Charlie Gard 7

[CaveMum]

Continuation of the discussion.

It looks highly unlikely that there will be a verdict today as GOSH have not yet been able to put their case across. The Gard family had their position heard this morning and currently an expert witness from the US is being questioned via video link.

Thanks Lovely

P32 Lapinrose posted a link as well.

In this meeting this morning will the docs be discussing the case? i mean the one from yesterday and the GOSH ones?

The lack of understanding by some of the CA members about making attacks on people saddens me. Some really do seem to believe that because they weren't attacking people within the group that there shouldn't be a problem and others feel that it is all right to attack those with whom you don't agree.
Feels again like some aspects of mob rule and an attempt to legitimise it.

No - there won't be a ruling today. The Judge has already said as much.

It's obviously speculation about what he's trying to achieve with this meeting but I suspect he's trying to narrow down the points of contention.

Someone posted that Charlie couldn't be in pain because she has a mitochondrial disease, a tracheostomy and relies on a ventilator and has never had pain before. She even had the tracheostomy inserted without any anaesthetic or pain relief....and STILL didn't experience pain.

I like the judge, I think he will make the right decision for Charlie, hopefully the decision will come soon and hopefully the suffering for all 3 willcome to an end and connie and her fella, I can never remember his name can start the greiving process, I think its important to remember there are no winners in this, and I think thats what makes it even more heart breaking.

I am so fed up hearing about the parents. This is about Charlie and Charlie only. The parents are like pit-bull terriers who will never let go willingly. Every day in hospitals across the country parents, children, relatives, husband's, wives are having to make the decision to end treatment for their loved ones. No publicity for them, no fb page followers chanting and raving, no huge fund raising and merchandise selling. Instead they face their own personal tragedies with dignity and bravery beyond words. But Charles parents choose to live out their tragedy in front if all the world and yo be honest I am sick to death of it. I have sympathy for them but the longer this how's on the more they are going down in my estimation as good parents.

Your Report
12 July
You anonymously reported Charlie's army for having a credible threat of violence.

Hmm Just got this message from Facbook, after I reported the CA group for 'credible threat of violence"

Thanks for your feedback
Today
Thanks for your report – you did the right thing by letting us know about this. We've looked over the group that you reported, and although it doesn't go against any of our specific Community Standards, we understand that the group or something shared in it may still be offensive to you.

Goes*

belmontian, I find that hard to belive, I had a brother that had severe cerebal palsy, svere brain damage, deaf, blind, incontintent, had to eat liquidised food,had to have suction, was on a tonne of meds, and bloody hell he felt pain, he would scream for hours and hours, the trouble with Charlie is he cannot cry to tell them he is in pain, can you imagine living like that? in a dark world where you cant see or hear, cant move, and possibley in agony? and not being able to tell anyone about it?

Facebook you are a bunch of turds!

I have heard others have got a similar message, I only just got it, so it could be they looked at it after Laura Gard has posted and it had been cleaned up a bit of such posts. Perhaps.

I saw an article about the people FB pay to moderate these sites, it is just random low paid workers at home.

Sostenueto, again I agree, I do think its a question of doing whats best for your child, remeber that saying if you someone then youll let them go?, this is about them, again its greif, and they cant see the wood for the trees,they are willing too keep him alive at any cost to charlies detriment and that I find is highly unfair.

This is not a criticism of the parents, but if you think about it, they don't have the experience of caring day to day for a severely disabled child. As Charlie has been in hospital cared for my others since he got severely ill. He is their first child also. So they can go home, in and out as they wish. that is very different from many people's reality of living with a severely disabled child.

Have just read GOSH's position statement. Very emotive and sad.

What angers me even more is Charlies parents will never actually look after Charlie, they will never be able to take him home, it will be nurses, doctors, carers looking after him for however long he lives. So when you make a decision not to allow your child to have a dignified death you need to take into consideration who is actually caring for your child and if its not you then make the right decision and be done with it.

Yes, it is.

Sos I think we cross posted, I was thinking the same.

I wonde rif the the Gard's have had any form of genetic counselling? My cousin's daughter was born with Patau Syndrome and died at around an hour old. I believe they were offered that, plus testing to ascertain it's cause. I assume the Gards have had this as it has been stated it's a gene from both parents?

LovelyBath77, I totally agree, it is the doctors and nurses that have looked after him and not them themsleves, perhaps maybe send him home and let the parents look after him and see if they feel differently? as they have yet to experince looking after a severely disabled child day in day out.

Lovelybath 77 hear! Hear! The parents have not cared for their child in the physical sense since he was 8 weeks old and tbh after their attitude towards Gish I'd be surprised if anyone would take on his care in fear of being abused and ridiculed in front of the whole world!

I hope some agreement can be reached soon, though I doubt it. Charlies parents seem in absolute denial about the severity of his condition
The fact that he lies there looking like a peaceful sleeping baby makes it harder. if you could see the multiple daily fits he was having or he could grimace or cry then his suffering would be more obvious but he's paralysed by his condition. Its still going on he just cant express it. Thats what breaks my heart we dont know his level of awareness or what he experiences because he is unable to show it. I hope he is so far beyond experience that hes unaware, because to contemplate anything else would be horrific.

Sostenueto, agreed.

Totally agree Sostenueto They are just prolonging Charlie's suffering to defer their own and I can't understand it at all.

I get the impression the parents seem to think the treatment will enable him to completely recover and be able to ride a bike when that is not the case at all. Also, as I myself have disabled children, I know many other children with extreme disabilities which require a great deal of care and who do not experience much quality of life in my opinion. I am fortunate that my children, although disabled, are still able to enjoy and live life.