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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

horrible mouth ulcers

86 replies

coffeelover3 · 18/09/2020 09:45

Anyone any cures for mouth ulcers? I have about 3 on the tip of my tongue, and then big ones on the sides of my tongue, 4 under my tongue and 2 clusters on my lower lip - inside. Kept waking me up in the night it's stinging so much. I've been putting bonjela on them, and doing a corsydol mouthwash, but in agony. At work all day today and I cant talk properly! TIA

OP posts:
nearlynermal · 19/09/2020 09:17

(Sorry, should have RTFT but, as you see, another vote for Difflam)

Thisbastardcomputer · 19/09/2020 09:46

My sister had your problem 10 or so years ago. It was horrendous, some days her lips were welded together and she had to visit A&E to prise them open. She was under a specialist dental hospital, herself and a male Dr were plagued with this, his was diagnosed as being particularly bad after his summer holiday, France and red wine. The cause of her flare ups wasn't established.

I can't remember the name of the illness the hospital gave it but it was autoimmune. She was given thalidomide over a long period which cured it.

She wasn't planning anymore children so thalidomide was an option. It was an awful period for her, lots of pain, time off work and not going out as her face was such a mess.

stoppingstones · 19/09/2020 10:24

Hi dentist here. I'd recommend seeing your dentist rather than your doctor in the first instance. We are highly trained at spotting ulceration a that might be precursors to, or indeed, may be mouth cancer. We can refer to oral medicine,or even an allergy clinic if required.
The main causes are- viral ( could be any virus, but herpes/hand, foot and mouth etc can cause lesions)
It could be trauma related- a burn from a hot cheesy pasta or eating some hard crusty bread are common causes, as is cheek biting or getting a hard knock.
Lack of vitamin B can be a cause, so supplements can be helpful, you might want to get blood tests to check. Other causes include autoimmune diseases, allergies to certain foodstuffs etc. Dry mouths can cause ulcers as soft tissues tend to be more fragile.
However there are some people that are just prone to them, and there is no obvious underlying cause.
It can be hereditary.
Some of the over the counter preparations are quite good for taking the sting away, such as difflam mouthwash, gengigel or anbesol. I don't really rate bongela.
Corsodyl mouthwash tends to work for some, as does a salt mouth rinse.
However, generally I find that the only thing that really speeds up recovery are steroid based preparations. You can get hydrocortisone lozenges that you suck that help, however it is notoriously difficult to keep the lozenge bear the sore bit.
You can get soluble Steroid preparations that you can make into a mouthwash and use it to rinse around your mouth- betamethasone is the one that springs to mind. This is prescription only and your dentist or doctor can provide.
For me, the best treatment there ever was, was a preparation called adcortyl in orabase. This was amazing. It usually killed the ulcer overnight. It had been discontinued (due to funding?) about 11 years ago, and I'm gutted. You can still get it in the Southern Hemisphere- Australia, Hong Kong, Thailand to name a few places. Theoretically you could order and ship them over, but then a 5g tube would cost £23!!!!
One trick I've seen some do is mix up a steroid lozenge in orabase paste, ( the plain paste is still available in U.K.) and maa as me their own version. The paste is great for covering and protecting the ulcers area.

Another thing to get your dentist to check is if you are grinding or cheek biting and this is causing trauma. If that's the case, sometimes a simple mouthguard/night guard can help.
Certain foods and products can exasperate ulcers, some examples are cinnamon, sodium laureth sulphate, which is commonly found in toothpastes, and a preservative called sodium bisulphite, which is hard to avoid as it's in most processed foodstuffs.
Alcohol doesn't help, and artificial sweeteners and benzoic acid in fizzy drinks are common culprits too.
They are really nasty, and actually a bad bout hugely affects your quality of life.
There are other more hard core treatments, but they would be left to the oral medicine consultants to organise.
I hope this post has helped!

stoppingstones · 19/09/2020 10:26

Noticed a few posters above recommending cinnamon? Please don't try this, as this cinnamon can actually be a cause of ulceration

nearlynermal · 19/09/2020 10:28

@stoppingstones great post, thank you. Yes! The miracle paste I had was called kenalog in orabase - wonder if that was adcortyl? I've long since crushed the last tiny fragment out of the tube and wish I could get more.

Gingernaut · 19/09/2020 10:32

Anbesol liquid. Get a cotton bud and dab each ulcer directly.

Ulcers are an indication of being anaemic, stressed and run down.

B vitamins, iron, vitamin C, better diet and solid nights sleep.

Also, check your symptoms with the Covid checker.

Your changed sense of taste could indicate something in that direction.

greyinganddecaying · 19/09/2020 10:34

I had really bad mouth ulcers once and ended up going to the GP who prescribed some antibiotics as it was so bad.

A week later there was no change so I went to a dentist who recognised it immediately and gave me some different antibiotic which eventually did the trick. It was horrible at the time.

ouch321 · 19/09/2020 10:37

Hold an unlit match head to them. Odd but it numbs them. The white matter will turn grey then black and then kind of dissolve away. You might get through 2 or 3 matches per ulcer.

stoppingstones · 19/09/2020 10:38

@nearlynermal yes. Kenalog is the same as adcortyl. The generic name of the drug is triamcinolone acetonide in orabase paste.
It was the business!

boatyardblues · 19/09/2020 12:20

Stoppingstones - That was such a great post I have copied it to DH, who gets mouth ulcers. Thank you!

FancyAnOlive · 19/09/2020 15:44

Another vote for Vitamin B complex supplement. I get terrible ulcers inside my mouth and on my tongue - I happened to read that Vit B might help and I had one on my tongue and more on the way, bought some Floradix and they were gone within a few days. Normally I have them for a couple of weeks and they are so painful I can't eat or talk properly.

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