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I need help, dying dad, new baby and possible gross misconduct *long post*

69 replies

HarleyQuinn21 · 01/02/2021 19:46

Hi all,

This is possibly going to be a long thread and I'm going to try and not drip feed, I just need to know if I'm being unreasonable to make a complaint or if anyone has any advice, I'm six days post c section so don't know if I'm being irrational.

On the 15th January my ddad (77) became really unwell, he had extreme shortness of breath, felt generally unwell and was worried so we called a doctor who booked him in for an appt, appt came and doctor booked him in for a chest scan at the local clinic so we took him there and he collapsed at the door and the staff didn't really do much, just helped him up and did the scan, fair enough scan was done and we were waiting for the results. The results came back three days later and doctor said he had fluid on his lungs which could be related to covid19 and they are going to send a non urgent ambulance to take him to the hospital to be checked out and it's be there within the hour, four hours later no sign so I call up and ask if I should just bring him but they said no, another hour and the ambulance service calls goes through all the questions and agrees it sounds covid19 related and asks if he has a family member who could take him up to the hospital so they don't need to send an ambulance (which obviously puts family members at risk if it is covid19 but again whatever) so I agree and take him up, he is in A&E and they do all their checks, find fluid on his lungs say the same that it may be covid19 related and gave him some anti biotics but didn't actually check for covid even though three medical places have mentioned it, they just sent him home. The following days he got worse and worse, the anti biotics were making him sick so I got him a covid test, I lied and said he has symptoms which I 100% appreciate I was in the wrong but no one would help us for four days and kept saying it's covid related so we needed to know so he could get the correct treatment - his test came back as negative.

He got worse and we called 999, they came out and checked his vitals and said he was fine, he got worse again and kept getting worse so we called 999 a couple of times over the next few days as he was convinced he was having a heart attack each time and the thing is my dad never wants to call an ambulance or a doctor so I knew it was serious so after another ambulance came out and said the same I just ended up taking him to the hospital myself to get some answers so this was a week after the initial appt with the doctor and his condition was getting worse.

We took him into the hospital and they did their checks and admitted him, all they knew is he had fluid on his lungs and was treating it, brilliant I then started to get calls off my dad saying he's dying and this is the end etc etc so I called the ward to find out what was going on as it was quite distressing and they said "oh he's fine, he's just being dramatic and he's anxious for no reason. Nothings wrong and it's all in his head and not to worry" pretty much. So I kept telling my dad what they said and he was on the best place and we'd get him better but his health was getting worse and worse and then he called on Saturday to say the consultant has been round and his organs are shutting down and that's it so I called the ward again and they were like oh call back in half an hour so I did and they were like call back in an hour which I did and then she tells me the nurse in charge is busy and I was like I'm really sorry but my dads just called to say he's under the impression his organs are shutting down so please could I speak to someone so she put someone on who explained they have found that he has heart failure and his heart is working at 30% and he'll need medication but he's moving to cardiology and they'll sort him out but not to worry as he's still walking around and feeding himself and they have no concerns etc so I was like okay he's in the best place and he's been there for eight days but at least they've got an idea now.

He moves to cardiology and he rings me this morning crying and begging to come home, they're not being nice to him, they won't help him go to the toilet, they're not feeding him etc so I took it with a pinch of salt and said I'd speak to them so I called and they were like oh we don't think he wants to leave so don't worry ??? He then calls me again begging and begging to come home so I explain he's in the best place etc etc but he's becoming so distressed and saying he wants to die and he can't cope being on that ward and that they're being horrible to him, they don't come when he buzzes and they won't help him etc ( trying to take with a pinch of salt again) so I tell him to buzz the nurse and see if she can help and if he really wants to self discharge then we can discuss that so he buzzes the nurse and I wait on the phone ten minutes before anyone comes to him so she comes and she doesn't know I'm on the phone and is quite nasty to him saying to stop buzzing her and she'll get him a drink when she's ready so I'm like ???? So I tell him to put her on and explain he wants to self discharge and she said she doesn't get the feeling he actually wants to leave and to ignore him and puts the phone down on me, I then get a further 8 calls from my dad saying the same thing so I call the ward again as I'm obviously concerned because honestly my dad is not like this, he's an older man and he doesn't make a fuss etc so I'm majorly concerned at this point and she's like the nurse is busy and can't speak to you, she can call back tomorrow and I got a bit firm and said I'm sorry but I cannot wait until tomorrow as my dad is constantly calling and I have a new baby and I need answers and I kind of refused to be fobbed off so she went off and then suddenly the head nurse was free and all she said was she didn't get the feeling he wanted to leave and to ignore him?? So when he called again I told him if he really wants to leave to buzz the nurse and tell her he wants to leave and we'll come and get him, I really didn't want him to leave but his mental health had become so bad at this point I genuinely thought it would be better for him to come home because if he died on that ward I would have never forgiven myself so I started looking at private healthcare etc.

He asked the nurse to help him back and they refused and said they are too busy so he said he'll just leave everything there then as his daughter was coming to get him ( I was on the phone at the time) so the nurse comes on and says she'll ask the head nurse to ring me to discuss it with me etc three hours past and no one calls me and in the meantime my dads calls are getting more distressing and distressing so I ended up just going up to the hospital and asked if they can bring him down as he can't walk and they said no, they won't bring him down and I can't go and get him so I said how can they expect an 80ish old man to come down on his own when he can't walk? (Even though prior to this they said he was mobile when he wasn't) so she said she'd sort it out for me, she was nice actually and got the doctor to come to reception to speak to me and he explained my dad needed fluids etc so I asked if I could speak to my dad and I know it's covid times etc but maybe I could persuade him to stay, the doctor kindly agreed and told me to follow him - he took me to the stairs and I asked if it was possible to take the lift as I had a c section 5 days ago and a bit sore but he said the stairs were faster and I didn't want to push my luck as he was being kind enough to let me see my dad so I climbed the 3 flights of stairs and by god I am paying for it now but we get to my dad and I know straight away I need to bring him home, he's a shell of himself sat in a chair staring at the wall so the doctor brings me into his cubicle and explains to my dad he thinks he should stay and I explain he'll get better here and he said if I leave him here then he will commit suicide (my dad has never ever said anything like this) so I ask the doctor if it's fluid he needs then can he come to a clinic or anything to get it and they said they used to do that before covid times but now they don't so he'll get the fluid turned into tablets and they'll let him leave, we take him home and they say they will ring me when his tablets are ready to pick up.

About three hours later I get two missed calls from an NHS number I can't call back within a minute of each other, I missed them due to changing the baby so I called the ward and the nurse was like "I'm a bit busy to speak to you right now but no one from this ward has called you" without checking with anyone so I explain about the tablets and she says it's nothing to do with them, so I call round the pharmacy in the hospital and stuff but they haven't called so I ask my husband to call the ward to see if they know who would have called so we can get these tablets, my husband gets the same woman who says I've already told you etc but as she's on the call the woman next to her says "is it about "John"? And she's like yeah and she like oh yeah I tried to call, the tablets are ready and they need to come up to the ward to collect them... even though two seconds ago it was apparently nothing to do with them Sad

My dad claims he wasn't looked after, they wouldn't tell him anything, they wouldn't help him shower or toilet or whatever and all he's eaten in 6 days is ice cream - obviously I am taking all of this with a pinch of salt as I know nurses work hard and do their best (most of them anyway but I'm unhappy from how they've been with me etc anyway and think there's more to the story but think he may have been left sometimes)

I'm on my way to get the tablets now, my dad looks like a shell of his former self - what would you do in this situation? Please be kind, I'm 6 days PP and I'm so tired and stressed - if this is all above board then I'll leave it and just get private healthcare in the morning (we have savings we'll have to blown through) or maybe ask a doctor for a home visit I'm not sure, I know my dad shouldn't have self discharged and I REALLY wanted him to stay but I would have just been worried about him hurting himself - would you complain or shall I leave it ?
I know it probably sounds like my dads unreasonable but I promise he has never ever been like this, he's usually very "I'll do whatever anyone says, too polite to argue" kinda guy and hearing him talk about suicide was heartbreaking. I just don't know what to do.

OP posts:
Babyroobs · 01/02/2021 19:57

It sounds like a nightmare. Do you have any other family members who can try to take some of this off you whilst you recover from just having given birth and having major surgery ? Maybe speak to the hospital social work team, they can decide what's in your dad's best interests maybe ?

Tequilasun · 01/02/2021 19:59

Oh bless you, that sounds awful. Go with your instinct. Very similar happened with my dad. I brought him home. He was calling me in the middle of the night in tears. I sometimes think some nurses/doctors forget their patients are real people (obviously not all nurses and doctors) and times are very difficult but he's your dad and you know him best.

Cheersdickie · 01/02/2021 20:02

PALS at the hospital should help give you a steer on what to expect. Put a complaint in - just the conversation you overheard on the phone is appalling

Imapotato · 01/02/2021 20:08

Oh how awful for your poor father. I’m an AHP on a busy ward and though care isn’t always perfect due to staffing your dads experience doesn’t sound like your typical hospital stay.

I don’t know what services there are in your area. Do you have rapid response? The GP could refer you and they can help with emergency medical assistance and carers, it’s a service set up to avoid hospital admissions. They would likely arrange an OT to visit to, to assist with any equipment, mobility or daily living needs. It would be worth ringing the GP and asking if this service is in your area.

You sound like your doing a wonderful job, but look after yourself, you’ve just had a baby.

DianaT1969 · 01/02/2021 20:11

You did the right thing taking him home. I had a similar experience with my dad regarding leaving him in distress when he needed to go to the toilet, nobody coming near him for hours, forgetting to give him food, and then when he had a peg bag, not noticing if it had finished, so no time to fit in the next one in daytime hours. My dad wasn't a complainer either. His ward staff were more communicative with us though. Plus we could visit every day and keep his spirits up. It does happen and you did the right thing. Keep him home and ask for help from social services and his GP. Ask for other members of your family to help share the load of you can.

DogsSausages · 01/02/2021 20:12

Once he has settled at home I would ask him if he wants to complain, then I would write to PALS and ask them to investigate the staff behaviour.

whatisheupto · 01/02/2021 20:12

Sounds like way I was treated when I gave birth. It was a very difficult delivery and I was very poorly. The care was so lacking, I was shocked. I would believe your Dad. I remember feeling that if my condition worsened it would probably be a few hours before anyone realised.

Imapotato · 01/02/2021 20:23

Also I agree with the others that a PALS complaint would be appropriate.

m0therofdragons · 01/02/2021 20:24

Definitely complain to pals. It is tough right now on the wards but basic care and kind words are a minimum expectation so my hospital would take this very seriously. This isn’t okay and falls short of what he should have experienced.

kazillionaire · 01/02/2021 20:27

Some nurses get desensitized over time and I've often heard nurses say that the whole hospital would be so much better without the patients, please complain as your dad had you to fight his corner, not everyone has somebody who cares

Bluetrews25 · 01/02/2021 20:31

I'm very impressed that you were able to drive 5 days after a CS.
Just be aware your insurance may not cover you.

HarleyQuinn21 · 01/02/2021 20:32

@Bluetrews25

I'm very impressed that you were able to drive 5 days after a CS. Just be aware your insurance may not cover you.
My husband has been driving us everywhere, sorry should have said that.
OP posts:
Wishitsnows · 01/02/2021 20:35

How horrific. You definitely need to complain. These things can happen so easily now as no visitors allowed much like the abuse that happens in care homes.

Pineapples3 · 01/02/2021 20:37

Yes, complain. If nothing else it will hopefully stop the same thing happening to someone else. Just because it is the NHS it does not mean mistakes/mistreatment don’t happen. My dad was in hospital too, very unwell. Luckily in non Covid times so I was able to visit daily but the rudeness & complete lack of care from some of the nurses just shocked me to my core, they acted as if my dad was the biggest drain on them & couldn’t even pretend to be arsed. I didn’t complain, I wish I had but I just didn’t have the strength at the time.

harridan50 · 01/02/2021 20:38

Please complain your father is not wrong

Steptoejustdeliveredmywardrobe · 01/02/2021 20:42

Complain OP, without a doubt.

Your dad definitely needs to be checked over elsewhere. Organ failure you say? That poor man Sad

Love to you both Flowers

frumpety · 01/02/2021 20:48

If your Dad has been diagnosed with heart failure, he should have been referred to a heart failure specialist nurse, ring the hospital and ask for their number and leave a message asking them to contact you.
What can your Dad actually manage to do himself now he is home ? Can he go to the toilet without help ( he will probably have been prescribed something that will make him need to pass urine a lot ), it might be worth getting him a plastic bottle to use in the interim, the medication can make him want to go to the toilet suddenly and if he isn't too good mobility wise this can be useful. Talking of mobility, how steady is he, would he benefit from a stick or zimmer frame ? How high/low is his bed and chair ? Can he easily get up out of them ? There are things called chair raisers which can help make a chair a better height and a thing called a bed stick that can be positioned under a mattress that can be used to pull yourself upright and make it easier to get up and out of bed.
Can he get up and wash and dress himself without any help ?
Can he make himself something to eat and drink without assistance ?
If you are concerned that he needs additional equipment or needs help with simple tasks like washing/dressing/food prep you could ring his GP and explain you are worried that if he doesnt get any help now he may end up being a failed discharge and ask what is avaible to help him cope short term with being discharged ? Is there anyone who could do a equipment assessment or a service that can help him regain his independence ?

As far as his heart failure is concerned, the medications should help to stabilise him and reduce his symptoms, but as mentioned earlier a chat with a specialist nurse will probably help, they really know their stuff and are great when it comes to communicating with patients and their families.
Hope you get some help soon Flowers

HomeschooIerRockthemicrophone · 01/02/2021 20:49

Christ all bloody mighty, my heart goes out to you all. Flowers
Has to be reported. No one should be made to feel like that or be spoken to like trash. Could the lack off fluids have added to the agitation? How is he now? More importantly, how are you?

HomeschooIerRockthemicrophone · 01/02/2021 20:49

of

Covidcorvid · 01/02/2021 20:53

Has your dad being treated/investigated for the heart failure? I’m just a bit worried that physically he needs to be in hospital but appreciate you’re worried about his mental health. Do you know what the treatment plan was.....you said you’ll sort out private medical care...what if he needs surgery? It’ll cost a fortune?

DogsSausages · 01/02/2021 20:58

Where is your lovely dad now,is he staying with you. Frumpety has given you lots of excellent advice. You can call 111 if you want out of hours support from the dr.

lordalmighty · 01/02/2021 21:02

Hi, it doesn't surprise me one bit what your dad is telling you. I do bank shifts in elderly care wards amongst others and some of the treatment I've witnessed is unbelievable. However, if he is feeling under the weather is there any chance he could be suffering from delirium? Or is he quite happy now he is back home? Hospitals can be frightening places, especially if he has always kept well - and not all staff are kind. I think a good place to start would be a complaint ( about the things you know to be be 100% true, the lack of communication, the nurse being rude to your dad whilst you were on the phone etc) and take it from there. Would he maybe be persuaded to go back but to a different ward? It is really a lot for you to manage on top of a new baby and you should absolutely seek help for all of you.

KellyMarieTunstall2 · 01/02/2021 21:04

Believe your Dad OP, it's more than likely true and he's been severely neglected. Start the process withe complaint via PALS and then get a good care package for your dad so you can both settle and enjoy your time with him being comfortable.

Calmandmeasured1 · 01/02/2021 21:15

I would make an official written complaint to the hospital. I wouldn't address it to PALS, I'd address it to the CEO of the trust.

Set out it out in points and for each point state the date (and time or rough time if you know it). Try and separate it out though so that it isn't rambling.

Just state facts. What happened. Who did it. When. What your objection is to that behaviour.

At the end of the complaint set out what you want to achieve from the complaint. Investigation and apologies? Steps they will take to ensure it never happens again with someone else?

It might take a long time to resolve but this behaviour is something that should never happen in the NHS.

Covidcorvid · 01/02/2021 21:21

If he isn’t his normal self get him checked for a uti as well.

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