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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think that actually, autism can be a bad thing and it's okay to say that?

505 replies

User172818289 · 06/10/2019 14:44

My DS (5) was diagnosed a year or so ago. He is almost completely non-verbal, not potty trained and not looking like he will be for a while if at all, has to go to a special school and doesn't really interact with anyone much. We have basically accepted that he is not going to be able to have a 'normal' life, although we do things to make his life enjoyable and easier!

New colleague at work, started at the beginning of September has a son about the same age as DS. She asked what school he went to, so I explained that he has autism and goes to a SS. She goes 'Well autism isn't a bad thing' and goes on to talk for about 20 minutes about her autistic brother, who has 2 degrees, a girlfriend, a reasonably normal sounding life I would say.

Of course we love DS with all our hearts but I can't help sometimes wishing he didn't have autism. I tried to say something along those lines to colleague, I said something about yeah but he can be challenging sometimes and she said that I shouldn't define him by a label and there are no limits on what he can do.

AIBU to think actually autism can be a bad thing? I am not trying to offend anyone on here, please feel free to take this down if anyone is offended.

OP posts:
SnuggyBuggy · 10/10/2019 18:30

I suppose we could turn this around by asking how should those struggling to cope with a family member or partner with autism talk about what they are finding difficult?

There are all sorts of safe spaces needed for people to vent even if not everyone is going to like what is said

x2boys · 10/10/2019 18:33

Absolutely Snuggy and I am on various Facebook groups for parents of children with disabilities which are helpful

AllDaySnacker · 10/10/2019 20:37

Not unreasonable at all. It is a spectrum, and I don’t believe people in general would choose to have autism given the option. It will be worse for some but i don’t think it is right to wave it off as ‘not a bad thing to have’.

doublebarrellednurse · 11/10/2019 07:38

My husband is on the autistic spectrum. It's more sheldon like than I ever really appreciated.

I love him. But it's not always fun and the impact on his mental health has been very severe at times.

YANBU.

It reminds me of that poem welcome to Holland

www.ambitiousaboutautism.org.uk/talk-to-others/2015-04-09/welcome-to-holland-poemcoping-with-diagnosis

It's kinda twee at times but sums it up very well

Booboostwo · 11/10/2019 09:43

I'm out.

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