Charlie Gard 7

[CaveMum]

Continuation of the discussion.

It looks highly unlikely that there will be a verdict today as GOSH have not yet been able to put their case across. The Gard family had their position heard this morning and currently an expert witness from the US is being questioned via video link.

Jenna 43 we don't argue on here. We get together and do good things together like reporting can organising gifts etc scheme for families who have to live in hospitals with sick or terminal children and the last few days we have had a real bellyful of the bike and evil posts from can fb. We are friends on here and wish to remain so. Read the threads and you will understand. Peace to you.

Can vile sorry about mistyping its my morphine again. Makes me Cross-eyed!

Oh Sostenueto, bless yer cotton socks, its so strange isnt it? to be so bloody wound up, infuriated, teary, angry, upset, by something that should not affect us, I seriouslyhave had a rough few years with people dying on me, esp my mum.

And my mum brought up my brother with severe cp, she never had time for us, he died when he was 14, they had to make the decision about life support, one said yes, the other said no,they ended it for him anyway.

Then all their time was spent greiving, so we diddnt get a look in either, never realised till I grew up, a couple of years ago I had a few drink, got on the phone to her and asked her why she never loved us, she explained, I mean I knew, but I had aright go at her, it was like years of resentment came out.

She died a year later and good god did I feel guilty, dont get me wrong there was so much shit inbetween.................

Charlie's army at last I got it right!

@Fantasyandhope GOSH held the contract for children's services in Haringey when Baby P was alive and the paediatrician who missed his broken back was a GOSH employee (a locum). I am not surprised that the link between the two was made, though I don't think it means very much in these circumstances myself.

annandale, a peadatriacian at any hospital could have made the mistake, babyp, how many other people missed it??? its an entirley different case and a stupid comparrison.

Oh my poor muckpup! Come have a hug too my dear, don't feel guilty, you had a right to say what you felt, you have a right to say so here too. We will all listen my dear and we all understand his you feel because we are all feeling, compassionate human beings on here just like you! Xxxxxxxxxx

The problem is, it is not possible to post on their CA group to tell them what you think, as they pre-moderate the comments. So for people to share and comment on them on here is sometimes useful. To them and for others to see the stuff they are saying.

God, FB groups can be awful. I was in a different one where people were going for treatment abroad and the whole drama was followed in the guide of 'support'. Over time I realised it was a bit like CA in a way, as others were seen as trolls and there was huge love in with he members and the surgeon doing the treatment. he was a God and villified in another group. So much drama! And all preying on the ill and desperate. Lots of USA people who had had private treatment which hadn't worked, looking for something new. Admin seems to work with the surgeon involved. All very strange. FB can be a weird place at times.

Also quite a few on here aren't on FB so might find it interesting to read the posts.

For anyone new to the threads, don't forget that you can send a message of support to GOSH via their FB page. Messages are being shared with the staff.

I agree that I don't think it means a lot but there is a direct connection between GOSH and baby p, that's all.

Sostenueto

Yes I've been following all the threads. I have also reported the Facebook CA group. People still want to talk about CA and surely should be allowed?

The re postings of CA has diminished here considerably.

That is a good thing IMV.

I understand why people have commented about my views .I am not nor ever would want to be the arbiter here.

But I feel strongly about allowing people who have nothing but vitriol to say on CA being shut up.

Just like Judge Francis said today.

I think it's important to point out that many thousands of children with profound disabilities have very fulfilling lives, whether they need supplemental oxygen therapy, tracheostomies, NG or PEG feeding, are blind or deaf or partially sighted/ hard of hearing, etc.

The reason I say that is not that I think it has any bearing on this case, but simply that I have seen children triumph in life and love life and enjoy life, who may, to the casual onlooker, seem to be too disabled to do anything. I wouldn't want this very extreme and tragic situation to reflect over all children with profound and multiple learning disability.

Sostenueto, I do ot want anyone to feel sorry for me, its just thats why I feel as strongly as I do, and no offense with that comment x

Thankyoutforthe music the only reason soda was saying not to post because we don't want mumsnet to close down this thread if we start commenting about how we feel about CAs posts cos believe me we feel very strongly about them.

People are quoting CA less today, but the court proceedings have obviously superseded their content: there is something else to talk about. They've also wound their necks in a bit.

Well hopefully now they have been warned we won't have so many abusive posts to share.

I went on earlier, not for long as it is horrible, but mainly seems to be full of blue hearts for comments, now.

None taken mucky, drink up your lagging behind

mucky
I agree, could have been made anywhere. CA are simply clutching at claws to make GOSH look bad.
There is people on that page urging people not to have their kids treated there and to take existing kids elsewhere
lello
I will Send a message of support

That is one good thing from today, then. The judge warning people the threats would be taken as seriously as possible.

Aye I presume the neck winding in is related to what the judge said.

Its so satisfying when a plan succeeds ( indulging in karma in a big way)

Finally one thing we could all agree with CA on, Mucky - if you smoke, then being in such a situation is going to make you want to smoke. (I smoked for a wee while, years back, while doing a stressful job. It didn't even cross my mind to reach for one when I was on leave. I'd get back to work with the same pack in my pocket that I'd finished work with a week or two previously.)

The reporting on this is as barmy as CA. Just listened to the final bulletin on BBC 6 music and apparently the US doctor said there was hope for Charlie with this treatment, rather than what he actually said which was along the lines of well, I suppose it might possibly do something but we'd have to try it to find out.

just watching the news crap reporting as per

saying the doctor will come over and give him treatment

nothing about its different strain or he doesnt know how bad his brain is an its not his area

Well its bedtime for me which is ironic cos I'm already in bed with a belly full of MST and a nice flask of hot chocolate so its goodnight to all, sleep tight see you all tomorrow. Let's end with a prayer and thoughts to Charlie.