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Disabled kids,the forgotten Covid victims

2 replies

NotEver0 · 22/12/2020 19:42

I barely made it through this year coping with my severely autistic,learning disabled son being at home for the best part of it due to Covid. I struggled desperately without him at his much needed Special needs school and many a time in my darkest darkest moments thought it would be easier if we both just died..
I cried tears of relief when he eventually went back in August and went to bed everyday as soon as he left for school as I was so so exhausted, He barely sleeps and never sits down.He needs 24 hour supervision and self care assistance with everything.
Now it's happening again and I just don't know how to drag my mind and body out of this pit of dark despair that I'm fast hurtling into.I know I'm not alone doing this,its just so many things have been ill thought or given no thought,nothing seems more important than bloody covid.

HebeMumsnet · 25/12/2020 19:26

Hi there NotEver0 and others,

Thanks for bringing this to our attention. We've flagged it up with our campaigns team who are having a think about what might be possible/most useful.

We're afraid it's a bit of a skeleton staff here this week and next, which is why we've been a bit slow to respond - many apologies - but just wanted to pop by and let you know that we've seen the thread and definitely haven't forgotten you and we'll pop in again when there's more news.

Oh, and Merry Christmas to you and all your families. Wine

RowanMumsnet · 13/01/2021 11:49

Hello - as you've seen from the other thread (please do post on it, it didn't occur to us any group of MNers would feel they couldn't) we're collecting ideas right now for what MNers think the government can usefully do, right now and in the months ahead, to relieve the pressure on all parents.

We've already got a line in that on the desperate need for an urgent plan for special schools and a need for the DfE to lay out expectations for remote learning for children with SEN in mainstream schools, but we're sure you'll have further suggestions and refinements so do please contribute them.

Watch this thread for updates

Tap "Watch" to get all the latest updates

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