Is it rude to wear a top like this to a consultation with pain specialist

[duckduckmouse]

www.thefmlystore.com/collections/women/products/the-wonder-women-raglan-scoop-sweatshirt

I'm really fed up of the service I'm getting and my condition. I'm really desperate to have another child and my medication which I detest isn't compatible with pregnancy.

I want the pain specialist to make a permanent solution or a semi permanent solution by a physical intervention such as denervation or a nerve block because I cannot continue to have a life based on pain and medication.

I take maximum dose of gabapentin and del truly abandoned by the team.

I want to send a strong message which is that I want to have no medication in my life so that I can have another child.

What do you think?

I think they will be offering more treatments, I just want to get off the medication.

I think you are being a bit unrealistic. You may not be able to.

Also why are you taking a private nurse with you?

@DanHumphreyIsA

Thank you so much for your warm post. It means a lot. I'm very sorry your husband is suffering so much. You must be suffering and tired too.

If he can skip some of the opiates he may feel better, my stomach is dreadful with them. The constipation is just so sore. Laxatives cause dreadful cramps. I know.
Nausea and anti emetics make you tired. It's a rotten old cycle to be in.

I was addicted to Tramadol and didn't know until I stopped it 4 days after having my son. I was in hell. The next time I came off of it it was tapered down to help me. Still very difficult.

I hope your family find answers soon. My pain is from a nephrostomy I had when pregnant.

@GetOutOfMYGarden that so strange they are on mine, I'm using the app?

Bloody hell if you have been in fentanyl it must have been bad

What started this all off ?

I've reached the limit for attachments now.

I'll have to type it up tomorrow and pop it on here for some pointers. Thank you everyone for your help

Good luck with your appointment OP. Use your notes, take your time, and use DH and the nurse to support you. Hope it works out ok for you.

@stopfuckingshoutingatme I had a nephrostomy (external urine bag direct into kidney) for 4 months when I was pregnant. It wasn't changed and it dislodged. I was very very very sick when I was pregnant. The nephrostomy was inserted to manage hydronephrosis.
It became encrusted and dislodged. When it was finally removed the interventional radiologist had to put his knee on the table to get traction to remove it.
I have been in pain ever since and it is suspected that the encrusted nephrostomy damaged the nerves in my back local to my kidney.

@HattiesBackpack thank you for your support

I like the top!
And I feel your frustration!
I dislocated my pelvis attempting to give birth and ended up having a c section. 9 months of nagging later and I ended up with a pelvis stabilisation surgery and SI joint bolted. I have been on tramadol 6 years and we want a second child.
They have managed to wean me off the tramadol but still on MST continuum (morphine) codeine atoxicorb and amitriptiline!
I'm sick of the rutt and feeling that painkillers brings. But without Them im in so much pain.
Try and be strong with them and write down what you want to say

I'm disabled, in constant pain, take ridiculous amounts of medication and also sadly can't have another child.
I'm still a Wonder Woman

I doubt your pain specialist will make any connection at all. Sorry you are going through this and you're not getting the care you feel you are needing. I think you need to be really blunt and tell him exactly how you feel though.
Good luck.

dinosaurs makes a good point about physical limitations. Is the condition you suffer from likely to get worse with childbearing and labour? Is there a chance that you may not be able to fulfil your caring obligations towards your existing child(ren)?

I agree. They are important points.

Good luck with the appointment. I'm glad you got your appointment brought forward.

@Dizzybintess

I took Tramadol and codeine and morphine when pregnant but it's really not ideal. What a terrible time you have had
It's hard coming off the medicine, but you can't do that until you have a plan in place to sort you out so that you do not require all of that medication.

I was in labour but had my son prematurely at 35 weeks with an agreed c section. I wanted a home birth originally but a bag of wee prevented that and I was very exhausted by that point.

Have you spoken to a solicitor? It sounds like you were subject of negligence

Fuck Me . I can see why you feel angry about things now .

Can you access the NICE guidelines for your type of pain and condition ? It's worth doing some further reading if you haven't already ?

I can look after my son fine and feel capable of looking after a baby too.

Won't need labour, will have another c section. But the points about the efficacy of an intervention are very important as I don't want to have any unecessary work that is unlikely to help me.

They shouldn't be combining amatryptaline and gabapentin I know that much.

I'm so pooped out with it all. Lacking mental energy to keep up the momentum.

That's why i was thinking about the jumper. It's just a way of making a little joke about how tits up it all is at the minute

They shouldn't be combining amatryptaline and gabapentin I know that much.

Very much depends on emwhat it's being used for.

Agree with everyone who has said about being direct and calm and fact-oriented with your notes.

What a lot you have been through OP. As someone else has said, no wonder you are angry and are also pretty desperate (hence the t-shirt!)

I really wish you good luck with all of this.

Stop focusing on the sweatshirt,it doesn't make sense to anyone but you let alone to a hurried consultant .

Stop focusing on the sweatshirt,it doesn't make sense to anyone but you let alone to a hurried consultant

I agree. It's unnecessary and won't make want difference.

@DameDiazepamTheDramaQueen
Ok top out of the equation.

I have some really good advice from everyone here and wanted to thank you all.

I do have notes which I'll type and post tomorrow.

😘

Chronic pain is awful, best to have a calm discussion and notes are a very good idea.

If you like the jumper then wear it but personally I think it's cringey. It would probably make me think the wearer had a big ego. How anyone could make a link with mothers is beyond me. Who's we meant to be? I know very few people that could be described as wonder women. Most people are ordinary. Including mothers. That's not a bad thing.

Sorry youre in pain OP but I think almost nobody would get the message you want sent with that top .... I hope you get what you want soon - good luck

You're not coming across well here, disjointed and over emotional. I know it's bloody hard but try to get to the point and be factual with the dr, the appointments are short so you need to ensure you get the important parts of your message across quickly - you know what you want and don't want so give it to them straight and ask them for their advice/ideas - sometimes you've got to let them think it was their idea and they don't respond well to being told what you want.

Sadly there is unlikely to be any real solution to the pain. I have chronic pain and there's no way I'd go through another pregnancy again, although my pain also causes mobility issues so just turning off pain wouldn't solve it. Luckily it was my second pregnancy which caused this. I'm no Wonder Woman! I've decided against injections etc due to the risks and lack of evidence for success. I had surgery which helped to an extent but nerves were already damaged. I'd really recommend a residential pain management programme and you should then gain more information to help guide future treatment. I reduced my meds and feel more in control since - nortriptiline for sleep, which has less side effects than amitriptiline, and codeine as needed, usually only once or twice a day and mostly at night. It's no easy or quick fix but I can better see the ability of the brain to turn pain signals down (and up). I still have plenty of bad days where I'd love to have the nerves blocked or burned away.

If you can go private then it's worth a try, even if not this consultant. You'll have less of a wait as well as a second opinion, plus not NHS with the negative associations.