"You deserve it. You've been fighting like this for ages." Bless you for saying so.
Being trapped by my health issues makes me most often feel pretty useless and invisible. I've always been "politically engaged" but I'll freely admit, I knew it was tough, I knew there was discriminatory policies and practice but I had NO IDEA how bad it was until it affected me - it's like parenthood, you don't REALLY know what it's like until you live it)
Then as I've gained more experience myself I've grown increasingly resolute that people need to know.
Sounds hellish what you and your dp are going through.
I was SO NAIVE at the start and believed that mostly, as long as I was "honest" and because I had been a "good person" prior to first claiming benefits that while it may take a short while it wouldn't be a problem getting what the law said I was eligible for... Ohhhh how wrong I was!
From the very first time going to the council to claim because when my ex and I split due to his cheating, I was a sahm at the time with no income of my own except child benefit. (He wiped out the joint account WITHIN DAYS) - the snotty little 18/19 year old who looked me up and down then sneeringly said "another one of them single mum claims yea?" As if being a single mum was a criminal offence!
To WRONGLY being told that I was ineligible to claim as a single mother - because my estranged husband was in the army!
To child benefit insisting on keeping paying into the joint account I no longer had access to. (Took bloody months to get them to pay into right account!)
To tax credits completely Fucking me over with an "understandable error" my first month back in work which left me unable to pay dds nursery fees (VERY lucky parents able to lend to me till it was sorted - not everyone has that!)
To dwp WRONGLY telling me I couldn't as a full time student claim ANY additional benefits during academic year AND messing me up during summer breaks.
To my first claims for disability benefits being pretty much instantly denied (discovered this is VERY Common)
To WRONGLY being told mental illness "doesn't count" as a disability
To WRONGLY being told I was "legally required" to tell dwp exactly what I spend every penny on
To being regularly "inspected" to make sure I hadn't moved a man in - even though there was NO REASON for them to think so, being asked THE most personal questions - which I've since learned they weren't allowed to do!
Huge learning curve learning -
A not to believe what dwp/tax credits/child benefit tell you without triple checking elsewhere
B to not even ATTEMPT to complete the lengthy, very much deliberately worded to make claimants answer in a way that disadvantages them, forms to claim benefits WITHOUT expert guidance (I had done what MANY claimants do [for many reasons, pride, self respect, avoiding giving certain embarrassing details] and described my health based on my BEST day and only including the details that pertained to my main condition, meaning I left out a lot of the difficulties I experience on a daily basis, or didn't describe how bad things could be & often were)
C to not try and mask my difficulties during interviews/assessments - again something people naturally do out of embarrassment etc
D that it's really shockingly common for disability claims to be denied - in hopes that the claimant won't have the resilience, support or knowledge to appeal.