Wow, I always knew I couldn't visualise anything bit I didn't realise it's actually a 'thing'!
Sorry I haven't read all of the thread yet. I will do so later but for now was desperate to touch base and reply!
I do find it upsetting. My OH tells me off for taking too many photos of our children, but I did it because I rely on that entirely for remembering what they look like. Without it I cannot remember AT ALL and I often get very upset that I can't even picture what they were like when they were babies. It's like there's a huge void in my brain where memories of my children should be, yet when I try to explain this to people they thing I'm mad, making it up or must have some MH issue making me so depressed I've totally forgotten my children's childhoods!!!
So it does sadly have a huge impact on our day to day life.
Thank you for this thread. This is both incredibly upsetting and relieving at the same time; at least I can justify my photography hobby to my OH now!
I wonder if other aphantasia sufferers are also reliant so much on photos/into photography for the same reason?
So yes, it turns out I obviously suffer from aphantasia. I read quickly and have vivid dreams BUT cannot ever 'see' any detail and some things in my dream I am always 'blind' to, so for example I never ever see faces (they are just blank space) and when I go to focus in on anything it gets more and more blurry until it becomes invisible.
I'm actually a professional artist and specialise in photorealism so my work is incredibly detailed, but I have to work entirely by relying on photographs or drawing/painting objects that are right in front of me (and I do mean right in front, so that the image and my work are side by side. I can't translate an image to canvas if I can't 'instantly' do it, seemingly bypassing something in my brain!). What's interesting though is that I absolutely cannot draw even the most simple comic or cartoon-type image without having one in front of me that I can copy, and I mean even the most basic smiley face (round face, two dots for eyes, curved line for a smile)!! If you saw my usual work you would honestly think me saying that I can't even draw a bloody emoticon is just absolutely absurd, but it's true! I never even knew why until I read your opening post, but it honestly explains everything!! I've been dealing with this all of my life and could never put my finger on what was wrong, but now I know I'm honestly sat here in tears in both relief and profound sadness! I have always wanted to be a Disney-type illustrator or write and illustrate my own children's books but because I can't even imagine my own characters or settings it's something I've never been able to pursue. I knew there was something wrong with me. :( I literally have to make my own little Frankensteins from existing images and try to change them enough to make brand new characters otherwise, for me, it's impossible. My OH, on the other hand, is absolutely crap at drawing but can picture and draw cartoon characters amazingly well!
It's also always amazed me how people can give detailed descriptions of criminals to police sketch artists. Seriously, wtaf?! How on earth to they manage to picture a person like a photograph or remember any of that detail?!? I couldn't even give the most basic description of my own family! I guess I have my answer now!
On saying all that I perhaps seem to go against the grain somewhat for someone with aphantasia. I have a brilliant sense of direction and special awareness. I was born full term, am not on the autistic spectrum, don't have dyslexia, etc. However, and I really don't understand this at all, I have an absolutely dreadful auditory memory but a fantastic visual memory... So for instance, if I'm driving somewhere unfamiliar that I've only been to once before I definitely wouldn't be able to picture any of the journey in my mind BUT when presented with an image, such as a junction coming into view, I instantly remember it and know which way to go. I've been like that my whole life though so things like diagrams I remember really well but I can't picture them in my head, so when presented with the same diagram unlabeled I would easily be able to fill in any missing words and parts of the diagram, but if you didn't give me any cues (so for instance you just gave me a blank sheet of paper) I wouldn't be able to draw it or even recall what it looks like, IYSWIM. So weirdly, despite being an aphantasia sufferer, I do still seem to process visual information more effectively than any other type of processing (semantic, auditory, etc) I just can't 'see' that image in my mind, even though that information is definitely in my brain somewhere!!! If anyone develops some kind of cure, a way to unlock that information visually, I'd definitely be interested!
Anyway, this does genuinely interest me so if I can do anything to help with your research I would absolutely be happy to take part in any research trials, etc. Do feel free to PM me.
Good luck with your work!