To be panicking re. call back to a&e?

[Finsmum86]

So took my 3 year old to a&e two nights ago as she managed to get hold of button batteries from a supposedly (!) secure location in our house and I couldn't be 100% sure she hadn't put one in her mouth and they can be very dangerous. I was almost certain she hadn't but better to be safe than sorry of course.

No battery showed up on the x ray so all fine.

Got a call this evening asking me to bring her back in to a&e tomorrow morning and I have spent the rest of tonight an anxious mess. The person on the phone couldn't offer any information about what it's regarding.

Anyone have any experiences of being called back to a&e after an x-ray? I'm assuming it's not battery related as I think they would have had us back in straight away and the doctor said when we were originally at the hospital that they are pretty easy to spot. But sounds like something semi urgent if they want her in at such short notice?

I don't think I will sleep tonight. No point to this post really and apologies for posting in AIBU but appreciate the traffic in case anyone has had a similar situation or knowledge.

You sound like you are coping admirably with so many different things at the moment, and being the best possible advocate for your daughter. Hang in there

That’s scary for you.

We have been in and out of Hospital with constant chest infections, DS had exploratory surgery when he was 3 and it took until he was 5 to get diagnosed.

They suspected CF, his sweat test was ‘borderline’ and he seemed to have all the symptoms.
However, extensive genetic testing has come back negative. This doesn’t mean he absolutely 100% doesn’t have an unusual strain of it, but it means is very unlikely that he does.

With DS part of his immune system isn’t working properly - specifically IGG subclass deficiency. So all the normal virus’s that sit in the back of our nose and throat that lay dormant, don’t lay dormant for him. They are a constant problem for him and escalate into respiratory infections.

So now he is on prophylactic antibiotics which prevent the infection happening. And it’s changed our life! He’s well, rarely has asthma attacks as behaviour has improved as well.

Conversely, if your daughter did have CF then prophylactic antibiotics would be your first port of call as well.

Sometimes children with deep seated infection can need 2 weeks (or more) of 2 different antibiotics to bust it.

Have they taken a sputumn sample?

OP, you’re doing so well, hang in there. Currently undergoing investigations for my son for something different and it’s so incredibly stressful and long winded.

If it’s any consolation my first serious boyfriend had CF but was hardly affected and they only diagnosed him because his older sister had it much more severely.

God op. Just read whole thread. Hope you get some news this time. Xx

I’d imagine they only did a chest X-ray to see if airway is blocked. With button batteries you need to check abdomen too as they can leak and cause problems.

There is no way you could miss one if it was on an xray

So sorry, thought this was a new post - only one page loaded!! Will go and rtft.

Hi OP, my little sister was exactly as you describe. Chesty from a newborn and like she had a constant cold. She was diagnosed with CF aged 8. Her lungs had been severely damaged by then. Her gene mutation meant she didn't have the digestive issues that other CF sufferers have and she seemed like a normal child in all other respects. If it is CF then treatment has progressed so far in the last 20 years it's been a part of my world. My sister is 28 and one of the strongest women I know.

I know this is such a worrying time for you and I just wanted to wish you and your daughter well.
And also to say WELL DONE. I know how it feels to have a gut feeling about an ill child and having to fight to be listened to. You are doing great!

Thinking of you OP, really hope you get some answers for your daughter

So sorry to hear you still don't have any ideas or confirmation. Hoping things go well next week x

Just caught up on thread what a stressful time - hoping all goes well and you get answers soon - hope your DD gets well soon x

Hope you get some answers soon op

I hope you get answers soon!

Thinking of you and your daughter OP

Hope you find out what the issue is soon OP. Must be a worrying time for you.

How frustrating.
Another condition which can cause congenital lung isdues is flna mutation
www.ncbi.nlm.nih.gov/m/pubmed/28898549/

Just caught up on this thread, thinking of you and your daughter

Thinking of you and your daughter xx

Oh God, your journey has been so worrying, I truly hope everything works out ok xx

Probably a junior doc was on call and maybe someone higher up wants to double check in case of liability

Thinking of you

I hope you get answers soon

how did everything go?

Firstly, apologies for my sporadic updates! The first sweat test didn't go according to plan and despite repeating it twice, no sweat was collected in the correct tube. We returned a week later (Tues this week) and test was successful so now an anxious wait for the result along with the Alder Hey appointment.