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Original poster

Experience of pancreatic cancer?

72 replies

marmite92 · 26/03/2020 12:28

My lovely mum has pc, she's only in her fifties and had it a couple of years now but she's been very poorly recently, does anyone have any experience of what to expect? I had buried my head in the sand for a long time because she's been coping well but it's getting worse now. The worst of it is I cannot see her at the moment because of coronavirus Sad it's so shit

OP posts:
maggiecate · 26/03/2020 12:40

Hi Marmite, you might want to try the discussion forum on Pacreaticcancer.org.uk - they have nurses who will be able to answer any questions you have. Flowers for you and your lovely mum

www.pancreaticcancer.org.uk/information-and-support/support-for-you/speak-to-a-nurse/our-discussion-forum/

JuiceItGood · 26/03/2020 12:43

I'm sorry about your Mum.

Unfortunately the only experience I have of pc is not good.

Is she having treatment?

My advice would be to video all a lot, several times a day if you both want.

Original poster
marmite92 · 26/03/2020 13:10

Thanks both, will have a look at that website. Yes she had the whipple a couple of years ago then had a recurrence last year and has been on chemo since which she has tolerated really well, but she's just had to go into hospital because of sickness and stomach pain and hasn't eaten properly for weeks, does this mean it might be a blockage?

OP posts:
helpmum2003 · 26/03/2020 16:57

Marmite I'm so sorry to hear this. Unfortunately the prognosis for pancreatic is often poor. I would plan for the worst just in case. It's an awful time to be ill.

SlipSlidin · 26/03/2020 16:59

My neighbor had it 10 years ago, he’s about 60 now, made a full recovery. Wishing you well x

RETIREDandHAPPY · 26/03/2020 17:48

My busband died of PC four years ago. He had the whipple too and recovered quickly from that. However, his body could not handle the full doses of chemo drugs. He was well for about 10 months but then grew increasingly tired. He slept a lot but had no pain. His death was peaceful.

I am very sorry for your situation. Hopefully, your mother's current situation will be resolved to make her more comfortable. It must be very hard for you to be apart at this time.

Original poster
marmite92 · 26/03/2020 21:17

Since writing her condition has taken a huge turn, her symptoms recently have been from a perforated bowel and she's in septic shock now in intensive care Sad we have been told she is dying. I have no idea how I am going to her by without her

OP posts:
LowerLoxleyAmbridge · 26/03/2020 21:19

I am so sorry to read your update Flowers

dontdisturbmenow · 26/03/2020 21:21

So so sorry marmite, it must've devastating not to be by her side. What a tragedy. My thoughts are with you.

Isadora2007 · 26/03/2020 21:23

I’m so sorry to hear that @marmite92, I hope she has a peaceful and pain free death. Flowers

Darbs76 · 26/03/2020 21:25

Hi, there’s a really supportive group on Facebook called UK whipple warriors. I’m a member as I have chronic pancreatitis and had my surgery due to that but the majority of members have pancreatic cancer. Many with a recurrence. Sadly it does have a high recurrence rate. It might not seem like it but your mum is in the lucky group for qualifying for a whipple as for many the cancer is usually widespread by the time it’s detected. Sadly pancreatic cancer survival rates have not changed over 40yrs. It doesn’t get the same kind of financial support as other cancers. It really needs it though

Elieza · 26/03/2020 21:26

So sorry to hear the sad news OP Flowers

Darbs76 · 26/03/2020 21:27

Oh marmite I’m so sorry to read your update. Sending lots of love to you at this terrible time

Original poster
marmite92 · 26/03/2020 21:27

Fortunately I am able to be with her just have to wear masks, very relieved to be by her side, thank you all, it's been a terrible shock, only last night we had a normal conversation and talked about going for walks together during this lockdown x

OP posts:
Sturmundcalm · 26/03/2020 21:27

so, so sorry. hoping that she is oblivious and that you find a way to deal with this happening, especially in such terrible circumstances. i'm sure the hospital staff will do everything they can to help and comfort her.

Welshmaenad · 26/03/2020 21:29

I'm sorry you are going through this.

I lost my mum to PC six years ago. Her GP misdiagnosed as gallstones so by the time she was diagnosed she was too unwell for chemo and we lost her less than four weeks later. It's a vile, vile disease. I can't imagine how difficult it must be dealing with thus in the current climate.

namechangenumber2 · 26/03/2020 21:30

So sorry Marmite Sad

Almahart · 26/03/2020 21:30

So very sorry to read this @marmite92. I’m glad you are able to be with her. Hugs to you Flowers

Sweeetness · 26/03/2020 21:34

So sorry @marmite92 Flowers I’m so glad you are able to be with her. You are both in my prayers.

Jellybean27 · 26/03/2020 21:42

So sorry marmite :(

eaglejulesk · 26/03/2020 21:43

Thinking of you @marmite92 Flowers Flowers

SlipSlidin · 26/03/2020 21:44

I’m glad you’re there for her. Can’t imagine how difficult this is for you. Love to you xx

DramaAlpaca · 26/03/2020 21:44

I'm so sorry. I have experience of this nasty disease within my family, so I'm aware of how awful it is. I'm glad you are able to be with your mum Flowers

twoheaped · 26/03/2020 21:46

Oh marmite Sad, sad times.
Glad you can be with her, that must be a comfort for both of you.

Flowers
tinkerbellla · 26/03/2020 21:48

Really sorry to hear this xxx

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