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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Stopping IVF and accepting childlessness

62 replies

ohbigdaddio · 01/02/2019 11:53

Posting for traffic...

DH and I have unexplained infertility, I'm now 40 and we've had one failed IVF cycle (we got 3 embryos that didn't work.) Prior to this we had a couple of years TTC. In total we've had 3 years of trying and failing to get pregnant (in fact I have never been pregnant in my life.)

Doctors say I have a good number of eggs for my age and should try another cycle, though it may take another couple to get pregnant (still no guarantee of a live birth!) DH and I have been considering what to do and unknown to him I am exploring stopping the whole thing.

Yes, 3 years is a relatively short time and yes we have only done 1 cycle of IVF. However the cost to my mental health (and bank balance!) has been severe. I have been depressed for the last 2 years and last year it was sever with me having daily suicidal thoughts and feeling like such a failure that I wanted to end my life. I didn't actually do anything but it was on my mind a lot. Living in limbo with no idea of how long it will go on for and wishing for something which may never happen has been extremely damaging to be and my confidence, and as a result has affected my career. We have spent over £8K and I feel we may as well have burned that money.

I'm starting to wonder if stopping this quest for a child (and getting a dog!) may be a more liberating decision than being stuck in this very miserable existence, though I have no doubt that there will be a hell of a lot of grief to deal with.

I'd really like to hear from people who fit into the category of accepting their childlessness and how you got there? How are you now?

Please, no miracle 'I stopped IVF and fell pregnant' stories or even 'I adopted/used donor eggs' etc...I just want to hear from those who really wanted a family have remained childless due to circumstances.

Thanks so much x

OP posts:
MuseumofInnocence · 01/02/2019 11:58

Me and my DH are in a similar position, but what strikes me about your post is this

"I have been depressed for the last 2 years and last year it was sever with me having daily suicidal thoughts and feeling like such a failure that I wanted to end my life."

While we think having children could be positive, we never found ourselves feeling like this. We'll have a bit more money and freedom, we have nephews and nieces who are a part of our lives. We'll make plans to do other things (travel, volunteer, etc).

ohbigdaddio · 01/02/2019 11:59

Sorry for typos...also forgot to mention I've been on anti–depressants since last summer and that's the only reason I'm no longer suicidal!

OP posts:
Whatdoyouknowwhenyouknownowt · 01/02/2019 12:04

Yep, I fretted for years, to the detriment of my health.

Once l decided I was too old, things were far easier. Not sure how this happened, don't think it was a conscious decision.

I know my sil, also childless, different circumstances has had a much harder time.

I think it helps to add lots of things to your life & Christmas is a bit sad sometimes but that's OK.

ohbigdaddio · 01/02/2019 12:08

It's the living like this MuseumofInnocence – uncertainty, limbo, not knowing how my life is going to turn out that has made me have suicidal thoughts – it seemed like the only way out where I wouldn't have to live like this any longer, wishing weeks and months away to have our next treatment etc. Constant hope, disappointment, failure, feeling awful about myself – life like this is hard. I'm not sure the thoughts were because we don't have a child directly. If that makes any sense!!

I have a history of depression which is always triggered by a difficult life event – IVF being a pretty big one.

OP posts:
MuseumofInnocence · 01/02/2019 12:09

we were offered counselling from our hospital when we started treatment. Were you offered counselling?

Housingcraze · 01/02/2019 12:40

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SerenDippitty · 01/02/2019 12:44

Well done Housingcraze, did you actually read the OP?

ChariotsofFish · 01/02/2019 12:49

It took me five years to have my first child and I never felt depressed in the way you describe. It’s such a personal thing that other people’s experiences are almost irrelevant, because they aren’t how you will react. I think you probably need to be honest and have a discussion with your DH about the balance between your mental health and continuing IVF. It could be that stopping is the best decision for you. Maybe you need to see a fertility counsellor to talk this through?

SummerGems · 01/02/2019 13:01

My story is slightly different in that I do have one child conceived naturally but after a fairly long period of trying and we then were unable to conceive again due to secondary infertility. So although I can’t give you the exact coming to terms with childlessness perspective I can give you a perspective on giving up trying none the less...

In our case, my ex was told that while he wasn’t infertile he had limited fertility due to an extremely low sperm count with low motility etc and so conceiving another child would be difficult at best.

at that stage we both really wanted another,and we looked into the possibilities of having IVF to achieve that. But before we actually got to the point of going through the treatment I brought up the thought of how far you go until you decide to stop if your cycles aren’t successful. If we e.g. managed to get ten embrio’s and froze eight and had two put back, would we actively be able to agree that this was a one shot deal and allow the remaining embrio’s to be destroyed? Or would we potentially freeze them and want to try again? And again, until money and hope had run out?

Just that thought process made me think that actually I couldn’t bring myself to go through the IVF process because actively stopping at that point was a tunnel I wasn’t sure where the end was, iyswim.

So we abandoned the idea of IVF altogether and a couple of years on I decided that I didn’t want the age gap which would have arisen if I’d conceived by then so we stopped trying altogether.

And while I do have one child so my situation is slightly different, I can say with absolute certainty that I am completely comfortable with where I’m at, and actually, I think that had I not ever conceived my ds either the questions would still have arisen and I would still have reached the same conclusions. Iyswim.

Ultimately life has no guarantees, and if this position now is leaving you in a state of depression to the point you are suicidal there is every chance that having a baby won’t instantly cure that, in fact there is a link between IVF and pnd already, and in your particular circumstances this could be higher. But that aside, people can,and do come through this and move forward with their lives. Giving up isn’t a negative,it’s a place of acceptance,and the reality is that if your next cycles don’t work you will reach a point where fate makes that decision for you rather than you making it for yourself.

At least by giving up you are putting yourself in control.

But I am fairly pragmatic and I am very much a believer in things happen for a reason sometimes. We don’t always see what it is and it’s not always defined, but sometimes I think that it can be. In my case it turns out I have a genetic condition which I might have already passed to my ds but which I wouldn’t want to risk passing to more children. My eXH has a genetic condition which wasn’t passed to our ds, but as things happen he did have a child with his now partner and that child has the genetic condition. And I now have a life limiting illness which means two children would have been harder than one especially as a single parent. And while I know that I can thing these things in retrospect and that if I’d had children things would have worked out as they’re meant to anyway, I can now look back on my decision to stop trying as a positive thing which could have had different implications had I continued. And fwiw I was comfortable with my decision before all this came about but still...

Good luck with your decision x

Smidge001 · 01/02/2019 13:03

How completely insensitive housingcraze

OP, I'm in your boat. 43 now. Tried for 4 years with no success, and did 5 rounds of IVF. Unexplained, and no positive tests.

When I reached 40 we were moving back to the UK for 2 years, and I really thought it would be a perfect marker in the sand to stop. I'd have my family and friends around again, get a proper job, do lots of travelling. All true. Felt relatively comfortable with my acceptance.

However, now the 2 years is up, and I'm struggling again, as suddenly there's the rest of life ahead. I think I just hoped it would happen. My 44 yo unmarried SIL fell pregnant by accident. 2 years later and my 43 yo unmarried cousin has got pregnant after 1 round of IVF. But not me.

The hardest thing was when my brother was taking all our old toys from our parents house, as they were too babyish for his children now, and he was going to give them all away. My heart absolutely cried out as I couldn't let them go. I'd always wanted to be able to hand them down to my children. It was awful. I couldn't stop crying. Completely ridiculous. I now have a box of toys in my kitchen that I don't know what to do with!

There's nothing to be done of course. My DH doesn't want to go through any more IVF. I'm not even sure if I could take the hope again. I don't want any hope - I completely agree with you OP - hope and uncertainty is where madness lies. I just want to accept the state and be happy with my future.

Another thing infertility has done for me is that it's affected my sex life. I used to love sex and get turned on all the time. Now I think my brain just associates it with reproducing, and the inability to do so, and I'm just not interested in it any more. I go through the motions of course, but it's not the same.

Can you set yourself something new to do with your life? Living abroad is great, as you want to travel and go out, meet people etc - much more compatible with a child free state. My issue is what happens after that stage of life is done. What next?

Sorry, no answers, but you're not alone.

Littletabbyocelot · 01/02/2019 13:04

I hope you don't mind me replying, my ending was different but I felt exactly the same as you. For me, it was about getting control back and finding a way out of the infertility being the central fact of life. I was desperate to move on. I also didn't want to throw more money down the drain. DH felt differently as he felt strongly it would work. He was right and with hindsight we made the right choice. However, I still think had it not worked that would have been another year and £5000 wasted, which could have both been used dealing with the grief.

I think i would make the decision with counselling

SplishSplashSplosh · 01/02/2019 13:21

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SplishSplashSplosh · 01/02/2019 13:22

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MapleSpice · 01/02/2019 13:28

@SplishSplashSplosh did you not read the OP?

AnastasiaaBeaverhousen · 01/02/2019 13:32

We decided against IVF and went back to using birth control because I knew that I would be sub-consciously wishing for a miracle every month otherwise. That helped me feel in control of it which was very good for me emotionally and helped me move on.

SerenDippitty · 01/02/2019 13:34

OP I am so sorry that some people cannot resist posting success stories even when you had specifically asked people not to. I gave up actively trying at your age though I'd had a few more cycles - was basically told I had no more eggs left. There's nothing wrong with wanting to stop IVF. Sometimes you have to let go of the hope for the sake of your sanity and "Don't give up is the least helpful thing anyone can say.

ncforthis8765 · 01/02/2019 13:37

If you decide to give up now, miracles aside, you definitely won't get pregnant. If you have another go (or 2) in the next year or so you may also not get pregnant but at least you'll know that you did whatever you could to try; it just wasn't meant to be. Or it may work.

You're 40, so chances aren't that good, but they're much better than if you were 45. Good luck with whatever you choose Flowers

Santaclarita · 01/02/2019 13:37

I've not had to go through ivf before so don't have a full understanding of what you're going through, but if you want to stop there is no problem with that. You sound like you're putting a hell of a lot of strain and pressure on yourself and by stopping you can sort yourself out which is very important.

I would stop, take the pressure of yourself, get your confidence back and feel better about yourself. You only get one life, don't spend it hating yourself.

Littletabbyocelot · 01/02/2019 13:39

Can I just clarify, I'm not saying 'don't give up' or using myself as a success story. I posted partly because I think the instinct to stop was clouded by the distress of ivf, so I would recommend counselling to make sure your happy with the decision and partly because I still think it would have been the rational choice.

Cautionsharpblade · 01/02/2019 13:40

I never got pregnant after 2 years of trying then my partner died so that put an end to it. I don’t care about not having my own children, I don’t enjoy being round kids and it would have been a nightmare if it had turned out I felt the same about my own.

GreyHare · 01/02/2019 13:55

OP, I'm sorry people have ignored your 'don't post stories of miracle babies' I'm slightly different in that I never even considered IVF as I knew my mental health wouldn't cope with the stresses and strains it puts on you as a person and as a couple so we decided mid thirties that we would be childless, even to the point that my husband had a vasectomy (we never had any tests or anything so neither of us could blame ourselves each other) we had tried for many years from mid twenties to mid thirties using ovulation tests etc, but nothing ever happened.

I'm 45 now and to be honest I'm happy I have dogs and cats, they are by no means baby substitutes although I get so broody for puppies and kittens yet babies do nothing, I do have nieces and nephews and friends kids, I love them all dearly but I am very happy to leave them and go home to my quiet peaceful yet hair covered house, I'm the fun aunt who makes their birthday cakes and spoils them rotten.

LegalEaglesNeeded · 01/02/2019 13:57

OP, I had three unsuccessful cycles of IUI and two unsuccessful cycles of IVF, the last one at the time of my fortieth birthday - I had two embryos put back both times. The whole thing went on for about four years and dominated my life during that time. We had the chance to have another cycle as we had two high quality embryos left in storage after my last cycle. We kept them in storage for about three years afterwards and then decided not to anymore.

By that time I had come to terms with the fact I would not have children and was happy with it (as was my husband). It was a relief to step off the merry-go-round and just enjoy life again and enjoy having my body back to myself and not see sex as something to be done as a means to an end.

It's quite a few years later now and I do not regret my decision at all not to go for a final cycle. Had we had a child we would have been knocking on as parents and all my other friends with children are currently seeing their children off to university and enjoying a bit of freedom again whereas we would have been knee-deep in child-rearing. We have more money, more freedom and less stress than many of our friends. I love the fact we can please ourselves. We are also totally absorbed in running our two businesses, something we would not have been able to do if we had had children.

The thing that underpins this is the fact my husband and are lucky enough to still be very much in love and happy together after twenty years. The trials and tribulations of infertility only brought us closer together. We also know that we want to be together and are not just staying with each other because we have children and it will be too messy to split - not saying that there aren't many deeply happy married-with-children couples as well of course.

The only thing I occasionally worry about is old age, but children aren't an insurance policy and I wouldn't want a child of mine being my carer anyway having gone through the hell of caring for someone with aggressive Alzheimer's. I have made it my policy to surround myself with wonderful friends, to be a loving auntie and store up plenty of cash and I hope those things will help me when I need someone to keep an eye on me and make sure I have good care.

bridgetreilly · 01/02/2019 13:59

I think it's clear that the process is actively detrimental to your mental health, OP, and for that reason I think it is sensible to stop now. Childlessness is fine. It really is. Severe depression is not. I'm glad the medication is working for you, but it's also important to remove the causes of depression as far as you are able.

SummerGems · 01/02/2019 14:02

Don’t give up is about the most crass and insensitive thing you can say to anyone thinking about doing so. And actually I firmly believe that this is part of the reason why women give themselves such a hard time when struggling to conceive. Because there is always one who says “oh, don’t give up, we didn’t and now we have a gorgious dd/ds/twins,” or “well they say that it takes a year but actually we got pregnant first month,” or “we gave up and then fell pregnant naturally. Why don’t you relax and it’ll happen.”

And for every one of those there are ten or more for whom things didn’t pan out in that way.

There are reasons why they say it takes over a year to conceive naturally, because most people do. And there are reasons why the IVF success rate is still incredibly low (around 30%) because for every three cycles only one is generally successful, and that means that for some that might be the first one, and for others it might never happen.

OP you can only do what is right for you because what worked for someone else probably won’t pan out in the same way purely because you are different, your circumstances are different, your ages are different and the list continues.

User12879923378 · 01/02/2019 14:05

John Cleese said in "Clockwise", "It's not the despair. I can stand the despair. It's the hope." That was how I felt all the time I was TTCing. I did have a baby in the end but I constantly promised myself that I would not keep trying indefinitely and I know I would have stopped trying to save my sanity if I hadn't had her.