Disabled kids,the forgotten Covid victims

[NotEver0]

I barely made it through this year coping with my severely autistic,learning disabled son being at home for the best part of it due to Covid. I struggled desperately without him at his much needed Special needs school and many a time in my darkest darkest moments thought it would be easier if we both just died..
I cried tears of relief when he eventually went back in August and went to bed everyday as soon as he left for school as I was so so exhausted, He barely sleeps and never sits down.He needs 24 hour supervision and self care assistance with everything.
Now it's happening again and I just don't know how to drag my mind and body out of this pit of dark despair that I'm fast hurtling into.I know I'm not alone doing this,its just so many things have been ill thought or given no thought,nothing seems more important than bloody covid.

OP bombarded a forum post last night with multiple links to

Disabled children are forgotten

She made her point clear

She was on with people who agreed with school closures

I back my SLT 100%
They care more for the vulnerable children than some get from home life

I work in a deprived previously failing school lots of safeguarding issues the teachers care but it's time to shut

In the March lockdown DS2 special school asked at the beginning for the three week period to keep children at home, those who did then where not allowed a school place and other that were sent eventually got refused. They sent a similar email last week, and again today. The problem is there is now no trust, parents who would keep them at home whilst plans were made are now saying no. The school is now phoning parents. DS2 is due back Wednesday, he has already had weeks off whilst they have secured the school (close call with a car). Since March he has only had 3 full school weeks and 4 reduced time tabled weeks.

@sheworkshardforthemoney

This is an open forum

I work in schools
My mum works in schools
My daughter attends school
My friends are in working in schools

You cannot expect them to open at the moment it is unrealistic

And you think that magically makes it easy to cope with a child in continuous distress because their life has been turned upside down and they don't understand why?

You're either thick or nasty.

And whatever the background of the children you claim to work amongst, they are not likely to be so cognitively disabled that their progress at school is still measured in terms of the early years curriculum, in their teens. Though your pp has overtones of blaming parents for their children's presentation.

"They care more for the vulnerable children than some get from home life"

So that's where this is coming from.

Although you have made it absolutely clear that you don't care how much disabled children like the OP's suffer. Several people have posted about their children's distress. You don't give a fuck about our children so jog on.

You cannot expect them to open at the moment it is unrealistic

Places are supposed to be offered for vulnerable children, this includes children who have EHCPs, yet many schools are excluding these children or - when they are offered a place - the support measures set out in the EHCP are not provided despite it being a legally binding document.

And whatever the background of the children you claim to work amongst

Considering that on 27th December the PP was claiming "chef for a living", I doubt she actually works in schools.

OPs child doesn’t have an ehcp. I assume the system is very different in Scotland because in England she would not have secured a place without one.

I’d advise you to post on the SN boards @NotEver0 as you may get help coping with how things are now as while highlighting the issues is important it is draining and you will have RL stress to contend with too.

@FoxyTheFox

And whatever the background of the children you claim to work amongst

Considering that on 27th December the PP was claiming "chef for a living", I doubt she actually works in schools.

Ah, so she's a dinner lady. Expert, then.

@FoxyTheFox

And whatever the background of the children you claim to work amongst

Considering that on 27th December the PP was claiming "chef for a living", I doubt she actually works in schools.

Not even a competent troll then 🤦🏻‍♀️

DS is so stressed today, pacing round the flat, flapping his hands and making pterodactyl noises. I’m trying to clear all the Christmas mess and get us organised to start homeschool tomorrow. Not feeling very optimistic about how that’s going to go right now...

I can relate to the original poster because I went through the same in lockdown 😫
My severely autistic severe learning difficulties son was forgotten about by his school for months 😡 and I also had a infant aged child to educate. We struggled and I don't think I can do it again 🤯

@sheworkshardforthemoney
Oh do fuck off now
You don’t know about SEN schools or children, so just fuck right off with your shite

I wouldn't want my child in a school with staff who use such derogatory language

@sheworkshardforthemoney

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Each post of yours displays more clearly the limits of your knowledge, understanding and decency.

The mums on this thread are fucking desperate. The kids they care for are desperate.

It’s OK to just move on to another thread, you are causing upset to very stressed people here. Perhaps take a moment and reconsider?

Luckily for the children that poster will have no say in whether children are in school or not.

YANBU Op. I have a moderately autistic child who I love with all my heart, but homeschooling nearly broke me...

I would t have joined this thread except for the fact that the OP was bombarding a different thread with schools should not shut I have a different opinion

I will leave the thread

Perhaps you could not have a go at people who want them shut

I assume my post before was about kids not being able to control their conditions or habits in schools. That was a fact of what I see

Do you think they should shut to keyworkers or are they and their families considered acceptable by you?

What about those who are keyworkers and have a disabled child? Does a covid ward lose out on a nurse because her child is disabled? Something that would be a reality in my family.

@sheworkshardforthemoney

I assume my post before was about kids not being able to control their conditions or habits in schools. That was a fact of what I see

You used derogatory language to describe those children. Please do leave the thread.

@sheworkshardforthemoney

I would t have joined this thread except for the fact that the OP was bombarding a different thread with schools should not shut I have a different opinion

I will leave the thread

Perhaps you could not have a go at people who want them shut

What absolute bullshit,I have never bombarded any other thread saying schools should shut!you absolutely nasty vile lying troll.MNHQ please remove this person from this thread.

Please ignore the troll.

OP I'm so sorry for your situation and have nothing but sympathy and support for you and others in your position.

Its clear everyone that the above troll is trying to detract and deflect from the actual genuine issue we parents face.please do not give her any further rapport and hopefully she will piss off.

So my son's school has messaged to say if schools close again they will only be open to keyworker kids,it's a special school so every child has an EHCP and every child is considered vulnerable just like last time .