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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Charlie gard case thread 2

954 replies

Fancythat69 · 08/07/2017 20:22

The last thread is full, Not sure if another has been started.

Theres a CA rally at GOSH planned for tomorrow. What are these people on?

Charlie gard case thread 2
OP posts:
Thread gallery
16
Puzzledandpissedoff · 09/07/2017 21:12

It's reported that Charlie's mum and dad were indeed at the GOSH rally today: www.theguardian.com/uk-news/2017/jul/09/us-residency-for-charlie-gard-to-be-proposed-by-congressmen

I shall make no further comment on this ...

CaveMum · 09/07/2017 21:13

3littlebadgers thank you for sharing your story. I'm so sorry for your loss Flowers

Xeneth88 · 09/07/2017 21:14

Ah 3littlebadgers I'm so sorry. I missed your post and hope nothing I said seemed at all insensitive. My heart goes out to you. X

Maudlinmaud · 09/07/2017 21:18

Yes Puzzled their interview from the rally is on all the news channels, including BBC. The father reportedly said Charlie does not have the brain damage the hospital have said he has.
What is going on? How are they reporting one thing and the hospital another?
Is someone not telling the truth? If so who?
It's very difficult when the media is reporting everything.

Maudlinmaud · 09/07/2017 21:18

Badgers Flowers

JeffVadersMum · 09/07/2017 21:20

Just seen this on Facebook, whatever your views, surely making money from the situation is just sick

Charlie gard case thread 2
TheFairyCaravan · 09/07/2017 21:22

I believe the hospital. I'm sorry if that makes me a heartless bitch, but I really don't think that highly trained doctors go round making up that babies are brain damaged for the hell of it.

teaandakitkat · 09/07/2017 21:22

badgers thank you for writing that. You write so well.

It is good for all of us to remember that so many families are quietly dealing with serious illness and death every day.

JustChangingForThis · 09/07/2017 21:24

The independent paediatrician who was hired by the parents legal team at the last UK hearing also agreed with the hospital.

muckypup73 · 09/07/2017 21:24

JeffVadersMum,charlies family are selling all sorts of merchandise.

I am actually sickened to read the Gosh facebook page and on there, there is a guy who is saying on the sister in laws facebook page she is slating Gosh something chronic and telling people to stop donating to Gosh, that is absolutely appaling.

Maudlinmaud · 09/07/2017 21:27

fairy I trust the hospital and the court judgements too, I'm just trying to fully understand this dreadfully sad situation and how it came to this point.

LogicalPsycho · 09/07/2017 21:28

3littlebadgers Flowers there is nothing I can say. I'm so, so sorry.

Redglitter · 09/07/2017 21:29

The selling of goods is just disgusting
They don't need the money. I see people are being encouraged to donate to the mother's PayPal account or direct to her bank accounts (details all conveniently displayed on their web page)

The photos they're posting are quite uncomfortable to look at. There's not the slightest sign of life in the wee soul but his parents are smiling away as if it's a normal family picture.

DarthMaiden · 09/07/2017 21:30

@3littlebadgers

The posts from parents like yourself, lonely, Sauvignon and family members like Stiffy show such quiet dignity and sadness.

I'm so very sorry for the experiences you have been though and am humbled you felt able to share them and contribute in such a helpful way to this thread.

muckypup73 · 09/07/2017 21:36

DarthMaiden, I totally agree.

LovelyBath77 · 09/07/2017 21:38

I think they said if the money couldn't be used for Charlie's treatment, then they would donate it to a mito charity.

muckypup73 · 09/07/2017 21:41

LovelyBath77, why is it going straight into the mums bank account???? and not on crowdfunding where people can actually see whats going on?

Stopnamechanging · 09/07/2017 21:42

Look what this poor women has had to put up with just now?

Charlie gard case thread 2
Tupperwarelid · 09/07/2017 21:44

mucky because gofundme etc take too much off in charges apparently

teaandakitkat · 09/07/2017 21:45

Every time I look at Connie she just looks so frantic and trapped. I want to just go and get her and take her away and tell her it's ok to stop. Stop, and be with her baby as much as she can while she can.

I think of my own family and friends, I hope they would take me away from the media and the protests, take me to a quiet place and sit with me and listen to me for as long as it took until I had reached some sort of peace.

But it seems the people around her have the exact opposite agenda and that is so sad.

muckypup73 · 09/07/2017 21:45

I cant get my head round why on earth the parents are actually too busy to spend the last dying moments with their child?

SuperBeagle · 09/07/2017 21:47

I really don't understand how natural selection hasn't taken these people out. Deluded fools.

LovelyBath77 · 09/07/2017 21:48

Yes, it is odd about the money. I'm just repeating what i saw they intended to do with the money.

Xeneth88 · 09/07/2017 21:48

healthy and thriving are they unable to grasp the concept of oedema?! That poor child is dying! He is swollen due to all the chemicals/support keeping him alive, just so his parents "have him" with them. It's beyond me, how do these people think this is normal?

MargaretTwatyer · 09/07/2017 21:49

sauvignon, that's what I thought so it's good to hear it from someone who has been in that position. I honestly don't think anybody could have the slightest idea how they would react in this situation and I think it would be very normal for rationality to disappear completely.

Which is why I find this thread with all this pontificating about how posters think they 'should' be feeling or what they 'should' be doing so distasteful. Along with the lovely comments about things like how they'll probably abandon Charlie when he isn't cute anymore to have another baby or that they're just doing it for the attention/money. Ugh.