Not advice as such but when I first joined (I'd lurked a bit before joining) dd was in hospital EXTREMELY unwell and I was very worried about her, it was an unusual reaction to a "normal" infection that most people only require an over the counter treatment for...
But because of her disability it took hold in her system FRIGHTENINGLY fast and she went downhill very quickly, losing a lot of weight (she is VERY slim and can ill afford to lose any! Iirc she lost about a stone in a week!) because she literally couldn't swallow even her own spit, she was swollen all over, very high temp and ended up on 3 drips, one of which antibiotics but she ended up not responding to the first antibiotic prescribed and continuing to go downhill.
I have fuck all support system (my mum actually badly let us down at this time).
Because I didn't have a car at the time (I have a license but due to meds couldn't drive) and the hospital where she ended up (not our local one as they didn't have the specialist hcps needed) was very difficult to reach by public transport and my own health is poor too, the hospital let me stay with her and very kindly gave me a bed to sleep in too. Except certainly the first 4/5 nights I couldn't sleep because I was worried sick about her, because her throat was so badly swollen I worried about her stopping breathing or choking. A WONDERFUL mner kept me company by pm and even managed to make me smile on occasion.
It was an awful time but I will NEVER forget the kindness of that mner who truly helped me get through a VERY dark and scary time.
Dd has since recovered thankfully and says she barely remembers much of her stay in hospital (she was on pretty strong painkillers too) but I definitely do. We are both really cautious when she gets a "normal" infection though and she is very careful herself to take care of herself hygiene wise and if she gets even the slightest cut or graze or other issues that can lead to infection she cleans it thoroughly (the whole situation started basically because she very very slightly cut her gum opening bloody packaging with her teeth!) and certainly if she gets a fever she goes straight to dr (as per her specialist for her disability's instructions following this incident, it's not on a whim and she's not 'wasting Nhs resources' it's what we've been told to do and gp has no problem with this).
I've never felt so alone as that first night with her in hospital when she looked so very sick and the hcps weren't entirely sure what was going on yet.
To the pp who mentioned, we also had a night of dd screaming and we had NO idea why and were almost at point of taking her to a&e, I called my lovely (sadly now ex) mil (not everyone's mil's are awful - but my ex's was! My mums a challenge!) who suggested the hair around a digit theory - and right enough around one of her toes was a single hair that was digging in!
I do remember one hilarious thread/incident where the op had posted asking for budget advice, I've been operating on tight budgets pretty much all my adult life so was happy to help and spent a fair bit of time writing advice and checking on certain things for the op - at which point the op (who as it turned out had a significant income and was basically frittering money away on crap!) basically turned on me and said I'd clearly never been on a budget in my life and was posting from a perspective of being a privileged person!! This happened while I was busy and not reading/posting and another poster very familiar with my username and background 'came to my defence' bless her! I'm from a working class scots background with an alcoholic father (so whatever income we had much was pissed away!) who has mostly worked nmw type jobs and for the last 16 years I've been a single mum in receipt of benefits (even when working full time)! So yea - I'm really 'privileged' 😂😂😂