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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

To take 1yo DS to the docs because I have a "bad feeling"?

118 replies

Hmmmmminteresting · 27/08/2019 20:39

I wish I knew why I have this awful gut feeling all the time that something is wrong with my 1 year old. I feel terrible even writing it - like I will make it come true.
Ds is 16 months and up till 4 months ago was a perfectly happy healthy boy.
Gradually he has changed and now hes like a different child. He cries all day every day. He has gradually stopped eating pretty much anything. Refuses most meals and snacks even things he loves (today he pushed away the handful of buttons I offered). He will drink cup after cup of water.
He was a fantastic sleeper, now he cries for over an hour at bedtime and then is up through the night sobbing.
He has constant high temperatures. Usually between 38-39.5 at least 3 times a week. We can bring it down with meds.
He has repeat chest infections and is now on daily medication to open up his airways (no history of anything in our families chest related and we dont smoke) and is under a paediatrician but isn't due back for 4 more months.
Developmentally he is switched on. He recently started to walk and will copy a lot of what we say.
I just miss my happy child. I feel like something is wrong but I have no idea what. I feel like if I go to the docs and say this they'll just laugh me out as this is just a grumpy baby.
What do I do! I'm at a loss. It's really getting to me now.
Just to add, I have a 3yo who is perfectly fit and healthy and have never had concerns about him.

OP posts:
youarenotkiddingme · 27/08/2019 21:18

Periodic.

Original poster
Hmmmmminteresting · 27/08/2019 21:19

@youarenotkiddingme seriously? That's worrying! What kind of issues have you known others to have?

OP posts:
ElphabaFlies · 27/08/2019 21:21

The drinking a lot makes me concerned about type 1 diabetes. Probably not, but please get him checked.

ihateaparade · 27/08/2019 21:24

Singulair can cause mood issues. My son was on it for 3 weeks when he told me had started feeling "sad"...took him right off of it. My boss had emotional issues on it, as well. There are plenty of other meds he could be taking. My son was always ill as a child - bronchiolitis as a baby, then ear infections and pneumonia. We've done our time with Albuterol nebulizers and inhalers - occasional rounds of steroids. We finally had his tonsils out - no problems since. Wish we'd done it before he was thirteen...I'd definitely get him in to see a specialist. All of the doctors are so reluctant to use antibiotics now that it winds up causing more problems for the children who really need them. They wait too long to prescribe them and then don't give them enough to knock the infection out. In my son's case, his dr. said that he most likely had pockets of bacteria in his lungs that "re-activated" when he was catching an ordinary cold - in his case it always wound up turning into pneumonia.

PapaShango · 27/08/2019 21:26

Hmmmmminteresting

I do, yes. My twins were born prematurely at 27 weeks and they have been on montelukast since they were a year old. They don’t have asthma but have viral wheeze due to premature lung disease. They’re 5 now so growing out of it. We give it to them as soon as they start showing signs they may be getting a cough/cold/runny nose, in the summer. In the winter, the doctor advised us to give it to them every day.

Although I advise you to see a doctor as soon as possible, a lot of the things you mention are potential side effects of montelukast. It affects people on different way. My twins did have bad dreams for the first few months but these stopped after they got used it it. Also, montelukast works better over time. It may now seem like it’s working but it’s helpijg to keep the airways open overnight. That’s why they advise you to take it at night, before bed. It won’t help with the cough or cold if that is the reason for the wheeze. It will just keep the airways open.

I’ll link this study and you can also have a look on the medicine list about the potential side effects

snacksafely.com/2017/09/lifesaving-asthma-drug-linked-to-nightmares-and-depression/

Please go back and tell your doctor that your dc is experiencing some of the negative side effects, he may be able to try another medicine. One of my twins is now also on the brown inhaler

cookiemonster5 · 27/08/2019 21:26

Take him back if your not happy and worried.

Re the montelukast, I've never met a single person who has ever had any side effects from it. My husband has been on it off and on since he was a baby and is on it now, my middle child is on it twice a year to help control his asthma and my 2 year old had been on it for over a year and will be on it probably for the rest of his life as needed.

Do not worry about that but if you think they are connected then mention it to the gp.

It can take up to 6 weeks to start working too so you need to bear that in mind when trying to see if it's working.

PapaShango · 27/08/2019 21:27

Sorry I know that’s a bit of an essay, but with my twins being so sick at the beginning, I did a lot of research. Also, you say he cries a lot at bedtime, this could be a sign of nightmares. He’s just not able to communicate that to you yet

Mishappening · 27/08/2019 21:28

I am married to an ex-GP. He always swore by mother's instinct. Go and see the GP.

PapaShango · 27/08/2019 21:29

cookiemonster5
Just because your dc didn’t have any side effects, doesn’t mean that’s the same for everyone. I have identical twins and they both react to it differently.

TowerRavenSeven · 27/08/2019 21:29

I have a friend whose dad was on Singulair and she was like this but at 8-10 years old. They took her off it and she was like a new child.

Original poster
Hmmmmminteresting · 27/08/2019 21:29

I've just googled Montelukast side effects on children and am sat here in tears, like I've done this to him. So many people seem to have had similar issues and it really does coincide with when all if these problems started. I will take him to the gp tomorrow but in my head, as of tomorrow he womt be taking these meds anymore.

Thanks so much everyone who has commented, I am so glad I posted now.

OP posts:
TowerRavenSeven · 27/08/2019 21:30

Not Dad, dd

mumsiedarlingrevolta · 27/08/2019 21:31

OP I would immediately stop singular/montelucast and see.

some ppl find it amazing-my experience with DD was horrific-she was older-12 when it all happened but a very dark time for her

Original poster
Hmmmmminteresting · 27/08/2019 21:31

@PapaShango I'll read that link now. Thanks.

Hes been on these meds almost 4 months. It really does make so much sense.

OP posts:
mumsiedarlingrevolta · 27/08/2019 21:32

please dm me if you want-am still upset about it years later-

Original poster
Hmmmmminteresting · 27/08/2019 21:33

@mumsiedarlingrevolta I'm sorry to hear your daughter reacted so badly. I honestly had no idea, as far as I was concerned it was just a harmless bit of medicine that would help his chest.
I definitely will be stopping, I'd do anything for my happy baby back right now

OP posts:
81Byerley · 27/08/2019 21:33

About the mentions of teeth. When my eldest son was a baby, the doctor noticed a little rash and asked about it. I said "Someone said it might be his teeth". The doctor replied "In my experience Mrs 81, the only thing babies get from teething, is teeth. Children are teething for nearly three years in all, anything else that happens to them is coincidence, they're bound to get coughs colds, rashes infections in that time".

Nannewnannew · 27/08/2019 21:34

Flies i Also thought of type 1 diabetes when I read that the baby was drinking large amounts of water. OP, I agree with other posters that you need to take your son back to the GP.

Glurf · 27/08/2019 21:34

I would bet its the Montelukast too. It's very common to have awful side effects. Some people have none but many many do.

It's not your fault though so please don't blame yourself.

Glurf · 27/08/2019 21:37

I think it can be miraculous for some symptom wise so you may well need medical supervision to take him off it as he might need alternative meds.

However it did 0 for my dc, so came off it fine.

Dontlickthetrolley · 27/08/2019 21:37

I was going to suggest UTI, if he's drinking loads, he'll be weeing loads and although my son was only 4 weeks when we ended up in hospital, 48 hours of iv antibiotics he came out of the children's ward a new baby.

ChiaraRimini · 27/08/2019 21:39

This seems a bit odd to me. Not a doctor but had a wheezy baby and was told that it is impossible to diagnose asthma in under 2s. In tinies their passages can get very easily blocked with coughs and colds.
First line treatment for us was an inhaler. Has this been tried for your LO?
Repeated high temperatures suggests there is something wrong and he definitely needs to be seen by the GP again ASAP.

PapaShango · 27/08/2019 21:40

Please don’t blame yourself. It’s not necessarily a bad drug, it just doesn’t suit everyone. You weren’t to know. When it works, it’s very helpful. If you’re one of the unfortunate ones who has the side effects then ask the doctor to try something else. Don’t beat yourself up for it. It’s highly unlikely your dc will have any lasting damage

BeverlyGoldbergsHairAndJumpers · 27/08/2019 21:42

You didn’t do this to him. You were trying to make him better and you didn’t know the bad side effects of the medicine.
Don’t feel bad.

cookiemonster5 · 27/08/2019 21:42

@PapaShango and just because your twins do doesn't mean others don't. Don't scare the poor lady she is worried enough.

Had anyone read the side effects on paracetamol? If you did you would think long and hard about taking them but I bet none of us can tell a story about someone who has reacted to it.