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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Charlie Gard Case 5

999 replies

LovelyBath77 · 12/07/2017 09:13

A new thread to follow on from the others about this case.

OP posts:
Thread gallery
13
ShatnersWig · 12/07/2017 12:55

IHope's "many members of staff in the hospital who have "works at GOSH" on FB have been sent some awful messages by CA members and have been verbally abused leaving work..." makes me both incredibly sad and incredibly angry. I'm glad I sent my message last week.

It's harder to identify people in the street but I hope the staff are keeping those messages and passing them on to management. These despicable people should face some form of legal action for threatening behaviour (although I still say I'd ban them from receiving NHS treatment for life)

Oogle · 12/07/2017 12:55

Luchi that post has just made me cry.

MrGrumpy01 · 12/07/2017 12:57

There was a comment earlier in regards to the testing on mice.

How does it work? I'm guessing with a virus they can inject that and then do tests but how would they test this drug on mice?

Trampire · 12/07/2017 12:58

Yes, I hope those threatened GOSH staff members are recording everything.

There should be a comeback on people for this. People have been jailed for saying similar on SM.

sevensisters7242 · 12/07/2017 12:58

What Charlie Gard's parents are doing to that poor little boy is now nothing short of barbaric. I saw them entering the court the other day, courting media attention and waving to the crowd as if they thought they were rock stars - their behaviour is absolutely disgusting. They should have their parental rights stripped and Charlie should be made a ward of court so the poor little thing can have his suffering ended.

Mamagin · 12/07/2017 12:59

Re my earlier screen shot about mail bombing, I lived in London during the 1970s, when a mail bomb was actually an explosive. #oldgimmer

TheHouseOfIllRepute · 12/07/2017 12:59

I cannot believe adults are putting angry face emoticon on the GOSH FB page for the girls doing a sponsored run
What sort of person would target a disabled child FFS
One is a health advisor and one works for Sussex police
I have complained to both their employers. Please will someone else complain too
They really should know better
PM me if you want their names. It's easy to complain online

Rabbitnothare · 12/07/2017 13:00

Laura Gard posting in the last five minutes, trying to keep them all as angry as possible.

No Compassion towards the other patients at GOSH.

Trampire · 12/07/2017 13:00

Lapin, I reported the "hit her in the face" comment too.

Another one for something like "she's needs a boot in the face"

I've yet to have any response to anything I've reported from fb and it's been days now!

Rabbitnothare · 12/07/2017 13:02

Me too, I reported days ago.

Re the health advisor and police employee, I am tempted to tweet the chief Constance of Sussex and involve both their employers.

Rabbitnothare · 12/07/2017 13:02

*constable obvs

SpitefulMidLifeAnimal · 12/07/2017 13:02

Oh blimey Tartan, I have only just reported this woman to NHS Lothian myself then came here to reassure myself I did the right thing. What a daft woman she is...

TheHouseOfIllRepute · 12/07/2017 13:03

Rabbit
Please do. I've filled in online complaint forms

TheFairyCaravan · 12/07/2017 13:05

@ TartanDMs if you phone the hospital/NHS body she works for they will get you through to the right person in HR who deals with this. They give you their email address so you can send the screen grabs directly to them.

TartanDMs · 12/07/2017 13:08

spiteful I did question myself too, and as a union rep I have had to deal with cases of inappropriate social media content. However this was so extreme, and she had also made comments about GOSH lying and the government "murdering" CG, so I felt that she was undermining any confidence in the NHS by her words, because anyone who viewed her profile and saw she works for the NHS could reasonably believe she is speaking from a position of knowledge. It is sickening.

TartanDMs · 12/07/2017 13:10

Thanks fairy

MirandaWest · 12/07/2017 13:12

CA feels that if it had been a royal baby that it would be different. And are berating the royal family for not having made a statement. Not sure what they're meant to say really

TheWeeWitch · 12/07/2017 13:12

Wow! Look at you go MN. Good for you on all the reporting 👏

If you are already feeling angry I suggest that you scroll on now rather than click on this link (posted a while ago on CA).

Fox News interview with a family friend here, spouting all sorts of NHS bashing BS

video.foxnews.com/v/5503870602001/?#sp=show-clips

Puzzledandpissedoff · 12/07/2017 13:13

I know it's easy to say when it wouldn't be me facing a lawsuit, but I almost wish GOSH had removed Charlie's life support when the ECHR ruled there was nothing further to be done. At least that way Charlie would have been free and his parents spared further, probably pointless anguish

It seems a moot point whether the parents would have brought a case against them at all. Even if they had it doesn't appear likely it would have succeeded with what's come out since, especially when four courts had already said no

redshoeblueshoe · 12/07/2017 13:14

rabbit - we all love a good autocorrect

GrapesAreMyJam · 12/07/2017 13:14

This reply has been deleted

This has been withdrawn by MNHQ at the poster's request.

Nicknacky · 12/07/2017 13:16

I agree with reporting threats of violence to the posters employees but the police professional standards department aren't going to be interested in an angry face on a new story on fb. It's that persons personal opinion (obviously we disagree with it)! and not bringing the s rice into disrepute.

ChattyLion · 12/07/2017 13:16

noHaud thanks for your post.
The antichoice harassment and violence seen in the UK and US (some of which Janice Turner refers to in her article upthread) absolutely departs from any standard description of Christian ethics or conduct.

11122aa · 12/07/2017 13:16

What has Laura Gard been saying.

zeezeek · 12/07/2017 13:16

I just wish that in all these month somebody somewhere would have tested on a mouse then they really would have had no argument. But is it even that easy to find even a mouse with RRM2B

It is a long time ago since I did any lab-based research, so anyone who has more up to date knowledge, please feel free to correct me.

It is actually a really difficult and long process to do this. Firstly you need the money - so a grant application, or protocol amendment of an existing research project (can you do this in lab research? I'm in clinical trials these days). That will inevitably take several months.

Then, when you get the money/go ahead you have to create a mouse with the mutation. I can't remember the exact process, but I imagine that with this particular mutation being so catastrophic there would be a high risk of the mice with it being stillborn or spontaneously aborted.

Once you find a way of getting the mice to actually survive long enough to try this drug, you need a lot of mice over several generations all living long enough to get a good idea about whether or not this treatment is working. That can take a long time. Potentially a year? Unless, of course the results are clear cut and the mice either die quickly or start tap dancing across their cages - but generally, in science, there are lots of ambiguities so you need a lot of results to see a pattern. In this case I would imagine there would be a need for a post mortem exam of the mice brain to see if the drug did pass the BBB. I also imagine that if this happened it would be dose dependent and there could be a potential systemic impact of the drug at the dose needed to pass the BBB? (assuming it was higher doses could do it). So that's more experiments - to see what doses to use, what affects they have on other parts of the body.

That's before you get to the stage of analysing results, writing papers, peer review etc etc.

And we haven't even got onto when to apply or whether to apply to take this into a clinical trial for humans.....

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