It occurred to me, after posting on this thread yesterday, that medical science is so advanced that people are now routinely surviving injury and illness that the human brain is not really equipped to deal with.
So it’s not really surprising that post-icu trauma is a thing. It’s one of the residual problems my daughter has (she’s now 7).
Thanks RavenMaven - the nurses are my muse! My DD is doing amazingly well, recovering from what is still fatal for 40% of people diagnosed with it.
She’s in now remission, but still dealing with the long term aspects of recovery from such a catastrophic disease, including the damage it’s done to her mental health, she’s lived through circumstances that you wouldn’t want a kid her age to watch in a tv drama, so that’s a big thing to get past. Plus the medications that treated her HLH have given her Cushings syndrome and hypertrichosis.
I really think the mental health/trauma aspect of surviving near fatal circumstances is underestimated - I certainly had no understanding of it until I witnessed my daughter’s experience. My own mental health is shaky - luckily for me, my daughters hospital understands and provides for this - mums who somehow manage to keep it together while kids are ill are prone to breakdowns when their children begin to recover.
I feel so privileged to have had a window into this world, and also to be able to leave it behind. Fingers crossed DD doesn’t relapse, but if she does, I know she’ll be in the best hands imaginable.