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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

to ask of your experience of a 'thick lining of the womb'?

143 replies

Verynice · 26/03/2019 03:01

So I've been bleeding more or less for about 6 months (occasionally heavy like a period, occasionally clots and in between, just a low level constant light bleeding).

Was referred for an US (Trans abdominal and trans vaginal) which I've had, where the sonographer said that 'there is nothing physically wrong - no mass, no polyps, no fibroids'. I asked was cervix ok and she said yes, everything is fine, it's just the lining of the womb is thick. I asked her what that means and she said it should clear out after a period and that perhaps it was hormonal.

Anyway tonight, not sure why, but bleeding is ongoing and haven't actually heard anything, so I googled 'thick lining of the womb' and managed to find the charity called Eve - which deals with womb cancer.

As you can gather, at 2am in the morning, it's not really the best to be googling!

So, given the scan and that no mass was shown (I assumed she was referring to fibroids or something), does that mean I have the all clear?

Haven't heard a think back, but I suppose it was only about 2 weeks ago. The sonographer had said at the time that they'd probably call me back in 5-6 weeks.

So now I'm thinking - wtaf? The other thing is that the blood stinks to the high heavens. Utterly stink. I'm in constant mild pain, but nothing remotely worth writing home about on the pain scale - just constant pain really.

AIBU to ask you to tell me that you've had similar and that all was good?

OP posts:
daydream123 · 26/03/2019 17:50

Some of the doctors are just hopeless! At least you got your referral in the end.

Original poster
Verynice · 26/03/2019 17:53

Well I'm not going to be written off because it's just 'gynae issues'. FFS.

If it's all good, then all is good. Makes you wonder how many women are being missed? 'Gynae issues'. I'll fucking give him 'gynae issues' up the hole lol. Sorry. Getting angry now. If it's not 'gynae issues', it's an STD. Great! Idiot.

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Original poster
Verynice · 26/03/2019 17:55

This is a bloody GP! Gynae issues are just something to be expected was the attitude! FFS. I'm so annoyed now.

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Original poster
Verynice · 26/03/2019 18:09

Can I just say thanks again to everyone who has posted. I would be sitting here doing nothing if you hadn't all shared your experiences. I sincerely hope that it is indeed 'just' a gynae issue. But if it's not, you have helped me to get checked out and I'm very very grateful. Flowers

I've changed tampon and pad, and if there's flooding again by 7pm I'll call 111.

Sorry to be so needy.

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Cocolepew · 26/03/2019 18:12

PosterPosting, I had a constant heavy feeling , I though it was a womb prolapse. I found it hard to pee and I just got larger and larger. People were convinced I was pregmant.
Heavy, prolonged bleeding, pain, varicose veins.

I had pcos too.
Getting the hysterectomy was the best thing I could have done. I was already in my 40's and past wanting anymore children.

daydream123 · 26/03/2019 18:21

You're not being needy at all, it's so helpful to know that you aren't alone in these things. It is HORRIBLE feeling so unwell, and when you don't know exactly what's wrong and people keep fobbing you off, it all becomes a million times worse.

Fingers crossed you get the proper due care and attention now, but don't be afraid to put them right if you don't.

PosterPostingPosterishly · 26/03/2019 18:22

I'm going to be having my coil removed as it's not helping matters.

Can't understand why my ovaries are hidden?

Scared to have a hysterectomy, I'm early 30's and although most likely finished with having children, it's a strange thought that the choice will be taken away.

daydream123 · 26/03/2019 18:27

Poster, they'll be able to tell a lot more from the hysteroscopy. The imagery is fairly detailed with the camera, they kept encouraging me to have a look myself! Hope it gives you some other solutions Flowers

Original poster
Verynice · 26/03/2019 18:36

Yes, it's a decision that you don't expect to have to make at that age - I would be like 'while I don't want another baby right now, I know myself well enough to know that I may possibly want another baby in 3 years!

I have no idea whether my ovaries are hidden, but doing the abdominal scan, the sonographer said to her colleague 'I can't see the ovaries from here - I'll need to do the TV'.

It's disconcerting to me that it's dismissed that 'it's usually just gynae issues'. Would you say the same to men? 'Ye, it' usually just prostate issues - nothing to worry about'.

Rather annoying. But I recognise that I'm probably being hysterical lol. i.e. reacting to hormones emitted from having a bloody womb!

OP posts:
Jenb2104 · 26/03/2019 18:53

I've just read your updates, I can't believe the attitude of your gp. The flooding you describe sounds exactly like what I had. I would soak through a maternity pad every half hour. The bleeding slowed slightly when laid down at night but I had sleep on a towel, when I got out of bed in the morning blood would literally run down my legs ( sorry for tmi!)
You need to get seen, yes it could be nothing serious but there's a chance it could. You could probably end up anaemic as well, I needed iron tablets for a good 6 months after the bleeding stopped.

Is there a different gp you could speak to?

Original poster
Verynice · 26/03/2019 19:09

Just got off the phone to 111 as I'm starting to feel a bit weak (maybe the annoyance flowed to my brain lol). They have said they'll have a clinician call me back.

There is something about this which tells me that I should actually get to A&E.

No gushes in the past hour so sanitary protection adequate. Pain has ramped up - going to get some paracetamol into me. I'm feeling sleepy but I didn't sleep much last night so that could be why.

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Original poster
Verynice · 26/03/2019 19:14

Ok, now that I've gotten up to get paracetamol I now have flooding again ffs FFFSSSSSSSSSS FUCK OFF.
I haven't eaten today as I feel full. That make any sense? The pain is the kind that makes you pant and frown your face - it's low on the pain scale for me, but I'm sort of blowing to breathe.
Anyway, I've 2 paracetamol in me now. I sound like a proper drama queen. I will update if anyone calls me back.

OP posts:
Namechanger445 · 26/03/2019 19:31

Hello OP,

I had a very similar situation to you. I came off the pill and bled every day for 8 months, back and fourth to the Gp being told I won’t be referred as it’s ‘normal’ after stopping the pill.

We were TTC so I took a private referral and had an ultrasound. Was told by the sonographer that I also had a thickened lining of womb. Googled it when I got home and cried for hours that I either had cancer or would never be able to conceive. Saw consultant a few weeks later and he explained it was probably part of PCOS, my hormones were not as they should be, causing my lining to constantly shed but never empty properly so blood was literally filled in there and was refilling as soon as it emptied (hence the smell, it was old blood). I had a D and C and everything cleared out, I also had my ovaries drilled as were we’re trying to conceive. I started taking metformin for the PCOS and it was fantastic, helped my hormones and 3 DC later it hasn’t returned. Hope that reassures a little?

Namechanger445 · 26/03/2019 19:33

Just to add to the above, I used to regularly not bleed for 23 hours of a day, then 1 minutes I’d stand up and flood my sanitary towel bleeding really heavily and then it would ease off again. It was awful and you have my every sympathy.

Original poster
Verynice · 26/03/2019 19:40

Namechanger you have accurately described EXACTLY what my symptoms are! So for about 10 days I can have constant bleeding. Then nothing for a day until I stand up and then a massive bleed. Then clots coming out. Then nothing but pink when I wipe for 2 days, then back to the bleeding again. It's bloody annoying! Because I can't quite describe it accurately!

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Nnnnnineteen · 26/03/2019 19:44

verynice I am having similar issues. Had a transvaginal scan that has showed a thick lining of the womb but no other issues so am being referred to gynae. I'm beyond exhausted. Cried at the doctor's yesterday and she just told me to take iron tablets. I am so pissed off - I started bleeding LAST YEAR and I have no sign of it lessening, let alone stopping. I hadn't googled, so the womb cancer mentions on here have scared me now...

Original poster
Verynice · 26/03/2019 19:45

And trying to describe it to a man, is like trying to explain to a man that women are different.

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Original poster
Verynice · 26/03/2019 19:48

@Nnnnnineteen Don't cry! I've been refusing to! As that will be further proof to them that maybe I need mental health treatment! It's so annoying. Why have we to put up with this?

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Original poster
Verynice · 26/03/2019 19:50

I certainly didn't intend to scare anyone! And I'm pretty sure that neither you nor I have womb cancer!

We just have 'gynae problems'!

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PookieDo · 26/03/2019 19:54

I had this building up over a couple of years, in the end a US did show 2 fibroids. I was really suffering with the excessive bleeding. By the time I got to have an ablation they had grown very significantly and were much larger than the US had shown (and 5 of them with some cysts)
Ablation got rid of fibroids but lining continues to be very thick. A Mirena does help control this. All my tissue was tested and clear
At the same time, I have had a lot of excessive discharge, my breasts have completely changed (hard, fibrotic painful and lumpy) and I keep asking WTF is going on only to be told ‘it’s your age’ FYI I am not quite 40 yet. And I still have no answers!

Werkit · 26/03/2019 19:57

Please be pushy until you are taken seriously (everyone who is having issues)!

My TV ultrasound showed ‘coarse’ thickened endometrium, GP said “nothing visible wrong”. I had to fight for gynae referral, then the first gynaecologist I saw said there were no nasty cysts and no sign of any issues, said I couldn’t have pain in the places it was worst, and suggested putting me into menopause. Luckily I asked for a second opinion - the next gynaecologist actually did take me seriously; after laparoscopy it turned out my uterus was very spongy and enlarged (due to adenomyosis), and my left ovary was huge and vascular like some kind of bodybuilder. None of this was apparent on ultrasound, and if I hadn’t insisted on a referral/diagnostic surgery my symptoms would have only got worse over time.

Make a nuisance of yourself if you have to. Gynaecological issues are minimised or dismissed far too often.

Nnnnnineteen · 26/03/2019 20:07

Thank you, verynice, I shall hang onto that!

Original poster
Verynice · 26/03/2019 20:25

Ok.......... So got a call back. Madam is asking me whether I've actually fainted, (no), and advising me to drink fluids. I then asked her after the end of a lengthy conversation - what is your profession? 'I'm a prescribing pharmacist'. Well sorry honey - but if I faint, I'll be requesting a prescribing doctor thank you very much.

I've almost died because of 111.
Now I stink like I'm rotting to death and I get the advice to drink water. Lol
Oh God. I really don't fucking care anymore. I think I'll bring my smelly fanny home where I might actually be looked at. How depressing.

OP posts:
Original poster
Verynice · 26/03/2019 20:28

WTF do you have to fight for everything here?

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Original poster
Verynice · 26/03/2019 20:33

Sorry, I'm probably bringing 'issues' from where I almost died to this thread because it took 111 5 hours to send an ambulance to me.
I'm so fucking tired.

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