Charlie Gard Case 4

[LovelyBath77]

A new thread to follow on from the others about this case

ExConstance one assumes though that the hospitals reticence to do so is because they think it will put Charlie in more pain and discomfort than the chance of success and with consideration to what success is likely to look like.
Of course they want every single chance and they're as right to fight as the parents who choose palliativr care.

However there seems very little support for the hospital who has kept their child alive all these months, no condemnation of the vitriolic views of CA against those who care for Charlie and a bandwagon they are happy to push down the hill if it gets them more media time for Charlie. The concern if what happens next. Could his parents now turn around and say "we've decided to let him go" without fear of a huge backlash? If the doctors do turn the machines off (and I struggle to see how this will now be handled) with CA take revenge on his carers? That bandwagon is going to smash and I hate to think who will get hurt in the crossfire.

On other pages there's also been talk of the lack of family presence. There never seen with any support, just a sister running a website selling air fresheners and sweet cones. Who will look after them when the CA turns against them or wanders off bore once Charlie has gone to fixate on Alfie or any other "worthy" cause

@neveradullmoment99 perhaps you should have a read of the court judgements, medical information and this thread and its predecessors. Charlie's family are not really the ones to go to for a fact based assessment on the issue of pain (and that is putting it kindly).

His short life has been not much of an experience for him, would it be that bad to let him to for the treatment?

I can't get my head around this statement. He is a baby who has had to battle a debilitating illness. He is not something to experiment on. It's almost like because he can't cry, express pain or emotions it doesn't matter what he is put though. That's really upsetting.

wow more pain coz his life is crap anyway

you win the darwin award for that one constance!

who has told them the medication is non harmful

They think that because the meds go via his feed tube rather than via a hurty needle that it's harmless

coz that's exactly how side effects work

I think they should give him a chance. The parents say he is not in pain
Well thank god for their years of expert medical training. How about we just let his parents do all his medical care from now on eh

I haven't posted this yet but I wanted to add that my ds is another child that had a condition as a baby that our local hospital couldn't treat. He was born very prematurely then developed a condition which meant he needed to be operated on whilst still being very prem. Our local hospital didn't have the expertise to do this. Gosh did. When we were transferred I felt the biggest sense of relief that I've never experienced since. This was some time ago but I've never forgotten those few weeks of our lives. I support the hospital whenever I can. They so don't deserve this. I've said it before on thread 3 I think but why the hell have fb not shut this down. Why are they allowing a forum for this abuse.

@neveradullmoment99

His parents believe he is not in pain, but medics have stated that due to his condition that's incredibly hard to assess as he is incapable of demonstrating it.

They have given him morphine because in their expert opinion it's very likely he is in pain.

Believing something and knowing something are very different things.

So she is still banging on about the 10% chance of improvement that her own solicitor denied in court. It doesn't make sense.

I think but why the hell have fb not shut this down. Why are they allowing a forum for this abuse.

That would just add fuel to the fire! this mob

I feel the parents have been exploited and brainwashed into believing all these claims by the very 'army' they set up to support them.

I wonder what statements will be bandied about on that page once the awful inevitable happens. I highly doubt they'll turn on Connie and Chris, but seems hypocritical after all the horrendous "murderer" claims about other parents.

I don't think they'll turn on Chris and Connie.

It will be GOSH and the judge who will get most of the vitriol I imagine

On a personal level, I had some pretty awful oedema once and it was bloody painful. And I'm an adult who can bitch and moan about it. It really isnt pleasant.

Not sure if that's remotely helpful, but I still believe GOSH are doing their damn hardest to make that kid comfortable.

If only there was a way the staff could be treated to something nice for all their efforts. I've said it before and will do again- their jobs must be hell currently.

Really?

Quite apart from the fact there is £2 million sat in their accounts and money coming in daily from the sale of Charlie air fresheners, bottles, chocolate and phone cases, they have family and friends who I'm sure will be providing this support to them.

Or are others now just trying to cash in. Send money to the admin of a Facebook group? Are these people fucking stupid don't answer that

Somebody way upthread (or maybe in the last thread) said the 10% is the chance of Charlie making a "full recovery." I wasn't able to post at the time but it's been at the back of my mind.

Even if the 10% figure is correct (which it probably isn't), it's the chance of the treatment stopping further damage. There is zero chance of Charlie making a full recovery, or any kind of recovery from the brain damage he's already sustained, which is "catastrophic". There seems to be a miniscule chance that the treatment could allow him to breathe on his own but he would still be blind, deaf, immobile, and have a host of other disabilities.

I don't think they'll turn on them just think will be less supportive as nothing to support/Hold protect for/post conspiracy articles for.

I don't understand the whole 7 doctor thing. Surley if evidence was there from them it'd been submitted etc. Unless comes up on Thursday but can hardly say here's our evidence why it will work send us money to get us here..which is what the CA want to raise money for..alomg a lot of other things. Hotel stay for the Pastor etc.

People like that haven't helped especially when really it's all about them.

Logical I mention that a few pages back. And the fact that people are concerned about the parents' benefits.

There is a terminally ill baby at the centre of a High Court case. I don't think a packet of Maltesers and some Radox is going to 'help them and make them feel better' ffs

and its also an incorrct figure

This picture is from May. I'd not seen it before but it's on Instagram. His poor arm looks massively swollen then so presumably is even worse now

Tinseltown yes good point. I also wondered that.

Shatners oops, I've managed to miss out 3 pages with it moving so fast I'll have to go back and see what has already been mentioned so I don't duplicate.

I just think this whole thing is going to end so badly for the parents. As long as there are these delays, it's only going to get worse for them.

I think nothing will change on Thursday. GOSH have already said that they have been forced to do things that are not in the child's best interests. And I think there's a real possibility that this will force them to play hardball with the parents and we'll see the life support withdrawn fairly soon after the judgement.

Smilingmind do you mean the CitizenGo one? I started a thread trying to find out who else has been fraudulently added to the petition and have had zero replies. I suppose the wording made people think I was asking them to sign.
I would love to know if there is somewhere we can report them to.

It would give his parents closure and if it didn't work they would have the peace of knowing that everything possible had been done

But would it? Or would they be trying to find something else, and another treatment after that. It could on and on and at the centre of it all is a very sick child. At some point it has to stop.