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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think that no one is taking me seriously?

155 replies

HelpMeHelpMeINeedARemedy · 23/07/2019 23:38

I'm 30. I'm a bit of a medical wonder - according to my GP - one of those people where anything is possible medically speaking lol. Over the last few months I seem to have developed intolerances/allergies to something/s. After eating some foods I experience gastro problems/random hives and throat spasms.

It is happening more and more often. My DP got a bit pissed with me earlier when I said it was happening and said "You can't be allergic to everything" Hmm. I said to him "Well no but it's possible I'm allergic to one thing that I keep exposing myself to".

My parents are also taking the whole "It's anxiety" route. DP also said to me this evening "When you had a panic attack earlier" I was like Angry WTH? I had actual, real, physical hives come up!

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HelpMeHelpMeINeedARemedy · 24/07/2019 12:46

@weaningwoes You may have a point about DP. He's very dismissive. Our 3 year old DD is showing allergy signs and he just poo poos it "She's just got a bug" "Maybe she's hot", etc. I took her to the GP myself and am keeping her a food diary.

I'm sorry your DD has been suffering. Poor mite. You sound like a good mum. I was the same as a baby. I had a milk allergy and was constantly crying, of course it didn't help that I had a narrow trachea and couldn't bloody breathe!

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MadamePompadour · 24/07/2019 12:55

Friend of mine was like this and it was a mast cell activation syndrome. She now needs to eat a low histamine diet and take a certain anti histamine.

jennymanara · 24/07/2019 12:57

It is likely to be health anxiety. And this is very common for people with more unusual serious illnesses to have.

ThumbWitchesAbroad · 24/07/2019 13:13

HelpmeHelpme - I had those symptoms too but turned out that it was mostly just Very Tight muscles trapping the nerves, and a shunted C7 vertebra, plus a host of other things wrong with my neck/back.

It was suggested by one of the doctors I worked with because my arm swelled up after I'd done a lot of hammering (house decorating) - but I never had it x-rayed or anything because it didn't happen again, and the osteo fixed most of the other problems by releasing the stresses on the neck/back/shoulders.

I have every sympathy though - bloody annoying!

HelpMeHelpMeINeedARemedy · 24/07/2019 13:20

@ThumbWitchesAbroad Mine was found when I was 13. My mum was putting my hair up and commented how high up one side of my neck/shoulder was. My GP tried to make out it was stress! I only found it I had the rib because I was in an RTA a few months later and had xrays/ct scans.

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HelpMeHelpMeINeedARemedy · 24/07/2019 13:21

@jennymanara It could be. It could be anything I suppose! I will go and see my GP. He'll know what to do!

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Pinktinker · 24/07/2019 13:24

Allergies can spring up randomly at any stage of life. Something you were previously fine with can suddenly start causing issues.

I would begin an exclusion diet. Start with dairy and eggs. If the issues stop then you have your answer. If they continue then cut wheat out and go from there.

Pillowcase99 · 24/07/2019 13:51

Sounds awful and hard to manage. I am quite rashy generally but got a big red one all over my face, scalp and abdomen, and the gp thought it was an internal reaction to a virus rather than an allergy as such. Put me on a small dose of prednisone and it cleared up. Have you been sick with any viruses lately?

ThumbWitchesAbroad · 24/07/2019 13:54

I think, given the info re. MCAS and the link with POTS/EDS, that should be a good starting point with your GP - he/she may never have come across it before.
en.wikipedia.org/wiki/Mast_cell_activation_syndrome - not a bad description, plus there are some useful drugs that might help, so long as they don't interfere with your others.

HelpMeHelpMeINeedARemedy · 24/07/2019 14:05

@ThumbWitchesAbroad Thanks for that. For years he's been saying that he thinks that there's other things going on but because I'm a bit of a minefield he doesn't always know where to turn but this info may help him Smile. I always feel a bit sorry for him as he looks helpless.

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OnGoldenPond · 24/07/2019 14:12

@HelpMeHelpMeINeedARemedy

Thanks, I'm fully recovered now thanks to the emergency operation and the tumour was found to be benign, but surgeon confirmed I was a couple of weeks from it reaching the brain stem which could have led to stopping breathing or heart stopping at any time! Scared the wits out of me and taught me to take control of my own health and keep pushing for a resolution when I know something is wrong.

I'm going with Spike Milligan's wording on my gravestone Smile

happywifi99 · 24/07/2019 14:16

I'm so sorry op, it sounds like you're having a right time of it. I'd be very worried your dp is being dismissive of your very real health problems, whether they're anxiety or dietary problems.

Have you tried telling him how hurtful it is when he dismisses it? How does he react?

happywifi99 · 24/07/2019 14:17

And I do sympathise - 8 years of teachers, parents, family, friends and everyone else telling me I'm a "delicate flower" who likes being difficult and I finally have a diagnosis of a surprisingly common chronic illness. Oh the satisfaction

HelpMeHelpMeINeedARemedy · 24/07/2019 14:18

@OnGoldenPond Oh wow - you must feel relieved now! I hope you're being looked after! My DP wouldn't be phased by me having a tumour either - I swear nothing phases him!!

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HelpMeHelpMeINeedARemedy · 24/07/2019 14:20

@happywifi99 My DP kept telling me that I was like you "a delicate flower" when I thought my heart was being a dick - it was "just anxiety" It was actually a life threatening condition! I was torn between spewing bile and being smug!

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HelpMeHelpMeINeedARemedy · 24/07/2019 14:21

@happywifi99 I have tried yeah but gets me no where Sad

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maddening · 24/07/2019 14:24

Tbh ime people are generally unsympathetic to allergies, regardless of what they are- don't know why as you don't get it for other quite limiting, impacting illnesses/conditions.

EmeraldShamrock · 24/07/2019 14:27

If the problem starts with pasta and bread, why eat an eclaire made with flower gluten products.
My friend is self diagnosed with a ton of allergies, none serious enough to require an epi pen and but enough so she talks about it and analysis everything she eats, she never excludes any triggers to find the source, she can annoying.

borninastorm · 24/07/2019 14:35

Definitely research Mast Cell Activation Syndrome (MCAS).
Have you got EDS or Hypermobility and/or POTS (postural orthostatic tachycardia syndrome)? These are often co-morbid with MCAS.

flouncyfanny · 24/07/2019 14:44

This reply has been deleted

Message withdrawn at poster's request.

adognamedhog · 24/07/2019 15:09

My daughter has strong reactions to food sometimes including awful hives, tight throat. She's treated at a hospital for another condition and they said it is likely when there is too much histamine in food. She takes antihistamines and it calms it but apparently it's not uncommon for people to have to carry epipens when they don't know the source of their allergy.

BloodyDisgrace · 24/07/2019 15:18

I have been keeping a diary - bread and pastry seem to be two of the triggers

sorry if someone has already asked this: could you be intolerant to gluten? I have a friend who have been feeling shit for too long in his 20s and finally someone diagnosed him with coeliac disease and it all fell into places.

HelpMeHelpMeINeedARemedy · 24/07/2019 16:17

@adognamedhog I have been reading about histamine in foods - I didn't even know that this was a thing!

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HelpMeHelpMeINeedARemedy · 24/07/2019 16:18

@BloodyDisgrace I will ask my GP. I'm literally open to the idea of it being anything/nothing at the minute!

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SavoyCabbage · 24/07/2019 17:27

I had a huge reaction to eating one cherry yesterday. I've eaten them all my life without any problems. I could feel my throat closing up and drank piriton from the bottle and it went.

I didn't go to the doctor though. I'll need to be mindful of it and always have antihistamine with me and I'll see if I react to anything else.

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