Doctor keeps fobbing me off! Symptoms, anyone else?

[Ironmansmyhero]

I'm posting here for traffic,

I'm a regular poster, but name change for fear of outing.

I'm literally at my wits end, I'm backwards and forwards from the doctors all of the time. I have a long history including multiple open heart surgeries. All of that is stable atm.
Anyway, I have these symtoms:
Heavy sweating with the slightest of activities, can't even clean the house without excessive sweating.
Red patches that itch on my heads with change of temperature.
Aches In joints.
Nausea.
Memory fog.
Spotty back and face, mostly white spots.
Extreme fatigue and low mood.

That's just a few, but by far the worst. Now I have servere anxiety, but have for a while and I've lived with that, tried medication and nothing works for me. I've had regular blood tests and all fine.

That doctor just keeps telling me they are all symptoms of anxiety and to try mindfulness. I have and I still struggle, the symptoms never get better.
I go back and it's the same thing every time.

Does anyone have a clue, or had any of these symptoms and received a diagnosis?

I just want to cry, I'm a full time student have a part time job and a mum to four kids. I have a burst of energy every so often, but most of the time I struggle to cope and keep up to the house. Oh and I'm a single parent so I get seldom help.

Advice please

Op your symptoms do sound like fibromyalgia.
Pain with fibromyalgia is not always extreme it can sometimes just be a dull ache, and a lot of the symptoms do just come and go, they're not there constantly.
Unless you have rheumatoid arthritis it doesn't tend to show up in blood tests - I would ask to see a rheumatologist who can diagnose fibromyalgia better than a gp.
Good luck OP

Those results are NOT all normal at all. The Mean Cell Volume is raised, could indicate b12 deficiency. The hematocrit is also over range so I wouldn't be surprised if you had both b12 and Iron deficiencies going on at the same time. You need active B12, Folate and a full iron panel with Iron Saturation tested. I'm not a doctor, I had these exact blood results and was dismissed as 'only just over range' when I was on my knees, weak and exhausted. Sometimes if both iron and b12 deficiency are present, they give a picture like yours on the Full Blood count.

@Ironmansmyhero
That blood test looks fairly basic and definitely won't flag up all autoimmune issues. Please try asking them to test for rheumatic / anti-nuclear antibodies which takes a week and probably needs to be sent to special lab. They will also need around 4-5 vials of blood.

I went through years of going back and forth to doctors and my standard blood results (WBS, RBCs) were totally normal. Only one doctor thought of referring me for autoimmunity tests and my antibody titre was off the charts. The good news is that all the symptoms disappeared after starting treatment. I was 26 at diagnosis and 34 now, which is the peak age bracket for autoimmune issues.

I also have anxiety and emetophobia, but I know very clearly which symptoms are caused by anxiety and which are clinical. Many doctors also told me the symptoms must be psychosomatic but deep down you know when something is wrong so please keep trying to fight for the right diagnosis.

@itwaseverthus
Which would explain the extreme thirst and need to urinate

I wasn't linking the thirst/urination with either b12 or iron ironman. A few posts back I asked if your calcium level was definitely normal because high levels of calcium in the blood can cause nausea and a need to urinate frequently, as well as thirst. If you are taking Vit D, it's possible your calcium has gone high. Equally possible you have hyperparathyroidism, which is malfunction of a parathyroid gland (they sit on or around the thyroid gland but have the role of regulating calcium in the body). The nausea and thirst from those small glands being out of whack is horrendous. www.medicalnewstoday.com/articles/322012.php

Not that I know of,
But that would show on bloods wouldn't it?

No I don't think it does - I'm not an expert in anyway so could be totally wrong but I think that is one of the problems with Lyme's disease is that you have to specifically test for it so it's often missed and the symptoms get worse if it's not treated quickly.

I think it has to be specifically tested for.

Most of these symptoms are experienced by people with Hep C so could be worth testing for?

you can do a private full panel thyroid test ( just TSH level is useless) on medichecks on Thursdays is cheaper I think - about £59 - just a finger prick test and you get result in 2-3 days . Its about the range as well as levels and the thyroid uk site will help analyse your tests . It took 5 years before I got mine sorted .

Polycythemia would lead to the sweating and red patches and would also present with a raised hematocrit. It might be worth a mention because it's rare and thus easily missed. But there are other things it can be so it's good you're getting further tests

I've just seen this while looking for something else.

It's worth remembering (all pp) that mild to moderate chronic health conditions can cause anxiety as well as the other way around.

Thyroid, low b12 (pernicious anaemia) and anything affecting metabolism or hormone or vitamin levels, including coeliac disease can impact mental health and actually be a symptom.

Thyroid and b12 especially.

I'd definitely get a thyroid test to rule it out as some of those symptoms sound like hyperthyroidism which with your heart issues definitely will need prompt treatment. Too much thyroxine is bad for the heart. You cannot treat thyroid disorders without close medical support and prescriptions.

Some of the other symptoms could be a secondary knock on effect of the primary issue.

As a pp said, sometimes chronic health issues are diagnoses of exclusion so you may need to return to a Gp and work with them, using the same one can be helpful.

Are there any other symptoms eg are you constipated or rather the other way?

Hair loss?

Hey guys! Sorry its been a while since I've posted. My tests came back and I was right, there has been something underlying all along. Turns out, I have underactive thyroid. Its only slightly, so they may not have wanted to do anything about its before. But my complaint was taken seriously and I have an appointment to be more than likely put on medication.
The frustrating thing is, this isn't the first time I've been misdiagnosed. So obviously I was going to worry.
I feel a little relieved.

Menopause or B12 deficiency

Weird things going on in my body 3 months now. Body chills (afternoon & night) , insomnia, night sweats, fatigue, afternoon sleep , intense boob sensitivity, stronger pms. The doctor said i am not peri as my periods are still regular....all blood test came out ok just a slight high prolactin level(about 100 over) now being booked in for an mri...which has caused me further anxiety.
I think its its just peri but doctors dont think so.dont know what to do

I am 42 years..forgot to add and also forgetful

@Midlif you need to start your own thread, you won’t get many responses to this one