Hematology doctors

[maggie222]

Any hematology doctors on here that can have a quick look at some results.

Background: my son had 2 x bone marrow transplants in childhood. Just been transferred to adult services and 2 different consultants have said his hematology results are abnormal and referred back to his BMT doctor who is not getting back.

Son has recently gone downhill will lots of infections, nosebleeds and just sleeping constantly. His mental health has declined massively this past week and GP just asked for him to fill in a form at reception then a telephone consultation.

My gut feeling is screaming at me like it was he was a baby, took 18 months for diagnosis then he was seriously ill.

I would be grateful if somebody could take a quick look.

It sounds like you are making progress. I have been in a similar situation with my child, once they reached eighteen. I had to be very pushy to get the treatment they needed, it was difficult as it’s not in my nature to be so.
I sympathise with you and I hope everything resolves soon.
Your son is fortunate to have a mum who will fight the system for him.

I just want to say that you sound like a really fabulous mum. Thinking good thoughts for you both x

So glad that you have made some progress for your son . I’m a doctor and did wonder whether the secretary was being a dragon - was sure the consultant would want to know that he is having problems.

Glad things have been looking up

Well done op, so pleased to hear you've made progress.

So glad to see this OP! Hopefully his chimerism and neutrophils come back fine and you can put your mind at rest. It sounds like you have been battling on all fronts, well done for being so strong for your DC

Just a quick update to say his appointment at hematology was cancelled this morning as they are still waiting for some of his blood results so it is postponed until Thursday next week, I am hoping this is a sign that it was a thorough set of bloods so happy to wait.

He had a university interview midweek which went as good as can be expected. Just hoping for an offer letter. The night before was awful though and I was up until 3am with him as his whole body was shaking, he has had quite bad side effects from the medication from the GP, mainly nausea and feeling jittery but that was the worse I had seen him. We got through it and got him to the interview so happy with that as it is his preferred choice.

His college have been checking in to see how he is doing and the past day or so I think I can see a little of the old him coming through, he has also said he will engage with college next week and they have said they will ease him in and get extra help to assist him. I don't think he would cope with full time due to his energy levels so will take it gently.

Hopefully the side effects will start to subside soon and I will update you all with his results next week.

Thank you for all your kind words.

Fingers crossed for next week

Hope things go well next week op

@maggie222 how’s your son doing? I’ve been thinking about you both

Hope the blood tests were ok OP and the counselling is helping him