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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

To take 1yo DS to the docs because I have a "bad feeling"?

118 replies

Hmmmmminteresting · 27/08/2019 20:39

I wish I knew why I have this awful gut feeling all the time that something is wrong with my 1 year old. I feel terrible even writing it - like I will make it come true.
Ds is 16 months and up till 4 months ago was a perfectly happy healthy boy.
Gradually he has changed and now hes like a different child. He cries all day every day. He has gradually stopped eating pretty much anything. Refuses most meals and snacks even things he loves (today he pushed away the handful of buttons I offered). He will drink cup after cup of water.
He was a fantastic sleeper, now he cries for over an hour at bedtime and then is up through the night sobbing.
He has constant high temperatures. Usually between 38-39.5 at least 3 times a week. We can bring it down with meds.
He has repeat chest infections and is now on daily medication to open up his airways (no history of anything in our families chest related and we dont smoke) and is under a paediatrician but isn't due back for 4 more months.
Developmentally he is switched on. He recently started to walk and will copy a lot of what we say.
I just miss my happy child. I feel like something is wrong but I have no idea what. I feel like if I go to the docs and say this they'll just laugh me out as this is just a grumpy baby.
What do I do! I'm at a loss. It's really getting to me now.
Just to add, I have a 3yo who is perfectly fit and healthy and have never had concerns about him.

OP posts:
mumsiedarlingrevolta · 28/08/2019 20:36

Fingers crossed OP

wish I'd have had mumsnet back in the day as DD suffered horribly and she recovered immediately when stopped.

hope your DS finds relief

BeverlyGoldbergsHairAndJumpers · 28/08/2019 21:53

And how are you? Do you feel happier?

Original poster
Hmmmmminteresting · 28/08/2019 21:53

Hi @mumsiedarlingrevolta, was she on Montelukast also? If so at what age? This is his first day off it in 7 weeks. Praying we notice a big difference soon

OP posts:
Original poster
Hmmmmminteresting · 28/08/2019 21:55

@BeverlyGoldbergsHairAndJumpers I feel so much better thanks. Not going to lie I sobbed like a baby to the gp. It was a relief to get it off my chest and to be taken seriously. This gp is early 30s with toddlers herself so was definitely a good one to get! Thank you for asking :-)

OP posts:
perplexedagain · 28/08/2019 22:09

Jesus Christ OP I'm sorry you've had to go through this. It sounds horrific and I can't believe that the paediatrician didn't warn you about side effects of this magnitude /things to watch out for. I would be deeply unhappy about this .... I've just googled it and can't believe what was coming up in terms of restrictions / warnings etc

PapaShango · 28/08/2019 23:07

Glad to hear you managed to see a doctor op. Fingers crossed it’s all ok from now on.

Wilmalovescake · 28/08/2019 23:16

Bless you OP, don’t beat yourself up. Sounds like you’ve done so much for him. Hope this sorts it.

Dontdousernames · 28/08/2019 23:47

You are absolutely doing the right thing. Hope your baby is feeling better soon! However if the symptoms persist, I would definitely recommend asking for him to be seen by a respiratory specialist to make sure there is no underlying lung condition causing the persistent infections and mucus. Some conditions such as bronchiectasis are not easy to diagnose; but cause symptoms such as excess mucus production, chest tightness, feverishness, etc. These conditions are quite rare, so hopefully not affecting your baby, but better to be safe than sorry! Best wishes

MollyButton · 29/08/2019 00:25

Oh - don't worry about sobbing. My worst one was over the deputy head at Infant school - and it was all over a green dress.

jacks11 · 29/08/2019 00:51

OP

As a dr I would strongly advise you see your GP (or paediatrician but suspectvtgat will take too long) before suddenly stopping your child’s asthma medications. Especially as you are basing that decision on the advice of people on this forum who do not know your child’s Medical history and have not seen or examined your DC. It is not a good idea- you need to exclude other causes for his symptoms and have a plan as to what you do next- even if this is that you will stop and see what happens- but you do need to have a “what do I do if DC’s respiratory symptoms worsen suddenly” plan in place. Anything else is irresponsible.

I have no doubt those posters advising you to stop his medication are well intentioned, and possibly even well informed the the side-effects of montelukast. It’s certainly something to discuss with your GP/paediatrician. But anyone who is advising you to stop medication on the basis of the info given here are being irresponsible and I’m quite surprised about it TBH.

jacks11 · 29/08/2019 00:53

Sorry OP- posted after reading 3 only a few pages. Glad you saw your GP quickly- definitely the right thing to do.

bodgeitandscarper · 29/08/2019 20:29

So pleased you've been to the gp and she sounds as if she's covering all bases, which is great. I hope your little one is feeling better soon. Flowers

Wherearemycrayons · 29/08/2019 20:35

Glad you got a decent GP, OP. Hoping the tests reveal nothing and that it is just the Montelukast. Poor baby

lifecouldbeadream · 29/08/2019 21:17

No idea about the Montelukast,but has anyone thought reflux/CMPA? Could definitely cause respiratory issues......

Isleepinahedgefund · 29/08/2019 22:12

I had terrible mood side effects from montelukast - shame as it was one of the best meds for asthma I ever had. Not worth it though. Glad you've got him off it and hopefully he will be back to himself shortly.

PonderingPanda · 30/08/2019 09:39

@Hmmmmminteresting - how are things?

SinkGirl · 30/08/2019 09:47

So glad to read all the updates OP, hopefully it’s that simple. If not, keep pushing. It’s awful when your child is unwell and you don’t know why. My DT2 has complex medical issues and also does the frequent drinking and urinating but definitely doesn’t have diabetes (he has hypoglycaemia but never hyperglycaemia). They are investigating him for a much rarer condition called diabetes insipidus. I’m not saying it’s anything like that, just saying there can be many causes for common symptoms and just ruling out the most common isn’t enough sometimes. Hopefully by the time you see the paed you’ll know if it’s this medication or not and they can run further tests.

The blood sugar level he had is well within normal range so that’s good (I’ve forbotten what normal is, that would be high for my son but he’s always low!)

Original poster
Hmmmmminteresting · 30/08/2019 20:41

Another update... it's all gone a bit hectic since my last post.
So yesterday I received a call from a registrar at a hospital 40 mins away saying they'd had an email from my gp (sent to the paediatrician who we've been seeing regarding asthma) and he had sent it to the registrar at that hospital. We were asked to go in immediately, without hesitation.
I am still unsure what they were looking for exactly but apparently the gp had expressed she was very concerned.
On arrival he was admitted straight away and a urine sample was obtained and dipped (it was normal) then straight down to chest xray (also normal) and then a full set of bloods (5 tubes. Absolutely nightmare to obtain).
We waited hours for the results and when they came back the only result that was abnormal was his urea, part of the kidney function test.
It was 8.4.
They told me that's too high and is the urea level of a very very dehydrated child but obviously one of my concerns is the amount he drinks!
I'm so confused.
We were allowed out at 10.30pm last night and had to go back today to have that particular blood test repeated. We weren't kept in we left straight away. I've heard nothing since.
Do I chase it up?
What does 8.4 even mean!? I'm so confused!

OP posts:
HavelockVetinari · 30/08/2019 21:22

A quick Google tells me it could be a blocked urinary tract, a UTI or a kidney infection. It can also be linked to heart problems but your DS is very unlikely to have any at such a young age.

I'm really glad the GP referred you straight to the hospital, hopefully your DS will get a diagnosis and treatment quickly. Best wishes Flowers

1FineDane · 30/08/2019 21:26

I read your post OP and immediately thought asthma. I see that he has been diagnosed with asthma. You need to unfortunately accept this.

1FineDane · 30/08/2019 21:28

Anything else going on is a separate issue. But you need to accept that she has asthma.

Original poster
Hmmmmminteresting · 30/08/2019 21:31

@HavelockVetinari thank you. I'm just baffled by the recent blood test but may call them to see if today's results are back.

@1finedane I'm confused by your post. I dont not accept that it is asthma. He is very young for that diagnosis but he does have a lot of the symptoms. He is off his medication now with the blessing of every doctor weve seen the last 3 days (I think that's 5 now) and hes been given a brown inhaler as well as his blue one

OP posts:
1FineDane · 30/08/2019 21:54

I dont not accept that it is asthma.

hes been given a brown inhaler as well as his blue one

Safe to say it's asthma. Whatever else is going on they will investigate.

Original poster
Hmmmmminteresting · 30/08/2019 21:56

I assume you didn't read any of the updates on page 3 or 4

OP posts:
1FineDane · 30/08/2019 21:59

You need to try to understand that with asthma, you can't sleep - child or adult. It's a horrible condition for the sufferer which is very easily treated. You need to buck yourself up in that regard. As for whatever else is wrong, I hope you find out soon.