Is it rude to wear a top like this to a consultation with pain specialist

[duckduckmouse]

www.thefmlystore.com/collections/women/products/the-wonder-women-raglan-scoop-sweatshirt

I'm really fed up of the service I'm getting and my condition. I'm really desperate to have another child and my medication which I detest isn't compatible with pregnancy.

I want the pain specialist to make a permanent solution or a semi permanent solution by a physical intervention such as denervation or a nerve block because I cannot continue to have a life based on pain and medication.

I take maximum dose of gabapentin and del truly abandoned by the team.

I want to send a strong message which is that I want to have no medication in my life so that I can have another child.

What do you think?

That's why I've got my notes which I'll type out and I'm bringing a private nurse to the meeting to represent me and my family. We need this sorted once and for all.

Pretty sure they have left me on meds because they are very over worked and understaffed, like most units in the NHS

Have you asked them previously about surgery and what did they say?

I get you completely wrt the pain specialist. I want something to be done for my pain but keep getting fobbed off.

My pain consultant wouldn't have a clue what that slogan meant if he noticed it at all.

Cotswoldstrife is right - have they discussed why you aren't being considered for nerve blocks or de-enervation?

Is your medical condition a known "candidate" for those types of treatments?

They are all trying to keep me quiet this sounds a bit paranoid. Just be straightforward - what do you really want?

'I want to have another child. The medication I've been given - gabapentin, amatryptaline and codeine or Tramadol - makes me feel so poorly and miserable and I don't think it's suitable during pregnancy. What could you do that would control the pain and allow me to have another child? [then] What are the risks of that? [then] What are the alternatives?'

Find out if it's a clinical or a financial decision not to carry out the procedures you want. If it is financial and that's surprisingly rare, put the £50 towards your savings.

Good luck.

Navigating the NHS and Health in general is a minefield sometimes

It takes bravery and determination to make them Listen and maybe change their views

A T shirt won't do this

Some research and a very simple but concise summary will help

Every time I have to handle a Dr or get referred I series it Down and do my research

This is a great place to get advice and support maybe move this to general health ?

I've had trigger point injections and steroids, they worked for a time. I was delighted.

Want a permanent solution, pain nurse says they want to do a temporary procedure first to check if the nerve block is going to be effective.

To be honest I couldn't care less what the procedure is provided the risks are low and I can have a child.

Yes I am a bit paranoid because I don't understand why I've not been seen sooner. I'm so fed up I can't explain it.

I am an eligible candidate as in not over weight or sick otherwise.

Pain is shit.

madbum there was no need for that. Anyway... Hope your okay OP. Just try and stay calm during your appt and explain what you want and how you see your future and explain why you feel you can no loger continue on your painkillers and other meds etc. Tell them how much your wanting to concieve. Be clear, short and concise and i wouldnt wear the top, i think what you said before on a PP was right, just wear your normal clothes.

Does anyone have any thoughts on my hand written notes? I know they are messy.

Yes sure, if anyone knows how to move it that would be great actually.

I Was going to order the jumper but I think I'll just leave it.

I think it's not a financial issue as such, it's a time issue. I've not seen the pain consultant since I had the trigger point injections in July.

Also going in as 'the NHS are the enemy ' (even if you feel
Like that ) won't help

The medical profession tend to club together so try and be open , clear and non combative . I hope that's supportive it's just I have seen this with my family and it doesn't help !

Read the thread and there is some good advice here

@TheFairyCaravan I'm really sorry you are struggling. It's horrendous what people endure.

Every mother is a Wonder Woman, a fighter, a provider and selfless

Yep. As soon as she has a kid, every woman magically transforms into a selfless superhero, and everyone should be amazed and awed by her.

On an unrelated topic, have you met my mother?

Speak to your consultant, push for the treatment you want, advocate for yourself and I really hope you get the outcome you want. Don't worry about what you're wearing. Chronic pain is incredibly tough to live with, and often sufferers get 'parked' on medication because other treatment is expensive and uncertain - I hope you get listened to.

As a fellow chronic pain sufferer I feel bound to point out that it's very rarely as simple as 'sorting this out for once and all.' If it were I've no doubt it would have been discussed with you.

You don't say what the cause of pain is but possibly back pain? For sure ask all your questions and express your desire to reduce medication but be prepared to hear that they don't have a solution for you. Finding a better balance may be your best option. Pregablin suits me better than gabapentin and I can take a lower dose.

Have you been offered a residential pain management course or similar? Alternative therapies? Counselling? Exercise therapy? I've had all of these from my pain clinic. Spinal cord stimulator was discussed but I wasn't keen.

Go along for a constructive conversation rather than a confrontation. If you feel he doesn't listen ask your gp for a second opinion. I hope it helps and sympathise greatly but sometimes there are no easy answers. I'm prettsure being overworked isn't he reason you are not getting a nerve block ( of which I've lost count and none helped at all).

Good luck. Think of it like a jigsaw with many pieces to fit together.

If it's for back pain, I've been told that it's got to be very bad for them to consider surgery as the downside is so bad - think paralysis, doubly incontinent etc if the spinal cord gets damaged.

Next stage after drugs tends to be steroid injections into the spine; after years of living on painkillers I've finally been referred for that. I understand that it works in somewhere between 50% and 75% of cases depending on the condition, and that the effects can last from a month to a year.

Hey i asked them to move

Otherwise start a new thread and title it

Chronic pain and tips for getting help when I see the pain consultant

Or words to that effect

I think that way you will be in the right place and will attract more focussed advice from people who have been there , got the t shirt (sorry )

And women without children are what? Weak, selfish parasites? Mothers are no better or worse than any other randomly allocated group. Focus on your medical needs.

@stopfuckingshoutingatme you cheeky bugger

Sorry, just saw the post that said you've tried the steroid injections.

Sheesh let's try and help OP not denigrate for her fucking t shirt slogan

@OttilieKnackered I am not commenting on anything other then mothers.

Does this rude concept apply to men and children as well? Get a grip!!!

I'm also a HP and wouldn't think twice about the slogan on your top.

Unless it's a sign that someone is struggling to look after themselves (e.g. dirty in a usually well-kempt person) then it wouldn't even register. I was mildly startled by a bloke with a T-shirt emblazoned with hentai porn recently, but it didn't affect my treatment of him. People wear all sorts to their appointments. I haven't yet met a colleague who judges.

I think you'd be much better talking to your doctor. Ask for the benefit/risk profile of the treatments available for your condition. Explain your concerns. I'd also recommend bringing someone with you if you can- it's often difficult to take everything in and useful to have someone there to jot down some notes and just listen on your behalf too.

OP, I work in healthcare and I can't say I'd even really read your top anyway. I wouldn't make the connection at all if I did.

Have nerve blocks been discussed with you by the consultant as a possibility before this? Just because you're not overweight and would physically be able to get through having it done, it doesn't necessarily mean that it'll actually work.

I like the T-shirt but would just think you either liked superheroines or were making a feminist statement. If I delved into it further I might think you were an HIV advocate/supporter. I would not associate your tee with you wanting to come off meds, no.
The only thing it might be good for is if doctor notices it and makes a friendly comment which opens the conversation. But if they are polite, busy, not observant or let's face it have a shedload of patients to get through, doubt it would even be on their radar.

Yes which automatically excludes those that aren't in that group.

And is also a load of sentimental shite.