will look out for future posts.Hope it goes well.

ghghyty · 14/06/2021 08:14

Has a dermatologist absolutely said it's acne?

It's just I know there are some types of rosacea which present like severe acne but if you use acne treatments it actually makes it worse?

I would stop using everything and try to see a specialist ASAP.

ArabellaStrange · 14/06/2021 08:25

Definitely get a referral to a dermatologist.
But in the mean time get yourself on a decent B vit supplement, not the kind you buy off the shelfs in boots, you also want to be taking zinc and vit a (read up carefully on vit a because you def don't want to be taking too much).
Dont eat things containing palm oil, it's a total pain in the arse but I have definitely found a connection between eating palm oil and cystic acne appearing, not all foods but I don't risk it, as if it is the wrong type of food with the palm oil in, I will have a huge lumpy cystic spot form within twenty mins.
Also try Apple Cider twice a day (take internally) and collagan supplements as they help with skin recovery. Oh and supplement with high strength vit d as well. Also cinnamon, from the health food shops, not off the supermarket shelf, helps combat inflammation.
Good luck OP, I know how awful it is.
I was on the contraceptive injection for a few months and that definitely helped, I have never found the combined pill does much to help, pretty sure my body hates ostregon for some reason and ovulation is definitely linked to them too with me for some reason.
Really really good luck, I know how horrid it is..
Also Alpha gold is great at drying them out but I think taking a month to use the most sensitive products possible would be a good idea before trying anything else which is topical.

namechange6754 · 14/06/2021 08:37

Have you been referred to a dermatologist? Have you heard of roaccutane? Not to be taken lightly, but changed my life.

Swipe left for the next trending thread